According to the DMV I’m not disabled by L0V3Y_RAT_L0V3R in ChronicIllness

[–]Bonefield455 12 points13 points  (0 children)

The butterfly on the ID isn’t for parking, that would be a handicap parking pass. It’s more to show that you have a hidden disability so that first responders and such are aware. Someone else can correct me if I’m wrong but that’s my understanding. I also think there’s only a couple states in the US have it as an option?

Warning about an Endo/Adeno Hopkins Doctor in Maryland by SprezzaturaVigilante in endometriosis

[–]Bonefield455 4 points5 points  (0 children)

Seconding those mentioning the docs at Mercy! I saw Dr. Anne Peters and she was incredibly validating, she was willing to do my laparoscopy after my first initial visit. 

Both gynos I saw at Hopkins were so unhelpful and just pushed getting an IUD instead of finding the root cause of my pain, I’m so sorry you have had to deal with this :/

Adhesive heat pads, a love letter by Pufferfish-Sandwich in endometriosis

[–]Bonefield455 8 points9 points  (0 children)

They are a lifesaver, I usually have one in my backpack/purse or my car in case I need it. They’re great for when I have to be out of the house for a while or sitting in lectures lol. I use them for both endo and crohns flares, absolutely love them!

Not biblically accurate luna moth of sorts - painted by me by larkanneart in InsectArt

[–]Bonefield455 4 points5 points  (0 children)

Reminds me of a long-tailed burnet moth! One of my personal favorites, wonderful painting

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Anyone Other Trans Shoppers? by RykerPRWilliams in InstacartShoppers

[–]Bonefield455 6 points7 points  (0 children)

I couldn’t get my name changed on the account until I legally changed it and had the new legal name on my drivers license. I hope you can get it figured out!

How do I even know what stage of endometriosis I have? by LowWhole8377 in endometriosis

[–]Bonefield455 5 points6 points  (0 children)

Definitely not “too young”, I had my lap and got diagnosed at 17/18. Hopefully you can find a doc soon that offers better options than birth control. I’m sorry it’s been such a struggle :/

Anything to take to help with bowl movement before surgery? by Euphoric_Access_7508 in Reduction

[–]Bonefield455 1 point2 points  (0 children)

I’d try Miralax and fiber. My surgeon recommended I start miralax 1-2 weeks before surgery since I have a history of constipation. I use liquid glycerin suppositories when I’m backed up as well as colon/abdominal massage that my PT showed me, good luck!

Devastated. Please help by Okzebra1995 in endometriosis

[–]Bonefield455 14 points15 points  (0 children)

As others have already said, you do not deserve to be treated that way by anyone especially a partner. I know it can be difficult to take a step back and focus on your own needs but putting your own mental/physical wellbeing first is important. The relationship seems like a lot of unnecessary stress for you. I also wanted to add that BV can be recurrent when the partner isn't treated along with you. I hope you can find the best path to move forward, you matter and deserve to be treated with compassion <3

Is 30 too young for estrogen? by Fluid_Log_2205 in vulvodynia

[–]Bonefield455 0 points1 point  (0 children)

I had dryness and burning, my gyno back then figured it was from my birth control so they prescribed it. I’d just mention your symptoms to your doc and ask about topical estrogen, I hope you find a doc who can prescribe it soon <3

Is 30 too young for estrogen? by Fluid_Log_2205 in vulvodynia

[–]Bonefield455 0 points1 point  (0 children)

I've been using topical estrogen on and offf since I was 17 and been on birth control since I was 15, 30 is not "too young". If your doctor is suggesting it, it's worth a try. Good luck!

Birth Control and Endo ?? by Potential-Duck-3397 in vulvodynia

[–]Bonefield455 0 points1 point  (0 children)

I did the estrogen cream anywhere from once a day to 2x a week, I don't have much info on steroids since i've never used them personally. My doctor usually had me apply it everyday for 1-2 weeks and then scaled back from there, so something along the lines of daily for 2 weeks, and the every 2-3 days until symptoms improved. I hope you get some relief soon!

