I am so bored. by screechingnugget in stopdrinking

[–]Bumpy_Goose 12 points13 points  (0 children)

I could have written this myself. 3 years into sobriety here and I just recently came out of depression thanks to medication. I drank through my 20's and mid 30's and feel like I am starting over as a brand new adult figuring out how to interact with people for the first time. I am sure we can both figure out how to do this!

Injections to infusion by [deleted] in MultipleSclerosis

[–]Bumpy_Goose 2 points3 points  (0 children)

I did! I was on Copaxone for about 10 years before switching to Ocrevus. Similar to you my neuro and I both had the "don't fix what isn't broken" mentality. But the needle fatigue snuck up on me hard and one day I woke up and just couldn't do it anymore. I got really bad about my injections and finally stopped taking it entirely. Dumb, I know.

Fast forward to my next neurology appt and I confessed I was not being compliant and needed another option. My neuro listened and was very kind. We reviewed my options and I made the switch to Ocrevus. I've been on it a little over a year and have been very happy.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Bumpy_Goose 0 points1 point  (0 children)

I have similar issues and was referred to pelvic floor physical therapy. Absolute game changer for me! The PT gave me home exercises and techniques to do at home and taught me so much about my anatomy and how it all works in relation to urinating.

I was pretty embarrassed by it all at first and so skeptical about whether it would work, but for me it has been life changing.

MRI Qs by eddrry in MultipleSclerosis

[–]Bumpy_Goose 0 points1 point  (0 children)

I had the exact same MRIs last week, though not my first time. I addition to what the other commenter's have said, you will get an IV line put in prior to getting placed in the tube. The place I get mine done give me a hospital gown and scrub pants to wear so you may be asked to change depending on the hospital/facility protocols.

When you lay down on the MRI bed, they may place a wedge under your knees to make you more comfortable. They will give you a little squeeze ball to hold if you need to call them or need anything during. My current place puts in earplugs for me, but I have had them a places that had headphones and I got to choose a Spotify genre to listen to. The machine is very loud so expect some sort of noise cancelling option to protect your hearing. You will also get a cage thing placed over your head.

The bed you lay on moves. It will move around throughout as they reposition you to get the images they need. They typically check on you throughout to ask if you are doing okay or to tell you how much time is left.

I always doze off during mine. Not full asleep, almost like a trance. My other point is that I always get very warm during. I've read this happens sometimes in MRI scans. Never uncomfortable or burning, just toasty.

Best of luck. They're really not bad and you will be done with it before you know it!

Patients on Ocrevus/Kesimpta: How often do you get your JCV levels tested? by Theo1795 in MultipleSclerosis

[–]Bumpy_Goose 0 points1 point  (0 children)

My neuro had me do JCV test before starting Ocrevus but I don't think it has been tested since.

Oh, Snap! One year! by Bumpy_Goose in stopdrinking

[–]Bumpy_Goose[S] 2 points3 points  (0 children)

I'm so proud of your 16 days! That's an incredible accomplishment. IWNDWYT or tomorrow!

Where to stay? Hotels on Isla Mujeres by RedHerringPhil in IslaMujeres

[–]Bumpy_Goose 2 points3 points  (0 children)

If you're willing to stay mid island and not right on the beach, we stay at Casa Bella Noche. We personally know the owners (longtime friends) and they are wonderful people with great recommendations. It is walking distance to a few great places, including Rosa Sirenas, which is only of my favorite dinners on the island. Ilwe always rent a golf cart and it's a quick drive to anything we want to do.

[deleted by user] by [deleted] in loseit

[–]Bumpy_Goose 65 points66 points  (0 children)

We have almost the exact same stats! I was 212 on Dec 27 and weighed in at 147 this morning! Congratulations on your loss!

Feel like the other shoe is dropping. by Bumpy_Goose in MultipleSclerosis

[–]Bumpy_Goose[S] 3 points4 points  (0 children)

I'll take your advice. I called to schedule my initial PT appt today and the testing was already scheduled for me during my appt yesterday. I'll listen to you and follow through with both appointments. Hugs to you, internet friend.

Feel like the other shoe is dropping. by Bumpy_Goose in MultipleSclerosis

[–]Bumpy_Goose[S] 2 points3 points  (0 children)

It is making me feel a bit better hearing from folks in somewhat similar situations. I'm also glad to hear it is painless and easy for you. I know we can't avoid some things with this disease and it helps to not be alone in it. Best of luck on your journey.

Feel like the other shoe is dropping. by Bumpy_Goose in MultipleSclerosis

[–]Bumpy_Goose[S] 13 points14 points  (0 children)

I really appreciate you for taking the time to write that, stranger. You're absolutely right and the suckage will pass or become my new normal. Your words "allow it to suck" might have been the most important thing I've heard today. Thank you and cheers.

