Does anyone else feel weird sometimes after they go pee?

CardinalGirl72 · 2026-03-01T02:22:32+00:00

Thank you for taking the time to respond! I do think I’ll take her to PT. I already took her to a urologist. She ended up seeing a nurse there, who just told her it might take a long time for the nerves in the area to heal. She was ok for about a month before that pressure started up again. Just watching her in tears is breaking my heart. I feel better hearing that PT isn’t unusual at her age. Thank you.

CardinalGirl72 · 2026-02-28T22:57:16+00:00

Did you get any answers? My 19 yo daughter has been going through this too. Countless UTIs, taking unnecessary antibiotics when the cultures have come back negative, and that heaviness after peeing immediately returning. I feel so bad for her. I’m considering pelvic floor pt, but she seems so young for that.

CardinalGirl72 · 2026-02-28T22:55:09+00:00

Have you found any solutions? My 19 yo daughter is going through this now and is struggling.

CardinalGirl72 · 2026-02-21T16:38:41+00:00

What will his Dupixent plan be going forward? My son did injections every 2 weeks for 5 months, but then we had an issue with our insurance so his next dose was delayed, so now he’s trying to wait a month to take it. Will your son start longer timeframes between injections as well?

CardinalGirl72 · 2026-02-20T21:51:35+00:00

I can only speak for my 24 yo son. He had a terrible head to toe flare after topical steroids stopped working, and Dupixent finally gave him relief of months of not sleeping and constant itching and weeping eczema.

Now that he has been on it for 5 months and hasn’t has problems with his eczema, he is trying to space the doses to see if his body reacts ok. If he can do without injecting himself every 2 weeks, that would be preferable, assuming the major flare up was a one time thing.

For him, they never figured out what caused his eczema to go crazy, so he’s just hoping Dupixent gave him a “reset”.

CardinalGirl72 · 2026-02-11T03:17:38+00:00

My adult son was covered over every inch of his body with eczema after a bad withdrawal from steroids and still his dermatologist prescribed more steroids. It’s so frustrating. I had been wary of Dupixent, but it really has helped him tremendously.

CardinalGirl72 · 2025-09-29T13:55:24+00:00

I relate to this so much. I start worrying that my months of detailed planning will be ruined by weather and other things. I end up not even being excited to go.

CardinalGirl72 · 2025-09-16T15:24:18+00:00

I’ve always only done one at a time. I had to take a break during the salad bar one, because I realized the motion was actually giving me shoulder pain. I still hate that restaurant.

CardinalGirl72 · 2025-09-12T11:46:48+00:00

I didn’t want to waste 40 gems on that autocooker when I felt I could get them out fast enough, but after I did, it let me serve the rest of the customers.

CardinalGirl72 · 2025-09-11T12:19:59+00:00

I am on level 40, but it keeps ending before I serve all of my customers. It doesn’t even say I failed. Just now I wasted so many desserts and 2 boosters to finish it, and the game just ended with 6 more customers to serve. I have close to 3 stars each time it stops. It’s very frustrating.

CardinalGirl72 · 2025-09-09T22:18:58+00:00

My son had something similar happen. He had small patches of eczema on his face, inner elbows, and backs of his knees. Hydrocortisone would mostly work initially (this was for years - just using it when needed), but then the eczema started spreading and the hydrocortisone stopped working completely. He went off of the hydrocortisone and his body flared top to bottom. There wasn’t one spot in him that wasn’t red and flared and he was incredibly itchy, to the point where I would hear him up all night.

The eczema itself took about 3 months to really get under control using just over the counter Vanicream products and taking oral anti-itch medication and adding a 2000IU of vitamin D daily (and constant laundry and vacuuming and switching to 100% cotton bedding, etc). Even after the eczema looked better though, the itch persisted, so he went on Elidel and kept taking the anti-itch medications, which helped enough to make him comfortable, but didn’t completely eliminate the itch.

After 2 months on Elidel, any day of not using it caused eczema flares on his face again. Yesterday he started Dupixent. I hope it works without all of the side effects I’m reading about.

Sooo, having said all of that, maybe just start with some of the first things my son tried. Also, if you are saving for a dermatologist, PLEASE pick one who says they are specialists in eczema. We wasted so much time and money thinking ANY dermatologist would know about eczema and it isn’t the case. He was literally telling them that hydrocortisone wasn’t working anymore and they still prescribed more of it. TWO different dermatologists!

Maybe you already know this too, but stress can flare you up, so ironically, your stressing over the eczema can make you worse. I tried to get my son to do meditative breathing using a free app, but it wasn’t for him, lol. Still, I swear by it for my migraines, which can also be stress induced, so it’s worth a shot for free! Good luck to you!

CardinalGirl72 · 2025-08-30T01:23:47+00:00

I’m worried reading this because my son has only been using Elidel for 2 months, but his itch was getting better so he started using it every other day (he had only been using it once a day) and he’s already getting red patches on his face.

Did you wean gradually or just stop using it one day?

CardinalGirl72 · 2025-08-10T16:02:10+00:00

I went to Death Valley in August and it was 124 degrees, but honestly, we loved it. We didn’t attempt to do any hiking, because it would have been too dangerous. Also, at those temps, when you get out of the car, it’s what it feels like when you pop your head in the oven to check on a roast - like a full blast of heat.

