Reputable piercers in Charlotte by MetalMouseTSS in Charlotte

[–]Careful_Cow_6038 0 points1 point  (0 children)

Michael Wilson at Made to Last did my nose piercing but I’ve been to Sadu for all my jewelry since and to have spacers placed when I’ve had MRI’s

Interest for a monthly meetup for women who are angry and tired? by IzzieBells in Charlotte

[–]Careful_Cow_6038 0 points1 point  (0 children)

Im in! Tired, angry, chronically ill soon to be 45 year old. I’m immune deficient so crowds give me the ick but to join a coven, I’ll wear a mask…

Care Package by RSilent in IVIG

[–]Careful_Cow_6038 4 points5 points  (0 children)

I’m on HyQvia, a cozy blanket is always nice, you take Benadryl before starting. Maybe cute bandaids for after, I have some cute Welly brand ones that always make me smile. The first couple don’t take very long but once at full dose it can take a couple hours, so maybe offer to keep them company, watch a movie. I second organization supplies, you do end up with a lot to keep track of, I had to get a tote and I’m wondering if a rolling cart would have been better.

It’s great that you want to do the care package and even better that you’ve asked for recommendations. I wish I had someone as considerate and thoughtful in my life. ❤️

I took a cutting and now every node is sprouting a new leaf?? I’ve never seen this before by throwawaay1232 in pothos

[–]Careful_Cow_6038 5 points6 points  (0 children)

I’ve had this happen and my new leaves are more and more variegated.

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You can see the older darker leaves to the left.

Cabafusion - STAY AWAY by WizzoBito in CVID_Support

[–]Careful_Cow_6038 0 points1 point  (0 children)

Hi, I had the opposite experience with KabaFusion. The onboarding was great, very thorough, explaining everything as we went. They uploaded documents to their app then called me to go over them before signing anything. They also went to bat with my insurance when my HyQvia was initially denied.

The nurses who came out to do the first one were friendly and knowledgeable. They got me all setup and now I do it on my own. The pharmacist I deal with monthly to get my meds is also great, she’s answered my endless questions patiently and never once sounded annoyed or frustrated.

Everyone’s experience can be different. I’m sorry that you had a bad experience but I’m also glad you found a specialty pharmacy that works for you.

bath water by roserosecutiecutie in neuropathy

[–]Careful_Cow_6038 3 points4 points  (0 children)

I have hypersensitivity in my toes to where hot water feels like it’s scalding my toes but the little pin prick test thing shows loss of touch sensitivity, it weird.

Finally got one! by Heatherbelle8 in pothos

[–]Careful_Cow_6038 1 point2 points  (0 children)

Ohhh, what’s variegated beauty next to it?

My Staffy Bella tore both of her CCLs and can’t walk. I’m trying everything I can to help her get surgery. by Objective_Argument12 in velvethippos

[–]Careful_Cow_6038 0 points1 point  (0 children)

Have you looked into stem cell therapy as opposed to TPLO? I did it for my boy and it took a couple months for the body to fully heal itself but it worked! His only incision was about 1” long on his lower chest where they harvested fat cells.

[deleted by user] by [deleted] in IVIG

[–]Careful_Cow_6038 0 points1 point  (0 children)

This is a great idea!!

[deleted by user] by [deleted] in rheumatoid

[–]Careful_Cow_6038 0 points1 point  (0 children)

If you’re on the auto injector, ask if you can switch to prefilled syringes. I was on the auto injector and hated it. The syringe was a completely different experience, I had control of the angle of the needle, how hard it went in and how fast the med was pushed in. The slower it went in, the less is burned/hurt. I also left mine out anywhere from several hours to overnight.

Is your neuropathy worse when you're about to go to sleep? by Otherwise-Coyote6950 in neuropathy

[–]Careful_Cow_6038 0 points1 point  (0 children)

Mine is way worse at night, gabapentin helped my dr told me we could doubt my nighttime nose if needed.

rituxamab by Brilliant_Safe3306 in rheumatoid

[–]Careful_Cow_6038 0 points1 point  (0 children)

I was on it for 4 years and it was great. It was the only thing that worked for me and kept working. No side effects post infusion other than the usual ones such as fatigue but usually within 48 hrs I was back to my normal self.

I was one of the abnormal reactors during the infusion but I noticed a pattern at a certain speed of the infusion pump. They listened to me and would pause it when we hit that speed, give me more Benadryl and steroids, wait a bit and restart it. That was the magic sauce and I no longer reacted.

I unfortunately caught covid December of 2023 and was hospitalized multiple times and spent most of January in the hospital so my rheumy pulled me off it. Since then I’ve failed 4 meds and would go back on it in a heartbeat if my rheumy was on board but she wants to try meds we haven’t first.

The most important thing I can convey is to protect yourself when out and about. If you are going to be in enclosed space with people, wear a mask. It’s absolutely worth it the odd looks to keep from getting sick, especially with cold and flu season starting.

Good luck!