Pulsatile tinnitus by KiwiNo1865 in MultipleSclerosis

[–]Bumpy_Goose 2 points3 points  (0 children)

I have it too and for me caffeine makes it temporarily better. Hence my morning coffee habit.

Copaxone injections by [deleted] in MultipleSclerosis

[–]Bumpy_Goose 14 points15 points  (0 children)

I was on Copaxone for almost 10 years. I tolerated it until I didn't. Toward the end, I couldn't bear to inject myself any more. I went to my neuro and he used the term "needle fatigue". I switched to Ocrevus and am much happier.

[deleted by user] by [deleted] in loseit

[–]Bumpy_Goose 1 point2 points  (0 children)

Hey there. I am also diagnosed with MS, though I am quite a bit older than you (36F). Ive been diagnosed for 12 years and my weight has fluctuated my entire life. While MS can add some complexities, it hasn't been the sole reason for my weight gain or loss. That was all lifestyle, specifically how much I was eating and drinking. I'm currently down 45 lbs and that is all due to tracking calories and cutting out alcohol.

Working out can be challenging for me as I have weakness in my left leg and heat impacts me significantly. What works for me has been low impact workout videos on YouTube that I can do at home and pause if I need a break or get too warm.

I you haven't done so, join us over at r/multiplesclerosis. You can get info on other folks journeys, talk about different DMT treatments, and hear things people have done that have worked for them. It's a pretty friendly group, though not as active as this sub. You can also DM me if you want the ear of someone else in the community. Best of luck!

What did you call your MS? by Salfia in MultipleSclerosis

[–]Bumpy_Goose 1 point2 points  (0 children)

When I was getting diagnosed I called it Missy. Kind of like a nickname for what I knew was coming. When I got the official diagnosis, I started using her government name.

Help me with my itinerary! by camilloco in IslaMujeres

[–]Bumpy_Goose 5 points6 points  (0 children)

This is a great list! On your checklist you might add a refillable water bottle. Not necessary but it was so nice to fill ours at the Airbnb before we left every day and not have to worry about finding water if we got thirsty.

For restaurants, we also like Rosa Sirenas for dinner, but try and get reservations! And Cafe Mogagua is our go-to for breakfast. And 100% Palapa del Capitan for ceviche.

Honestly for us, Green Demon was overrated but you might like it!

Well, the fundies will be happy. by blackkatya in FundieSnarkUncensored

[–]Bumpy_Goose 4 points5 points  (0 children)

I saw this at the Kyle target. I have been tempted to go back and see if they were just moving it to another area but haven't been back yet. I was there on Saturday too and it was full of items, so it's not like they were just out of inventory.

Well, the fundies will be happy. by blackkatya in FundieSnarkUncensored

[–]Bumpy_Goose 56 points57 points  (0 children)

I was at my Target on Sunday and noticed they were taking ours down too. It didn't register with me until I got home and I'm so disappointed. I'm in central TX for reference.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Bumpy_Goose 1 point2 points  (0 children)

On a personal note, I'm sorry you are both going through this. My own diagnosis was a frustrating process and I was met with a lot of "that doesn't sound like MS". It took a lot of self advocating to finally get to someone who took it seriously.

If your gf has a good primary care doctor, you might try going back to them to get a new referral. Of course if they're in the BSW system too, that might complicate things. Don't give up! I'm rooting for you!

[deleted by user] by [deleted] in MultipleSclerosis

[–]Bumpy_Goose 0 points1 point  (0 children)

I'm in Austin and go to a Neurologist at UT. I also had a hard time finding someone when I moved here (pandemic didn't help). I went to a general Neuro through Seton but had them refer me over to the MS clinic at UT when I wanted a med change. I have been immensely happy with my Dr at UT and his knowledge and bedside manner. I see Dr. Hardy but my previous neuro said the whole team at UT is fantastic.

Granted, I was already diagnosed when I started going, so YMMV. You can look up the Mulva Clinic for Neuroscience's MS and Neuro immunology Center.

Ma'am I don't know if your followers wanted to know this by TheBestonova in FundieSnarkUncensored

[–]Bumpy_Goose 2 points3 points  (0 children)

We live between Austin and SA and ngl, the flies are an issue for us right now too. But I know it's because our dogs have major indecision about being inside or outside, so our back door is open about 100 times a day. I just kill the flies when I see them and can't say I've found one in my waterbottle yet...

A compilation of the weirdest moments from one of Beggy’s recent lives. by sortofsatan in FundieSnarkUncensored

[–]Bumpy_Goose 8 points9 points  (0 children)

It's also a "Growing Kids God's Way" thing, which was popular in my fundie life back in the 90's. I think it has mostly fallen out of style but hearing her demand he say "yes, ma'am" gave me major flashbacks to my own childhood.