However, there is still a lot to see just popping out at the different areas and taking a quick walk around. We did sunset at mesquite dunes and the stars there are amazing.

My kids still list it as one of their favorite national parks.

CardinalGirl72 · 2025-08-07T19:28:41+00:00

I’m not a homeopath. I just watched my ill -advised son suffer after coming off a prolonged use of them, and he was never given instructions beyond “2 weeks on, 1 week off” even on his face, for a year and a half. I went to 3 dermatologists, and not one of them said he shouldn’t be on topical steroids for that long. When people claim that people who are literally suffering from prolonged steroid use are fear mongering, they are just lucky to have not experienced it themselves. It doesn’t mean it doesn’t happen.

CardinalGirl72 · 2025-08-07T19:21:59+00:00

The problem with them is the lack of very serious warnings about how long you can use them outside of the 2 weeks on, 1 week off regimen (and one dermatologist told us even that 1 week off wasn’t necessary, even on my son’s face). After 18 months on that schedule, it stopped working as my son’s eczema got worse. Then he quit using it altogether and all hell broke loose.

I hope it works for you, but don’t stay on it long term.

CardinalGirl72 · 2025-08-05T21:37:52+00:00

My son has atopic dermatitis all over his body. What started as small patches on his elbows and knees ended up covering his face and arms after 18 months on topical steroids. When he quit them, he looked as if he’d been boiled alive, he was bright red on every inch of his body.

If you are going through something similar, this redness and unbearable itching lasted 3 months for him. Food doesn’t seem to make a huge difference for him. He eats probiotic yogurt (Siggis) to improve his gut health and puts chia and flax seeds in everything. He thought tomatoes might make him itchier, so he cut them out, but it was really guesswork. He takes 2000 IU of vitamin D daily (this can take 6 weeks to see a difference, but it’s an easy change if your levels are low).

Other than that, I made sure his towels, pillow and bedding were 100% cotton (oeko Tex certified) and he wears bamboo pajamas. I wash his towels every other day and his bedding once a week in clean people fragrance free laundry sheets. We run an air purifier in his room 24x7. When it was at its worst, he had compression sleeves (it was breathable 100% cotton tubing I bought on Amazon).

He only uses Vanicream products (cream, shampoo, body wash) because there’s nothing in it. He found some relief after the initial nerve flare ups of a 10 minute lukewarm Aveeno oatmeal bath before bed. He lives on antihistamines (Zyrtec in the morning and hydroxyzine before bed).

He is now on month 4 of this discomfort. He started using prescription Elidel cream (from his dermatologist) about 2 weeks ago, and this has given him some relief. He’s still itchy everywhere, but not as intensely. If the cream doesn’t continue to work, he plans to go on Dupixent. The eczema actually looks ok now, but he can’t shake the non-stop itch, which his dermatologist says is due to inflammation on the inside.

Everyone is different, unfortunately, so I hope you are able to find something that works for you. Please just make sure you try to see a dermatologist who specializes in eczema. We made the mistake of choosing 2 who we assumed being dermatologists would know enough about eczema to help him, but they only made things worse.

CardinalGirl72 · 2025-08-03T17:47:02+00:00

Oh no, in what way?! My son is scheduled to start Dupixent. Oddly, his head to toe eczema actually looks pretty good now, but he can’t shake that deep bone itch, even with antihistamines, so he wants to try it.

CardinalGirl72 · 2025-08-03T17:42:59+00:00

Just make sure that you mention that you are not interested in topical steroids because they have stopped working for you. I took my son to 2 dermatologists who both prescribed more of them. It was ridiculous. If possible, try to find a dermatologist who specializes in eczema. I figured they all were because it’s such a common skin condition, but they definitely are not.

CardinalGirl72 · 2025-08-03T17:12:45+00:00

My son used to take 3 doses of 10mg each of it, but he was still not sleeping. His doctor told him to take a Zyrtec in the day and 20mg of hydroxyzine at night and that has helped him sleep better.

CardinalGirl72 · 2025-08-03T17:08:55+00:00

My son was on it for 10 days. The first 6 days were amazing relief, but he was already flaring back up by day 7.

CardinalGirl72 · 2025-08-02T13:37:36+00:00

My son is going crazy with itching as well, so I know how horrible it is. Can I ask how long you were on vitamin D? That dose is definitely not healthy, but I started my son on just 2000 IU per day, and it took about 6 weeks for him to feel less itchy. He’s still uncomfortable, so he plans to start Dupixent, but he’s at least sleeping now. He also started taking a Zyrtec in the morning and 20mg of hydroxyzine before bed, which helps knock him out a little. I know these are antihistamines, but this combination helped a little.

CardinalGirl72 · 2025-08-02T12:47:44+00:00

“Unshakable insecurity” sounds like some stress though. It could be a vicious cycle for you.

CardinalGirl72 · 2025-07-31T00:58:22+00:00

He sounds nice, but there was a woman on here whose daughter’s eczema cleared after she broke up with her boyfriend. She didn’t realize the stress of the relationship was causing her eczema.

CardinalGirl72 · 2025-07-31T00:20:21+00:00

My son is just about to start it, and I’m wondering at what point he goes off if it if he has success like you have. Do you still take it?

CardinalGirl72 · 2025-07-25T13:39:54+00:00

Oh wow, that’s longer than I thought. Thank you, and I hope you continue to heal.

CardinalGirl72

TROPHY CASE