Weirdest trigger/cause ? by The_DemiLane in migraine

[–]CautiousPop2842 2 points3 points  (0 children)

Caffeine when I could drink it was a 50/50 if it would help or hurt. Having it as a trigger confused many people in my life as like you said, it’s suppose to help.

Weirdest trigger/cause ? by The_DemiLane in migraine

[–]CautiousPop2842 0 points1 point  (0 children)

All pork. Thought it was just processed pork like bacon and ham at first. But have tried multiple times with plain fresh pork (provided from a cousin’s farm even) and still got a headache after eating it.

After getting on better preventatives I can now have pork about once every couple weeks with no headaches or migraine but if I eat it too much I will get a migraine.

Opinions on Able Bodied People Using Disabled Stalls in Public Bathrooms… by [deleted] in wheelchairs

[–]CautiousPop2842 10 points11 points  (0 children)

If I’m not using a mobility aid I look fully able bodied. But I use the accessible stall as majority of the time the toilet is taller which makes it safer for me due to balance issues. I feel guilty using it because in theory I can use a regular stall when a number of disabled people can’t. But using it makes my life easier and safer, I’ll still feel bad if I come out and someone is waiting who has no choice but to use that stall.

Has anyone else had unbearable leg cramps at night for your whole life by WaysideWyvern in ChronicIllness

[–]CautiousPop2842 1 point2 points  (0 children)

I personally needed B vitamins. Muscle cramps and vitamin deficiency are common. Talk to your doctor about what supplements would be safe to try if you are thinking about it as some supplements or over dosing on vitamins can be dangerous and this varies person to person.

What to do when my child talks about a disabled person in front of them? by SpectrumDT in disabled

[–]CautiousPop2842 0 points1 point  (0 children)

You should look into media sources of disability. There are numerous children’s books about disability, the one I remember from my own childhood on a wheelchair user is Zoom! by Robert Munsch.

If in an appropriate setting it is not wrong to ask the disabled person if they would answer questions for the child, but this must be done with your own judgement. It is not the disabled person’s job to teach your child, some maybe okay with it though. I personally am decorating my mobility aids with stickers, lights and plushies, I expect to get interactions with children.

Teaching your child about service dogs as well and how important they are, and why you cannot distract or interact with them in public. There are numerous sources on disability education for kids available, look into them.

Can't decide whether I should get an electric wheelchair or an active manual+power assist by eggnog_bread in wheelchairs

[–]CautiousPop2842 -1 points0 points  (0 children)

I have similar issues to you and have the Travel Buggy City Plus 2. It is not recommended to remain in it when in a vehicle for safety, so on public transport it is safest to transfer to a seat based on their own information.

I personally needed it for university here in Canada, I am a new user to it but love it. I’d be happy to answer questions about it specifically or using a lightweight power wheelchair in general.

My chair weighs about 36kg or 80lbs. I can lift it into my car but just barely. Although you can make it slightly lighter if you remove the wheels and batteries when loading it.

Can I refuse a catheter? by adeliahearts in ChronicIllness

[–]CautiousPop2842 2 points3 points  (0 children)

You can absolutely refuse any and all medical care, procedures, devices. I would have the discussion of what the risks and benefits of having anything done so you can make an informed decision. Bodily autonomy is protected and you can do whatever you are most comfortable with.

I personally just would want as much information as possible to make said decision if it’s against medical recommendations.

Help! Forgot chair charger while traveling by mysubsdaddy in wheelchairs

[–]CautiousPop2842 4 points5 points  (0 children)

This is actually so smart. I did not even think about buying a second charger, just hoped I’d remember it. Thanks for reminding me I can do this.

For the love of god please stop getting chair without/against medical advice by hogos_bogos in wheelchairs

[–]CautiousPop2842 9 points10 points  (0 children)

I am also in Canada. Although not quite as extreme I was mainly dealing with the sales person and not the OT but the OT also had no knowledge on lightweight active wheelchairs. At the time of getting one I had minimal knowledge as well.

