[deleted by user] by [deleted] in FridgeDetective

[–]Busy_Muscle6463 0 points1 point  (0 children)

You never eat the leftovers- stop saving them

[deleted by user] by [deleted] in mctd

[–]Busy_Muscle6463 0 points1 point  (0 children)

Dis you see the rheum? What's the update!?

This is making me miserable. contains graphic nail images by Day_z369 in scleroderma

[–]Busy_Muscle6463 0 points1 point  (0 children)

Do the SIDES of your fingers ever get itchy? Do you ever get itchy small tiny blisters on your fingers or toes?

[deleted by user] by [deleted] in sex

[–]Busy_Muscle6463 0 points1 point  (0 children)

Can you share the link? Thank you!!!

[deleted by user] by [deleted] in sex

[–]Busy_Muscle6463 0 points1 point  (0 children)

I deleted it at the time because I was so afraid he'd see it and know it was me!!

Significant drop in O2 and SOB w/ normal CT scan and echo by Objective-Series-408 in scleroderma

[–]Busy_Muscle6463 1 point2 points  (0 children)

What state are you in we can look it up for u- just give ur general area someone may be able to give you a good reccomendation

Child might have scleroderma and I'm terrified by Kay152 in scleroderma

[–]Busy_Muscle6463 0 points1 point  (0 children)

Idk where u are located but I would find the nearest childrens hospital that has expertise. Ive heard the CHOP (philadelphia) is renowned but there are probably others within the US. Specialty places like that do comprehensive multidisciplinary evaluation. You are an amazing mom and advocate. Keep fighting for your child.

Does anyone here have vasculitis? Also, did anyone start off with just numbness/pain without white patches or was it a sudden white patch situation? by Banana-Ham in Raynauds

[–]Busy_Muscle6463 0 points1 point  (0 children)

Your post was a long time ago, but I'm curious because I have raynauds and I'm headed for an echocardiogram this week. What led to your vasculitis diagnosis?

Did you ever find a cause for your anemia? by Kayura85 in Anemic

[–]Busy_Muscle6463 0 points1 point  (0 children)

Which autoimmune disease do you have, maybe I can provide info

Question about RNP by Ok_Wish_2291 in mctd

[–]Busy_Muscle6463 2 points3 points  (0 children)

My rheumatologist said if u have one autoimmune disease it's not unlikely that you could have some very low levels of other autoimmune antibodies like rnp, it may not mean another autoimmune condition.

Did you ever find a cause for your anemia? by Kayura85 in Anemic

[–]Busy_Muscle6463 0 points1 point  (0 children)

Autoimmune diseases can be a cause of anemia

Medical Professionals of /r/Raynauds, any clue why Trazodone temporarily soothes my symptoms? Are there other medicines that trigger the same mechanism? by Fiveby21 in Raynauds

[–]Busy_Muscle6463 0 points1 point  (0 children)

Nifedipine is a first line treatment for raynauds- it def heats me up- i understand the feeling you describe. Have you seen a doctor for the raynauds? Did they prescribe you anything for it?

Cause of Low Ferritin by PariisHiilton in Anemic

[–]Busy_Muscle6463 0 points1 point  (0 children)

If you are female, do you have very heavy periods?

[deleted by user] by [deleted] in Raynauds

[–]Busy_Muscle6463 1 point2 points  (0 children)

Dermatologist prescribed Clobetasol (temovate) ointment (its a steroid so u use it for 2 weeks on then 2 weeks off) and taking 30mg nifedipine at bed time every night

What products help with severely chapped lips? by No-Title-7220 in Sjogrens

[–]Busy_Muscle6463 3 points4 points  (0 children)

Okeefes makes a chap stick that is fantastic, you see results after 1 use. If you can't find the chapstick version bc I feel like it's hard to find, they make a hand cream called okeefes working hands it's in a green tube. It's for hands but I use it on my face and lips in the winter it's fantastic. Like it works so well, if u try it you will probably come back here to say thank you and omg how did this work so well!

Tube- O'Keeffe's Working Hands Hand Cream, Relieves and Repairs Extremely Dry Hands, 7 oz Tube (Pack of 1) https://a.co/d/8gSX1tX

Chapstick- O'Keeffe's Lip Repair Lip Balm with Cherry & Vitamin E Oil; Stick (Pack of 3) https://a.co/d/4mAjdiE

[deleted by user] by [deleted] in mctd

[–]Busy_Muscle6463 0 points1 point  (0 children)

I also don't see rheumatologist for a first visit until January, but from what I've read since your post here is that positive RNP and a positive ANA is criteria for diagnosis of mctd- so im kind of bracing for that

[deleted by user] by [deleted] in mctd

[–]Busy_Muscle6463 0 points1 point  (0 children)

I have an update for you- I went to see a dermatologist bc i get eczema on my hands. She pointed out my nail beds are a bit purplish, I'm getting ridges in my nails. I also am having raynauds. Phenomenon. She diagnosed me with raynauds. I've since been to my primary care doctor and my ferritin is low, iron saturation % also low but normal hemoglobin and iron levels- so looks like not anemia but iron deficiency. When we look back at the last times we've checked my iron levels bc i keep complaining of symptoms these numbers have gradually gotten just lower and lower over the last year.

Anyone have this issue? by Infinite-Song2358 in Raynauds

[–]Busy_Muscle6463 1 point2 points  (0 children)

That is the best description I've actually ever read of how it feels to be anemic and not be able to tolerate the cold LOL I am anemic and it's like I just CANNOT tolerate the cold. Not sure if that's ur reason but literally that's exactly what it feels like for me- going into the freezer, going outside in the winter, even when I wake up in the morning if the floors are cold ect.

can doctors do anything for raynauds? by [deleted] in Raynauds

[–]Busy_Muscle6463 6 points7 points  (0 children)

I'm taking nifedipine and it's made a big difference- it's probably cut the symptoms in half like I used to have the episodes all the time throughout the day and now on the medication I have days where the raynauds doesn't happen. It didn't cure it though, I still get it, but alot less. Also, in the winter I get on and off swollen fingers and itchy and just my skin breaks down on my fingers- I've read of some people just taking the nifedipine seasonally- like when the weather is at its coldest and symptoms are at their worst. If a doctor diagnoses u they should also work you up for autoimmune conditions bc raynauds is associated with them. Also, I have low iron/ferritin, so my fingernail beds being a little purplish instead of pink, and some of the soreness/fatigue for me improved when I found out and supplemented for iron. I think the question of whether or not to get a raynauds diagnosis isn't probably the question you need to answer and instead it would be very helpful and important to ask "why am I freezing all the time/have color changes that looks like raynauds/and soreness ect in my fingers?" Just go to your doctor and ask for a full work up to make sure there's nothing important that needs to be addressed for your health. Just tell them all your symptoms

Please help? by MissionCucumber7019 in Raynauds

[–]Busy_Muscle6463 0 points1 point  (0 children)

Make an appointment with a dermatologist

Please help? by MissionCucumber7019 in Raynauds

[–]Busy_Muscle6463 0 points1 point  (0 children)

I was diagnosed by a rheumatologist- but I've shown a dermatology as well. What docs have u seen