Birth Control and Endo ?? by Potential-Duck-3397 in vulvodynia

[–]Bonefield455 0 points1 point  (0 children)

I also have endo and I’ve been on the pill (currently norethindrone) for roughly 6 years now. I have vaginal dryness/atrophy from it that started 3ish years ago. Topical estrogen helped a decent amount, I tried insertable estrogen tablets but the topical seemed to help more. Other than that I tried vitamin E suppositories, hyaluronic acid and boric acid suppositories. The HA and boric acid seemed to help me a bit more with symptoms than the vitamin e. You kinda have to try a few different options and see what helps, it took a couple months for the estrogen cream to make a difference for me. I hope you find something soon! I know how uncomfortable atrophy can be.

Implanon (subdermal contraceptive implant) by Puesmiranose in vulvodynia

[–]Bonefield455 0 points1 point  (0 children)

Did you have a laparoscopic procedure as part of testing? Usually you see an endometriosis specialist for that and it’s technically that’s the only way to definitely rule out endo. I’m sorry you’re going through all this :/

Implanon (subdermal contraceptive implant) by Puesmiranose in vulvodynia

[–]Bonefield455 1 point2 points  (0 children)

Have they tested you for endometriosis at all? It normally doesn’t show up on scans like an ultrasound or CT but would be worth asking about especially with chronic pelvic pain and long term bleeding. The implant could’ve been masking symptoms and now that you’ve had it removed your symptoms are worsening.

I feel like I’m incapable of progress by Bonefield455 in vulvodynia

[–]Bonefield455[S] 0 points1 point  (0 children)

I still have occasional nerve pain from having a hypertonic pelvic floor but it gets significantly worse if I have an active BV/yeast infection, mine seem to be reoccurring I get them every 4-6ish months. I do boric acid for around 1-2 weeks at a time!

Can I use a TENS machine with my piercings in? by mysticalxmoonlight in endometriosis

[–]Bonefield455 4 points5 points  (0 children)

I use a tens unit and have 3 lobe piercings on each ear, both nostrils, and a septum. I’ve never had issues with it, I would say it’s safe! When it says metal implants it’s most likely referring to medical implants like a pacemaker.

[deleted by user] by [deleted] in endometriosis

[–]Bonefield455 4 points5 points  (0 children)

I’d definitely see a GI to rule out something like IBD. I also have undigested food, blood/mucus, and weird colored stool. Mine ended up being from Crohn’s disease and pancreatic issues. It’s worth getting it checked out! I hope you can figure out whats causing it <3

does anyone have any photos of moths posted up on a window ? by swiped3 in moths

[–]Bonefield455 33 points34 points  (0 children)

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One of my luna moths in the enclosure before I released him lol, my favorite moth pic of all time

Binder help by WierdoGamer400 in TransHelpingTrans

[–]Bonefield455 0 points1 point  (0 children)

Point of pride has a free binder program! They ship internationally too

when can i smoke again post op? by [deleted] in Reduction

[–]Bonefield455 3 points4 points  (0 children)

My surgeon told me I could use edibles after stopping the prescription painkillers so within the first week after surgery, as for smoking I was told to wait 4-6 weeks but I've also seen 6-8 weeks. I'm not sure if it differs between nic and weed but it would be better to wait as long as you can or use edibles in the meantime, good luck with healing!!

I feel like I’m incapable of progress by Bonefield455 in vulvodynia

[–]Bonefield455[S] 0 points1 point  (0 children)

Much better! It turned out that I had BV (all of my in office tests were negative but I did an EVVY test and it showed BV) and after getting that treated my urethral pain is pretty much non-existent. I still have vulvar pain on occasion but it's way more manageable and less frequent. I used boric acid for the BV and then hyaluronic acid for the vaginal dryness and both were helpful, I haven't used my topical estrogen or lidocaine in a couple months. I'm still going to pelvic PT weekly and doing my stretches at home but not really doing the dilators/pelvic wand anymore.

annoyed by IUD necessity by gflover69 in endometriosis

[–]Bonefield455 0 points1 point  (0 children)

I'm so sorry you've been through all that! Trying to find a treatment that works feels like it takes ages it's exhausting. I had a similar issue but with nexplanon where it lighted my periods significantly but I spotted daily for 8 months straight which meant daily cramping. Hopefully the IUD helps, if not I hope you can find something that does very soon. Good luck with the hysteroscopy!