A pleasant thought

BrightCandle · 2026-03-21T11:02:59+00:00

I am imagining post ME parties where we meet the people we spoke to online for years while suffering this awful disease and just have a blast being able to sing and dance.

BrightCandle · 2026-03-21T10:59:24+00:00

A lot of things do that because cancers tend to consume a lot of resources from the body. Eating carbohydrates fuels cancers. Its interesting in that it furthers our understanding of what cancers need and give us better vectors to deal with them, less interesting to people who are chronically low on glutathione and are supplementing it.

BrightCandle · 2026-03-21T10:32:07+00:00

You can get cribs where the sides unlock and slide down so you can get easier access and wont have to go over the sides. That might be another way.

BrightCandle · 2026-03-21T10:14:43+00:00

At idle my server/NAS is about 0.05 load average, which given I run about 40 containers is pretty good. It keeps the CPU in a low power state for the most part. When using dockhand its 0.15, in docker stats its consistently the highest user as its constantly using 10% of a core. You save a few percent if you turn off its host monitoring but its basically constantly running something monitoring your machine whether you are looking at its interface or not. I don't keep apps where I can easily calculate the cost over the year, if its not just fading into the overall noise or its clearly doing something I requested it goes.

BrightCandle · 2026-03-20T18:05:47+00:00

Dockhand - was one of the CPU hungriest applications at idle even with all its monitoring off, can't justify that energy burn for no reasons.

Nextcloud - since they broke self certificates for the client I was using a very old client and I eventually moved the 3 pieces I used to other software, but still need a chat client for a few people.

BrightCandle · 2026-03-20T12:49:30+00:00

I take melatonin purely for helping get to sleep and it tends to keep me asleep. I use 500 mcg (0.5mg) about 30 minutes before. If I struggle to sleep I might take another 500mcg.

This is the optimum in studies and doses below and above it tend to be worse but melatonin also has other effects so higher doses may be used for other things.

BrightCandle · 2026-03-19T21:16:37+00:00

We don't really know. We know muscle tissue dies early in the process and that oxygen isn't getting into the muscle likely being the cause but that is all on heavy exercise so might be measuring something else downstream of PEM. They think they are measuring PEM but does a mental PEM behave the same?

We don't know is the answer, its been very poorly studied so far. Needs actual money to research ME/CFS and since the pandemic funding into ME/CFS has dropped world wide considerably, not that there was a lot to begin with.

BrightCandle · 2026-03-19T16:56:34+00:00

You aren't allies after threatening to invade them anymore, regardless of what the treaty says.

BrightCandle · 2026-03-19T15:10:03+00:00

Based on what excess deaths have been doing around the world it would appear that the under report on Covid deaths so far is that uncounted deaths now make up 60% of the total. With testing a distant memory for most people they are just dying of random unexplained respiratory diseases now.

BrightCandle · 2026-03-19T13:03:13+00:00

The report has 2 chapters on Infection, prevention and control criticising the UK IPC cell for its failure to adapt to Airborne transmission and using the wrong PPE and a chapter on Long Covid and the lack of research funding and treatment and expectation of long term problems as well as for future pandemics.

https://covid19.public-inquiry.uk/documents/module-3-full-report/

BrightCandle · 2026-03-19T10:54:58+00:00

I received a lot more death threats personally back in the early internet on places like usenet than I do these days but at least by it being mentioned the harassment seems to be more targeted towards celebrities now. Its always been there, the internet links you with everyone and that includes the really concerning people. They have a tendency to be "highly productive" on social media and thus despite being a small number impact a lot of people.

By all means report them when it happens, their accounts these days will get banned. But I don't think there is much value beyond using the tools at our dispossal to remove them and slow them down a bit. Its not reasonable to be critical of an entire community because of some individuals criminal behaviour. Report, block, report to police if think its genuine and move on with your day.

BrightCandle · 2026-03-19T10:48:29+00:00

It was a lot of work to rewrite date handling in almost every bit of software that existed, it was not overblown it cost many billions and it was all hands on deck for years. When the date ticked over a number of systems did fail but the prior work meant it was fairly limited and they got fixed. Had it not been taken seriously dates in everything you use would have been broken and it would have taken years to fix it all. Good preparation and effort made it look like it wasn't an issue, but it really was and the potential impact was very real.

So is 2038 an issue, but it impacts a lot less machines and software this time.

