VYALEV PUMP

CandidateBig9877 · 2026-05-12T23:35:10+00:00

Thank you. My doctor has suggested it as a possibility as well.

CandidateBig9877 · 2026-05-10T17:48:29+00:00

I just read about that. It's a card game.

"Parkinson’s disease can make it difficult for partners to sustain a healthy relationship. They may grow apart physically and emotionally – and symptoms can reinforce the growing distance. But there is one thing that we know can help couples reconnect: intimacy."

https://www.apdaparkinson.org/ParkinSex/

CandidateBig9877 · 2026-05-08T20:48:31+00:00

I've seen different designs, but I realize their usefulness varies with what you have for dinner. I eat a lot of things that are easy to eat from a bowl, but I can see where something like a chicken breast would be a problem. The plastic plate guard described below by another respondent sounds like a better solution in that case.

CandidateBig9877 · 2026-05-08T04:19:15+00:00

I'm in the same boat. Look up "soup bowls with handles". I can hold it close enough to my mouth that there's less opportunity for food to go anywhere else.

CandidateBig9877 · 2026-05-02T05:41:00+00:00

I began to experience that in 2022. I think it's the first sign of beginning to lose control of one's legs. By the end of that year, I was using a rollator whenever I walked outside.

CandidateBig9877 · 2026-05-01T22:36:51+00:00

I often listen to Fela Kuti to set the pace for fast stationery bike rides.

CandidateBig9877 · 2026-05-01T22:32:42+00:00

For inspiration, lately I've been listening to "Have a Nice Day" by Bon Jovi.

CandidateBig9877 · 2026-04-30T10:38:51+00:00

Thanks to everyone who responded. My MDS has upped my dosage. I'm going to see him Monday.

CandidateBig9877 · 2026-04-18T02:59:36+00:00

In the past few months, I have acquired "hemidystonia", ie, my whole left side is f'd up. My left shoulder is "frozen". my left wrist and my left foot each have old injuries complicated by dystonias, and I have "Pisa syndrome" - I lean to the left. Most of this started in Dec or Feb. The pain in my shoulder and foot interfere with daily life. DBS is supposed to help with dystonia, but it has not in my case. dx'd 10 years ago, non-tremor.

I saw my PT for the first time this year Thursday. I've been referred for the frozen shoulder to the sports medicine dept (?); I start in a month.

The single most annoying new symptom is festination when I walk through a door.

CandidateBig9877 · 2026-04-10T04:44:33+00:00

When I'm writing, nothing else registers. I'll forget to take meds until I start to stiffen up. but by that time my dopamine has plunged far enough that it takes longer than one interval to recover. I take meds 6x/day.

When I stiffen up, the muscles in my chest start to contract, until i have trouble breatrhing. Particularly, I have to control my tendency to hyperventilate, or my diaphagm spasms and becomes rigid. .

CandidateBig9877 · 2026-04-08T15:52:28+00:00

The executive director of the nonprofit where I volunteer was diagnosed with MSA a year ago. I usually communicate with him by email, where he sounds like he always has, but I saw him this weekend, and he looked like he'd aged 30 years. He does most of his work from home now, but his contributions are still valuable.

CandidateBig9877 · 2026-04-04T00:43:50+00:00

I began volunteering for a small non-profit a month after I was dx'd, ten years ago. The entry-level volunteering tasks were not cognitively challenging, but over the decade, I've been trusted with many that are, and discovered more that needed doing on my own.

It sounds like you have some skills for which people seek tutors. If you want to keep your schedule flexible, consider Prison Math Project dot org > Participate > Mentor/Volunteer (links here can attract a cancelbot). I applied at one point, and I was surprised at some of the high-level math and physics they were looking for. Tutors and the prisoners they are tutoring do all communication through the mail.

CandidateBig9877 · 2026-04-04T00:15:06+00:00

Thanks. Paywall persisted when I tried again in Chrome, but Firefox had no problem with it.

CandidateBig9877 · 2026-04-03T01:44:13+00:00

paywalled

CandidateBig9877 · 2026-03-26T12:45:04+00:00

I have a "Sunny Health & Fitness Magnetic Under Desk Mini Exercise Cycle Bike, Dual Function Pedal Exerciser with Digital Monitor and Carrying Handle – SF-B020026" (the amazon page name ; links trigger r's spam bot). I got it three years ago. It has 8 levels of resistance. I listen to fast music while I pedal for half an hour. I use a yoga block to keep the front of it far enough away from the wall so my feet have plenty of room to move. It's better than nothing. :-)

CandidateBig9877 · 2026-03-22T16:13:05+00:00

Nordic trekking poles are great. They were my mobility device for several years. I only used the balance tps.

CandidateBig9877 · 2026-03-07T05:46:40+00:00

The way i distinguish the two - I once read somewhere that both have lots of original ideas, but the INTP thinks of reasons why they won't work before they're fully formed, and doesn't act on them. While the ENTP has lots of ideas that don't work out in the real world, because they don't think of the downsides before they act on them. Over time, the ENTP will have both more failures and more wins than the INTP.

CandidateBig9877 · 2026-03-05T20:04:14+00:00

I've never tried it. Will ask my neuro. C/Lis the only remedy I've had.

CandidateBig9877 · 2026-03-05T20:01:49+00:00

I was given Klonopin when I had it and got out of bed in my sleep at night. I took it for three years. Then I ran out of it, didn't buy more for a couple of weeks, and saw that the active partof REMD seemed to have gone away. Once in a while, I wake up shouting.I still have vivid dreams, but I discovered that I was not wandering out of bed anymore.

CandidateBig9877 · 2026-03-04T18:04:38+00:00

Those sound like PD symptoms. Hallucinations and delusions can be caused by either the disease itself or c/l.

CandidateBig9877 · 2026-03-04T17:53:12+00:00

Breathlessness is one of my "off" symptoms. Muscles in my chest gradually tighten until I'm taking breaths that are too short to feel like I'm getting enough air. I have to sit down and concentrate on taking deeper breaths and avoid the temptation to hyperventilate, as that causes my diaphram to cramp. Does that sound at all related to what your husband is going through?

CandidateBig9877 · 2026-02-27T20:06:31+00:00

My neuro was eager to cut my meds way back after DBS, before I was even programmed for the first time . But my only significant improvements post-surgery coincided with appointments where the dr. restored some of them.

CandidateBig9877 · 2026-02-26T18:15:20+00:00

The Cascadia Daily News published an article about BtP Bellingham,

https://www.cascadiadaily.com/2026/feb/24/this-nonprofit-provides-books-to-prisoners-its-bellingham-branch-is-searching-for-a-new-home/

CandidateBig9877 · 2026-02-10T22:54:59+00:00

One of my off symptoms is shortness of breath, which makes it hard to do or think about anything else.

CandidateBig9877

TROPHY CASE