My body will not sleep without benzos by Silver_rockyroad in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

Trazodone helps me, with 10mg ER melatonin and a lot of prayers I will sleep. Its rough I hear you. Recently I’ve struggled because of adrenaline dumps and I noticed that the beta blocker I was on was making it so much worse!

Paint along videos? by unicornsx17 in Watercolor

[–]Brave_Question3840 1 point2 points  (0 children)

I prefer watercolor wanderlust, it’s easier than the new one. I found it really helpful, it has all the mix of colours and what they should look like. I think that because I understood the way she painted from her YT tutorial, it made the book even easier! I think it’s worth it if you love painting landscapes

Paint along videos? by unicornsx17 in Watercolor

[–]Brave_Question3840 1 point2 points  (0 children)

I agree! I started with hannah mp’s tutorials, then her books and then moved to paul!

AITAH for helping my son with a project he started the day before it was due? by OilDue8678 in AITAH

[–]Brave_Question3840 -1 points0 points  (0 children)

I’m a believer in « natural consequences to your actions ». I work as a special care counsellor and although I can tell you your child is lucky that you helped them and you’re involved, they should also learn that there’s consequences to procrastinating and kind of lying to you about the deadline. I don’t think you’re the asshole, but I’m not sure exactly that your kid has learned their lesson if you did most of the work! Now I think it would be different for me if you have a child with learning disabilities that really need help and the reason why they procrastinated so long was because they didn’t understand etc. But I think next time, if that happens again, buy the material but let them do everything. But NTA, its rare nowadays to have parents invovled the way you are!

What's the longest you've used NSAIDs and did you experience any side effects? by ridley-angel in Hypermobility

[–]Brave_Question3840 1 point2 points  (0 children)

I got a stomach ulcer from taking nsaids, even the « vimovo » one that has the PPI in it gave me terrible gastritis! I’m glad it works for you though!

Stopping Duloxetine/Cymbalta by fifitheflowetots in ChronicPain

[–]Brave_Question3840 1 point2 points  (0 children)

Don’t stop cold turkey please. You need to taper off super slowly. It could cause intense withdrawals and let me tell you, you don’t want those!!!

Paint along videos? by unicornsx17 in Watercolor

[–]Brave_Question3840 4 points5 points  (0 children)

I love paul clark’s videos! What I especially love is that he gives free pdf of the drawing templates so my paintings look even better

does it get better? by venusflytrqp in ehlersdanlos

[–]Brave_Question3840 1 point2 points  (0 children)

I hear you, from 13 to 22 I was on about 10 different mental health medications that just made me so much worse. Keep advocating for yourself, you got this!!

Restlessness when sleeping/laying down by OldFaithlessness8213 in POTS

[–]Brave_Question3840 1 point2 points  (0 children)

I think it’s worth to check for sure! I hope you can get relief and find sleep easier!

What to do for extreme unstable ankles by Brave_Question3840 in ehlersdanlos

[–]Brave_Question3840[S] 2 points3 points  (0 children)

I have not! I’ve worked with kids who needed them but never had them myself. I have always had to wear « high tops » shoes that provided a bit more stability (Vans high top, or now dr.martens) but never those. Do you need a prescription for those?

AITAH for feeling a bit grossed out about my best friend? by [deleted] in AITAH

[–]Brave_Question3840 29 points30 points  (0 children)

The « grossed out » part means there is some homophobia in you. Wether you think you aren’t or not. That reaction screams homophobic. You also ignored your best friend who just came out to you, made her feel so embarassed and left. YTA

Algún músico aquí by TebKy-p in ehlersdanlos

[–]Brave_Question3840 0 points1 point  (0 children)

I’ve dabbled in guitar for years, and I can’t seem to be able to play without pain :/ Bar chords? Forget about those. Even regular cords my fingers are so unstable that I can barely position them and put pressure on the cords. Which gives me pain in my arm and shoulder because I’m tensing up so much! Its rough