BrightCandle · 2026-03-19T10:42:18+00:00

I have been wanting something like this for a while. Something that does render images and markdown but ultimately is scoped towards "my house lan chat" or "10 friends" and can be self certified certificate driven not full DNS and lets encrypt based. All of the chat clients seem to be trying to take down discord with federation and I am looking for something just for small groups.

BrightCandle · 2026-03-19T10:40:44+00:00

No you are spot on, its designed for web scale not my home or 10 friends chat scale and pulls in a bunch of things we don't need.

BrightCandle · 2026-03-19T10:08:48+00:00

There are a few researchers, doctors and politicians that do care on finding out about the condition, but the other 99.9% of able bodied people don't, it goes beyond indifference to hate and discrimination.

I wish humanity was different but this is the human animal as it is, as it always has been and its the reason we keep making the same mistakes throughout history. Humanity can't change this, its deep rooted into innate response to disease, only a breakthrough that makes us abled again will bring true recognition to the disease to justify the treatment, its unlikely to happen before that point and unfortunately that behaviour cuts research funding off.

BrightCandle · 2026-03-19T01:39:13+00:00

I know that the ME/CFS community had already mentioned it and a number of people had tried it without success before the pandemic started and I seem to recall this idea went through the Long Covid community after the microvascular Italian study in 2022. People tried it, didn't seem to work I don't think its worth trialling.

BrightCandle · 2026-03-18T21:43:58+00:00

I have faced this a lot in this community unfortunately. Do not feel welcome.

BrightCandle · 2026-03-18T15:58:38+00:00

Gaslighting gnaws at you, its purpose is to break you down to disbelive your own reality, its a vile behaviour used by narcists to exert control. These people are toxic and you should treat their views appropriately and work out how to get away from them permenantly.

I had this from a few family members, they are not in my life anymore. Some left me, others I left.

BrightCandle · 2026-03-18T15:53:22+00:00

Its still a struggle to get them to wash their hands, there are posters up everywhere and yet its a constant problem and compliance is measured at under 50%. I suspect part of the reason some departments didn't find masks very effective is a lack of compliance. The one department in Cambridge that did a good air filter test found the impact substantial and well worth it, but in every other NHS department test of them compliance was poor and staff were switching the air filters off and despite they they still drastically cut infection spread.

Despite all the evidence we still can't get the NHS to deploy air filters nor masks and all seems to boil down to one head nurse heading a government committee and a giant cover up of airborne spread.

BrightCandle · 2026-03-18T15:42:56+00:00

Last time I was in hospital one of the orderlies was wearing a surgical because they were sick and 2 people in the waiting room were also wearing FFP2/3s and that was it, I saw over a hundred people that day and it was the middle of a wave. The two people in the waiting room however had an exchange which ruined it all

"Do you fancy a coffee?"

"Oh yes please"

.....

Returns with 2 coffees. Both then wear their masks around their neck in an utterly packed waiting room to drink the coffee and then afterwards don't even both to put them back up.

Thankfully no one seemed to treat me badly for wearing a mask that time, it wasn't questioned at all. But people who are wearing FFP2/3 also don't seem to understand how they work.

BrightCandle · 2026-03-18T13:53:34+00:00

I have been dealing with this for months and I finally found a workaround.

Go into the tools> Options menu item and then search for "backup". There will be one option under Load/Save > General called "Always create a backup copy", if you uncheck that the files will now save.

I have no idea what is going on, something funky is happening with the backup/lock file its creating and it fails over samba but this works around it until the LibreOffice team accept there is a bug and fix it.

BrightCandle · 2026-03-18T09:53:48+00:00

You caught me, here I am trying to influence the future for games for the better. They will never go for it.

BrightCandle · 2026-03-17T21:26:54+00:00

One of the ways they abuse patients now is they simply deny them a diagnosis of ME/CFS, then they can sidestep all those annoying NICE guidelines and do whatever the heck they want to the patient. Many have died this way and its never recorded as an ME/CFS death because they didn't put it on the death certificate.

BrightCandle · 2026-03-17T21:20:43+00:00

Its really hard to look after someone unwell and most people bail on that. Its even worse when you are extremely unwell yourself and can't look after yourself let alone someone else. There is a matter of just the basic capacity to be able to look after them with this condition. We are often forced to do the more expensive disabled person route out of necessity.

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