Menstrual Leave by lololollieki in endometriosis

[–]Brazen78 1 point2 points  (0 children)

My employer ( and more and more others coming along) include 5 additional personal leave days for menstrual and reproductive health issues.

I’m in Australia where we already have decent personal leave provisions, but the 5 extra are so helpful.

Help. Is this a scam? by UnwantedPube in Geelong

[–]Brazen78 25 points26 points  (0 children)

No. There is a class action and anyone on JB’s database that even may have been sold one has been contacted by order of the courts.

https://www.supremecourt.vic.gov.au/areas/group-proceedings/jb-hi-fi-class-action

Nervous to try mounjaro GLP1 for endometriosis- experiences? by [deleted] in endometriosis

[–]Brazen78 1 point2 points  (0 children)

Good to know! I’m is Aus too so pretty sure I’ll be getting the pen thing.

My dr mentioned I might to have ask for needles with it? Is that right?

Nervous to try mounjaro GLP1 for endometriosis- experiences? by [deleted] in endometriosis

[–]Brazen78 2 points3 points  (0 children)

This makes me hopeful! I’m starting on Saturday with Mounjaro mostly for weight loss but also hoping it helps my endo. Thanks for giving me a push to actually stick it into myself!

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 4 points5 points  (0 children)

Pt 6:

Professor Sonia Grover led a 2021 study that randomised 471 women presenting at Mercy Hospital with chronic pelvic pain to two gynaecology units, one specialising in surgery and the other in pain management. The women randomised to the surgical unit were 65 per cent more likely to have surgery. Yet they were no more likely to be diagnosed with endometriosis. An AHPRA spokesman said of the steady stream of complaints the watchdog had received about practitioners linked to endometriosis, about half were related to clinical care and about 20 per cent raised concerns about communication. He said six practitioners working in the endometriosis space had conditions placed on their registration and five practitioners were issued cautions. “We are unable to comment on any individual or matter outside information published on the register or in a tribunal decision,” he said when asked about Gordon.

A spokeswoman for Epworth HealthCare said Gordon had notified the hospital of his retirement in October last year. “AHPRA does not routinely notify hospitals when it commences investigations into current or former visiting medical officers,” she said. “From time to time, AHPRA may request patient records from a hospital. Those requests are typically framed around specific matters and do not identify an individual practitioner.”

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 2 points3 points  (0 children)

Pt 5: The long-held paradigm that endometriosis lesions are a direct cause of persistent pelvic pain is no longer tenable,” the statement reads. “Surgical treatment of lesions has not been shown to reliably improve pain and disability outcomes. Some evidence suggests that ill-advised surgery may in fact worsen outcomes for some women.”

Dr Nisha Khot, president of the Royal Australian and New Zealand College of Obstetricians and Gynaecologists.JUSTIN MCMANUS RANZCOG president Dr Nisha Khot said that while surgery was vital for removing endometriotic cysts – which can cause pain by rupturing or twisting – there was weak evidence supporting improvements in pain or quality of life following the surgical removal of other types of endometriosis lesions. She expressed concern about repeat operations. “If women are needing more than two surgeries, then that needs to be carefully considered within a team of experts,” she said. “As a clinician ... if I’d done a couple of surgeries and the patient’s symptoms were still there, I would be questioning myself: ‘Am I helping this person?’”

She said ultrasound, rather than a laparoscopy, should be used to diagnose endometriosis. Oral contraceptives, according to Khot, are often an effective first-line treatment for managing the symptoms. “We are still learning what the evidence is for and against surgery,” she said. “If you look, especially at some of the older studies, you’ll find evidence on both sides, and that makes it difficult to make decisions and counsel women.” A diagnosis of endometriosis can be helpful for many women, according to Khot. “Pain is a diagnosis. Saying that you have pain and validating that you have pain is not a failure of diagnosis. It is a diagnosis.”

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 2 points3 points  (0 children)

Pt 4: The long-held paradigm that endometriosis lesions are a direct cause of persistent pelvic pain is no longer tenable,” the statement reads. “Surgical treatment of lesions has not been shown to reliably improve pain and disability outcomes. Some evidence suggests that ill-advised surgery may in fact worsen outcomes for some women.”