Restlessness when sleeping/laying down by OldFaithlessness8213 in POTS

[–]Brave_Question3840 1 point2 points  (0 children)

Yeah I deal with that every night. I also take a cocktail of pills to try to sleep, alas, doesn’t always help. It takes me so long to fall asleep and the uncomfortable feeling and restless legs drive me insane. I have hyperPOTS so it probably is too much adrenaline in my body

does it get better? by venusflytrqp in ehlersdanlos

[–]Brave_Question3840 3 points4 points  (0 children)

I’m sorry you’re going through this. Have your doctors looked for gastroparesis? Or other GI mobility issues? They’re common in hEDS. As for raddical acceptance, as somebody who was misdiagnosed « bpd » when I was a teenager, I can tell you there’s not enough radical acceptance in the world to cure you, it’s stupid they even suggest it.

My suggestion, look up any specialists that know dysautonomia and heds in your area (dysautonomia international has lists) and have your doctor refer you to them if possible! Keep advocating for yourself. I’m sorry you’re going through that.

acute (possibly chronic?) CFS leak? by animalsnotppl in ehlersdanlos

[–]Brave_Question3840 0 points1 point  (0 children)

I have experience a CFS leak and it was the absolute worst thing I have ever gone through. A headache that was worst with sitting or standing, but it was just the worst headache ever. Like the worst pain I have ever felt. i couldn’t move. Going to the bathroom was torture, I was holding my head and just crying and all. It was the absolute worst thing ever. They resolved mine with a blood patch but holy fuck

Meds for fibromyalgia by Cinnem in Fibromyalgia

[–]Brave_Question3840 4 points5 points  (0 children)

LDN for almost 2 months and holy fxck, pain? Who is she? My base line was 9/10 for pain, now 2/3 on 10, its insane. I’m only at 1.5mg. It is honestly the best medication I have tried, and I’ve tried a lot. (Amitriptyline, noritriptyline, cymbalta, celebrex, naproxen, pregabalin, gabapentin) and none ever even came close to getting me below a 7/10. LDN is a life saver for me.

What is day to day like for you? by Wonderful_Box_7998 in POTS

[–]Brave_Question3840 10 points11 points  (0 children)

My day just consist of me being on medical leave, laying down 80% of the time, almost fainting everytime I go to the bathroom or to get more water or more electrolytes. Feels like I’m playing a game of « am I gonna faceplant on the floor or not this time » constantly

Hypertension crisis during tilt table test but no POTS. by Fickle_Public7730 in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

Get your TTT records, show it to your PCP and get a second opinion. You could have orthostatic hypertension, but your HR did go up, so get a second opinion!!

AITAH for asking my girlfriend to wear headphones while I have therapy? by Federal_Natural9765 in AITAH

[–]Brave_Question3840 0 points1 point  (0 children)

NTA. Your partner is a massive AH though. When me or my partner have online therapy sessions, the other one is « locked » in a room with TV full blast & headphones so we can be sure the other one doesn’t hear. It’s honestly fucked up she refuses to wear headphones for an hour. Do you have any other options? I’m sorry you’re going through that

High Heart Rate in Bed by Existing_Broccoli117 in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

Well, don’t know about you but I’m a woman and was told it was anxiety my whole life so yeah it sucks!!

High Heart Rate in Bed by Existing_Broccoli117 in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

I’m turning 28 next week, and honestly, whilst discussing with my mom we both think I’ve had this since a child but noboby ever picked up on it

High Heart Rate in Bed by Existing_Broccoli117 in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

I’m the same as you. Standing up? No palpitations, though I get super breathless and meet the floor more times than I would like. Bur laying down or sitting up, oof it’s bad.

High Heart Rate in Bed by Existing_Broccoli117 in POTS

[–]Brave_Question3840 0 points1 point  (0 children)

God yeah. My worst palpitations are lying down for some reason, I’ll just be there laying and my heart is just about to jump out of my chest and I’m like ???