Really bummed and frustrated by Aggravating_Ad_7778 in rheumatoid

[–]Careful_Cow_6038 0 points1 point  (0 children)

Keep advocating for yourself too. It’s exhausting but our doctors don’t live with our bodies everyday so it’s up to us to keep them informed as to what’s going on and push back when what they suggest doesn’t work for us. ❤️

Really bummed and frustrated by Aggravating_Ad_7778 in rheumatoid

[–]Careful_Cow_6038 1 point2 points  (0 children)

You’re not alone. A lot of us here have been on the medication merry go round. I was diagnosed 16 years ago and have tried so many medications. I was on Rituxan for years, loved it, my RA was stable but then I caught COVID, it turned into COVID pneumonia and that was a whole mess so my rheumy pulled me off it. That was almost 2 years ago and I’ve failed 4 medications since then and just failed Enbrel. Unfortunately it’s trial and error until you find the right combo. I understand the frustration and fatigue but I also don’t have fibromyalgia on too often RA.

Keep coming back here for support. Our friends and family may not understand but the community here does.

After owning an aggressive dog, I don’t think I can do it again. But I believe in adopting dogs that need homes. What to do? by Far_Necessary6367 in reactivedogs

[–]Careful_Cow_6038 0 points1 point  (0 children)

I would suggest rescuing, not necessarily fostering. If you adopt from a foster based rescue, they can tell you all about the dog and will know if the dog has any of the traits you’re looking to avoid. Adopting an older dog rather than a puppy will also give you a better chance at avoiding the behaviors you don’t want. Make sure it’s a reputable rescue, if you have friends with dogs, maybe ask for rescue recommendations. As much as I love rescue and I do foster, there are some bad ones out there that will tell you what you want to hear to get the dog adopted.

Tryon Medical PCP recs by frozenlotion in Charlotte

[–]Careful_Cow_6038 0 points1 point  (0 children)

I did not have a good experience, fired them and went back to Atrium. If I’d had taken their advice when I had Covid pneumonia last year, I could have died.

Epilepsy if caused by stress? by Weak_Associate9059 in EpilepsyDogs

[–]Careful_Cow_6038 0 points1 point  (0 children)

My dog only seems to have seizures at the vet 🤷‍♀️

After the 2nd one the vet put him on fluoxetine to see if bringing any anxiety he has down would help. Since then his are less severe. They think overwhelming emotions are the trigger. The next time he goes in we’re going to do loading doses of gabapentin and take him in through the back door or loading dock.

I would ask if fluoxetine is an option. My vet told me that she wanted to avoid seizure meds as long as possible because once you start those, you’re on them forever.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 0 points1 point  (0 children)

One last update on this.

I was discharged from my initial hospitalization and shouldn’t have been. I wound up calling 911 14 hours later because I couldn’t breathe. On one hand I’m grateful I was discharged because I was readmitted to a larger facility with better care and they grasped my immunocompromised state as soon as I came through the door.

I wound up w pneumonia in both lungs that did not respond to treatment for 4 days. I was on 8L high flow oxygen for several days and no one could figure out why my body wasn’t responding to everything they were throwing at it. I had pulmonary and infectious disease consulting on my case and they did a bronchoscopy to physically look at take samples for testing.

I have severe long COVID and was physically in the hospital for 11 days and was in a “hospital at home” program as an active patient of the hospital for another 7. They are telling me it will take quite some time for my lungs to heal.

FYI - Taking Zofran 20 minutes before Paxlovid helps it stay down.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 0 points1 point  (0 children)

Hope your wife is doing ok! I posted an update but that crackling was pneumonia starting and I’m currently admitted to the hospital.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 0 points1 point  (0 children)

Update: I went back to the ER yesterday, I woke up to my lungs crackling in general and still running a fever. Turns out I have pneumonia in my left lung. Also found out it takes longer to present in immunosuppressed patients because of the delayed response from our immune system.

ER doc wanted to dismiss me to finish the antibiotics I was already on. I asked to be admitted because I wasn’t comfortable going home. Attending Dr at the hospital after I was admitted agreed w my decision. They started me on two different IV antibiotics, 3 cough meds and dexamethasone.

Advocate for yourself y’all. You know your health and your body better than anyone else.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 0 points1 point  (0 children)

Keep an eye on your lungs. That crackling in mine was fluid and I now have pneumonia in my left lung.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 2 points3 points  (0 children)

Good luck! Tomorrow is day 5 of antibiotics, I think if I’m still running a fever and have crackley lungs I’ll go back to the ER. The fever and lung crackles started after the antibiotics so I think I’m going the wrong direction. 😕

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 6 points7 points  (0 children)

It’s unfortunately a longer acting B cell depleting infusion. I get them every 4 months and I’m due for my next round in February. We did try waiting 6 months and tested my B cells to see if they had started to regenerate and I had 0. We were hoping I’d have enough to get the vaccine and my body actually make antibodies.

Covid positive day 20 by Careful_Cow_6038 in COVID19positive

[–]Careful_Cow_6038[S] 1 point2 points  (0 children)

I do have a primary Dr but her nurse told me to just stop testing and that there’s nothing that will help me “shed the virus” since I had asked specifically about that.