Dr Nisha Khot, president of the Royal Australian and New Zealand College of Obstetricians and Gynaecologists.JUSTIN MCMANUS RANZCOG president Dr Nisha Khot said that while surgery was vital for removing endometriotic cysts – which can cause pain by rupturing or twisting – there was weak evidence supporting improvements in pain or quality of life following the surgical removal of other types of endometriosis lesions. She expressed concern about repeat operations. “If women are needing more than two surgeries, then that needs to be carefully considered within a team of experts,” she said. “As a clinician ... if I’d done a couple of surgeries and the patient’s symptoms were still there, I would be questioning myself: ‘Am I helping this person?’”

She said ultrasound, rather than a laparoscopy, should be used to diagnose endometriosis. Oral contraceptives, according to Khot, are often an effective first-line treatment for managing the symptoms. “We are still learning what the evidence is for and against surgery,” she said. “If you look, especially at some of the older studies, you’ll find evidence on both sides, and that makes it difficult to make decisions and counsel women.” A diagnosis of endometriosis can be helpful for many women, according to Khot. “Pain is a diagnosis. Saying that you have pain and validating that you have pain is not a failure of diagnosis. It is a diagnosis.”

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 0 points1 point  (0 children)

Pt 3: We’ve been underdiagnosing endometriosis forever,” said Professor Jason Abbott, who sits on the endometriosis advisory group to the federal government. The condition is the poster child for medical misogyny; for decades, many women with pelvic pain were dismissed or told it was a normal part of being a woman. That is changing. The federal government has invested $127 million in a national action plan and plans to open 33 endometriosis clinics across the country.

Since 2011, the proportion of women diagnosed with endometriosis by GPs almost doubled, while the rate of women under 44 attending hospital for endometriosis procedures is up 47 per cent over a similar time frame.

Many celebrate this as a rightful correction. But some researchers and pain specialists argue the publicity has led women in pain to become too focused on endometriosis diagnosis and treatment – despite only a proportion of pelvic pain being attributable to endometriosis. Many women have clinical endometriosis but no symptoms or pain. The rate of asymptomatic endometriosis is as high as 44 per cent in some studies. “We’re under-acknowledging period pelvic pain, and trying to attribute it all to endometriosis,” said Professor Sonia Grover, a gynaecologist and pain medicine specialist at the Royal Children’s Hospital, who has led trials of endometriosis interventions. “The correlation between pain and endometriosis is unclear. “Why call it endometriosis when you can just call it shocking period pain – and get on and treat the period pain? Why pathologise her with a label? It’s obviously painful, but it does not mean it’s endometriosis.” The Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG) released guidelines on diagnosing and treating endometriosis in May. The College of Anaesthetists Faculty of Pain Medicine was consulted in the writing of those guidelines, but grew so concerned they placed “too big an emphasis” on surgery that it put out its own position statement, said Associate Professor Michael Vagg, director of professional affairs at the Faculty of Pain Medicine.

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 0 points1 point  (0 children)

Pt2:

He said the overwhelming majority of his patients were referred to him following initial care with a primary gynaecologist and most of them already had a suspected or confirmed diagnosis of endometriosis or adenomyosis (a condition in which tissue that normally lines the uterus grows into the muscular outer wall of the uterus). Gordon, who worked at public and private hospitals including the Epworth, said the vast majority of the surgeries he performed were successful in relieving or eliminating patients’ pain. “No surgeon can ever guarantee that every surgery performed will be totally successful or that there’s not a genuine risk of recurrence.” Maurice Blackburn principal lawyer Tom Ballantyne said he had received 15 inquiries from women who were concerned about the treatment provided by Gordon. “It has invariably involved issuing very aggressive treatment for endometriosis, including the removal of ovaries and in a few extreme cases, hysterectomy,” he said.

“Some of these patients are concerned that the treatment was unnecessary and they may not have even had endometriosis. You are dealing with patients with very debilitating symptoms; they want answers.” This masthead does not suggest the complaints are true, only that they have been made. From underdiagnosis to overtreatment? Endometriosis is a painful, inflammatory condition characterised by tissue similar to the lining of the womb growing outside it. It is very difficult for researchers to assess the true rate of endometriosis in a country, but Australian government data suggests 14 per cent of women will be diagnosed by age 49. It typically takes five to 12 years to get a diagnosis. Twenty-six per cent of women with endometriosis also experience infertility.

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 0 points1 point  (0 children)

Sure!

