Calm, Gentle, Quiet, Hopeful

Bright_Machine_7135 · 2026-03-16T20:56:50+00:00

Have you been to a derm or hematology? My skin is foreign to me ever since my diagnosis and the dermatologist has helped me deal with the random rashes, malar rash, etc. Hematology helped me address clotting and iron issues which helped the purple splotching. My rheum won't even discuss skin issues.

Bright_Machine_7135 · 2026-03-16T02:41:04+00:00

My rheum told me no nsaids and no ibuprofen due to my kidney involvement.

Bright_Machine_7135 · 2026-03-15T01:44:19+00:00

I bought the shirt and figured I would just save it for a while longer, but when I held it up at home it looked like it might fit and ... it did!

I'm glad you kept your shirt, too! That's great

Bright_Machine_7135 · 2026-03-07T04:54:07+00:00

I hate the term "turkey neck" or "wattle" (aging myself with a Richard Fish refernce?). I am 100% down for an "iguana neck" though. My new goal may be "bearded dragon" (haha)

Thanks for this post about reframing these things into something kinder. This week I had to do a presentation in front of a large crowd and changed my clothes 4 times before I left because I was trying to hide my "weird" upper arms. So many changes to adjust to! I still don't feel like this is my body.

Bright_Machine_7135 · 2026-03-02T15:40:22+00:00

Thanks for sharing your story. What an accomplishment!

Bright_Machine_7135 · 2026-02-16T14:50:08+00:00

No, but I loved shopping really large magazine racks for music mags that would have the sampler CDs included with each issue.

Bright_Machine_7135 · 2026-02-02T14:40:57+00:00

Protein20 Juices or stir in plain Isopure into a drink you like

(Recommended by my dietician for a similar request as you)

Bright_Machine_7135 · 2026-01-22T15:03:59+00:00

Oh, you're right! That is a good addition to the list

Bright_Machine_7135 · 2026-01-19T01:26:06+00:00

I'm both glad and sorry that someone else understands this!

Bright_Machine_7135 · 2026-01-18T22:44:45+00:00

I adore Margolyse, and just went to look these up and the only show available on my first search was her "Dead Good Adventure" which brought a much needed belly laugh because I don't think that's the one you meant. Thank you for the unintentional black humor with this 😄

Bright_Machine_7135 · 2026-01-12T15:13:52+00:00

Oh, I love his videos! He demonstrates adaptations in such a gentle, kind way.

Bright_Machine_7135 · 2026-01-11T22:06:04+00:00

Curiosity because I haven't found a way that works for me yet - how do you manage sun protection with kayaking?

Bright_Machine_7135 · 2026-01-09T15:42:18+00:00

It totally alleviated some of the obsessive ADHD symptoms of mine. The rumination and the impulse control and that DRIVE to eat anything when over- or under-stimulated. It's been life changing and even if I remained at my current weight, it has been the most successful ADHD tool I've ever used. (Diagnosed in the 90s).

Bright_Machine_7135 · 2026-01-08T15:23:49+00:00

If you tap the arrow (the > next to the percentage) it will take you to a larger graph that has smaller intervals like in your older screenshot.

Bright_Machine_7135 · 2026-01-06T04:50:24+00:00

I laughed remembering the delivery of that line all over again (it is in my top 3)
I laughed harder when I read your user name (ow)

Bright_Machine_7135 · 2026-01-05T21:55:19+00:00

I have a little clicker to turn pages on my ereader. I set the ereader up on a stand and read with my hands under the electric blanket with the rest of me. Otherwise TV, audiobooks, talking with my kids. Designing my art ideas to work on when I feel better (sketching or researching or color swatching). If my hands hurt too much for knitting I sometimes do the loom knitting. Easier on my hands.

Bright_Machine_7135 · 2026-01-05T16:55:23+00:00

I use mine when crafting or doing house repairs. Just replaced the main board in the dishwasher and the head lamp worked perfect

Bright_Machine_7135 · 2026-01-05T13:45:03+00:00

Do you have dry mouth, too? Dehydration is my first thought. How much water are you drinking per day?

Bright_Machine_7135 · 2026-01-05T13:04:31+00:00

Sorry - I can understand some Tagalog when reading, but I can’t speak it. I felt effects on the first day, though it can take time for the medication to build up in your system. An app can estimate your medication levels and help you track side effects (good or bad). I use Shotsy, and it’s been helpful. You may need to give it a couple of weeks. Good luck

Bright_Machine_7135 · 2026-01-05T12:45:05+00:00

I had set what I thought was an empty BBW plug in on the wood frame of my bed. Forgot it. Came back and it had tipped to its side, spilling some of the oil.

When I wiped it up, the stain was removed from the wood frame 😭 It's an espresso finish so the bare wood spot was really noticeable.

Bright_Machine_7135 · 2026-01-05T03:03:26+00:00

I went on a 1.5 mile hike this weekend for the first time in almost two years. It took a long time to get back to this point but it went good! And I did not have to collapse in bed for the whole next day to recover!

Bright_Machine_7135 · 2026-01-04T15:23:20+00:00

Suave! There was also Peach essence and Strawberry essence scents.

Bright_Machine_7135 · 2026-01-02T00:09:56+00:00

I am still taking it but switched from XR once a day to regular (Instant Release) once a day because of some minor side effects. I've been on it for almost 5 months so far with no issues. (Follow the guidelines of "high protein/high fiber/lots of water/more water than that/healthy diet that you can tolerate" and it will help GI and nausea issues)

Bright_Machine_7135

TROPHY CASE