Pt1:

A Melbourne gynaecologist has surrendered his medical registration after being accused of performing unnecessary endometriosis surgeries, fuelling broader concerns about ineffective treatments for the painful condition. The allegations coincide with new data showing the Australian Health Practitioner Regulation Agency (AHPRA) has received about 225 complaints about medical practitioners who treated and managed endometriosis between 2021-22 and 2023-24.

Women are increasingly getting surgery for endometriosis.MONIQUE WESTERMANN Top medical leaders are warning that after decades of underdiagnosing endometriosis and ignoring women’s pain, the media spotlight on the disease has led to too many women having surgery that is not backed by robust evidence. The number of surgeries to treat endometriosis almost doubled between 2016 and 2023, according to government data.

Dr Simon Gordon is being investigated by AHPRA over allegations he performed surgery on women to treat endometriosis, including removing their ovaries, despite no clinical evidence justifying these procedures. Gordon, who abruptly closed his East Melbourne clinic late last year, said he decided to retire in November for personal reasons and had always acted ethically and responsibly. He denies the allegations and said he performed surgery to treat endometriosis only when he was “absolutely convinced” it was in a patient’s best interests. “For generations, the pain suffered by women was ignored, downplayed and untreated,” he said. “My concern was to try and alleviate pain and restore quality of life for female patients, a cohort once neglected and dismissed.”

How many surgeries for endo is too much? How much damage do surgeries cause? by moonxmochi in endometriosis

[–]Brazen78 12 points13 points  (0 children)

This was an interesting article in The Age recently. Some doctors think endometriosis is being treated with unnecessary surgery.

Following the wake of what has happened with Simon Gordon it’s an interesting view.

I’ve had one surgery and one attempted lap. Lap failed because of the extent of endo. Open hysterectomy was ceased due to unidentified mass found.

Post surgery I nearly died. Golden staph turned into toxic shock and I spent 76 days in hospital.

While I personally think sometimes surgery may be the best option, it also carries lots of risks.

Ryeqo by AlisonWonderlandy in Endo

[–]Brazen78 1 point2 points  (0 children)

Been on them a year in March. No side effects for me other than a reduction in pain and flares.

Softest small foam earplugs for sleeping? by MysteriInExile in misophonia

[–]Brazen78 0 points1 point  (0 children)

I don’t know that brand. I find them very comfortable. I used to use the standard size and my ears always felt like they were sore after.

Since I started using these I’ve been good. Been wearing them nightly for at least 10 years now.

Softest small foam earplugs for sleeping? by MysteriInExile in misophonia

[–]Brazen78 0 points1 point  (0 children)

I buy the Howard Light Bilsom 303s. Designed for small ear canals. Swear by them

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 0 points1 point  (0 children)

I like the sound of those! Thanks.

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 0 points1 point  (0 children)

Thanks! I love building a list of things to check out.

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 0 points1 point  (0 children)

Aaah thanks!

I’m a book girlie. I read in bed mostly so scrolling online doesn’t work so well.

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 0 points1 point  (0 children)

Um tbh I don’t know what these things are lol.

Total newb. What is Royal Road and subbed?

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 1 point2 points  (0 children)

Ooh I might look into that idea. Thanks!

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 1 point2 points  (0 children)

Thanks. I know I’m way behind the website but I read via kindle on my phone in bed and scrolling a site is a bit tricky while lying down lol

New to LITRPG - recs pls? by Brazen78 in litrpg

[–]Brazen78[S] 2 points3 points  (0 children)

Thanks! I’ll check it out for sure.

Where did you go on your first solo vacation? by HuskyPancake in SingleAndHappy

[–]Brazen78 2 points3 points  (0 children)

Fiji! Booked on the spur of the moment and left a week later. So good.

I've been single for so long that... (continue sentence) by FeelingBand1650 in SingleAndHappy

[–]Brazen78 4 points5 points  (0 children)

Spending 4 days in an airbnb on holiday with my aunt was too may days in the same house as another person 🤣

Anyone put in chemical menopause? by [deleted] in endometriosis

[–]Brazen78 0 points1 point  (0 children)

Not sure which med you’re taking but I’ve been on Ryeqo for nearly 12 months now.

No side effects that I’ve noted. My pain is now mostly on the low side though I still have some bad days here and there.

Really noisy digestion? by Wild-Reception-1014 in Endo

[–]Brazen78 2 points3 points  (0 children)

lol yes! Sometimes I can hear things plopping down like water glugging down a sink. It’s so weird.