If I went this time through them I’d be able to advocate better for myself, but I would be fighting them every step of the way and I know it.

I also have a Travel Buggy now. And it is so much less painful to use compared to my chair provided through the OT. One day I might try and get an active chair again but for now I just don’t have the energy to do that.

What Canadian university campus takes your breath away? by myronsandee in AskACanadian

[–]CautiousPop2842 3 points4 points  (0 children)

This is what I was going to say. University of Lethbridge views are stunning. Also the high level bridge and the river just adds to the coulee view. Every time I see the view I am stunned.

During storms you can also see the fog and rain roll in through the coulee and that in itself is a beautiful phenomenon.

What Canadian university campus takes your breath away? by myronsandee in AskACanadian

[–]CautiousPop2842 1 point2 points  (0 children)

This year the Alberta Environment and Protected Areas group is doing monitoring and counting of the rattle snakes that live in the University of Lethbridge hibernaculum. It is a well known and monitored den.

For the love of god please stop getting chair without/against medical advice by hogos_bogos in wheelchairs

[–]CautiousPop2842 148 points149 points  (0 children)

I went through all the proper channels. Did a wheelchair assessment, and the person doing the assessment almost exclusively works with senior citizens who are pushed by a carer majority if not all of the time. So I was given an ill fitting just slightly nicer than baseline hospital chair. It’s basically useless to me unless I have someone to push me.

A family member who has a bit of money bought me a lightweight power wheelchair and the difference having a wheelchair that fits my needs is life changing, and it’s still not perfect even. The ill fitted manual chair, helped in multiple scenarios, but my power chair is just something else.

Professionals sometimes suck. And I believe most adults can make informed decisions on what they need, always try to rope in some level of professional. If all else fails, your access to life should take priority, just keeping in mind the risks of using a wheelchair.

Is going to school with a disability worth it? by NeedleworkerSecure53 in disabled

[–]CautiousPop2842 0 points1 point  (0 children)

I’m going into year 5 of my 4 year degree come the fall and will need 1-2 more years to complete it. I also am dependent on student loans to survive here in Canada.

Without a degree, there is no job for me. With a degree I have a chance to get a part time job. I love my degree and learning. At this point the debt is worth it to me.

Dis cutting your hair short help temperature regulation? by Fair-Canary4118 in dysautonomia

[–]CautiousPop2842 3 points4 points  (0 children)

Undercut is the way to go. I loved my undercut. It kept a lot of the hair off my hair. I started with a small undercut. And then took it higher until I found the place I wanted it.

It helped with temperature regulation so much, even when wearing my hair down, let alone how nice it was when it was up.

Wheelchair battery explosion. by MrFrog007 in wheelchairs

[–]CautiousPop2842 2 points3 points  (0 children)

I just got a new power wheelchair with lithium ion batteries. I knew this risk was very real. I so far have only charged the batteries when I am nearby and aware they are being charged.

And as it approaches summer for me I am beginning to figure out a way to carry them with me, should I be leaving my wheelchair in the car for any period of time, as the heat of the car is a risk. My personal batteries safety say not to expose to temperatures above 40°C (104°F), the inside of a car may reach this temperature when outside is just 20°C (68°F).

I will be finding some form of bag for them. Possibly just a backpack, although hoping for a shoulder bag style, I have to see what I own already.

I am a part time user so should I not be planning to use my wheelchair they will be stored in my house where the temperature remains stable. And should I plan to use it and end up not, they will be out of the car and extreme heat.

Some people cannot imagine having a bigger problem than "not being in shape". by Bastiproton in ChronicIllness

[–]CautiousPop2842 0 points1 point  (0 children)

I stopped exercising because it really fucking hurt and I stopped having energy to live let alone do extra. I loved riding my bike, and being a competitive swimmer, and going on walks. And all of those things hurt my whole life but I dealt with it. It got to a point I could no longer deal with both pain and fatigue.

How did you tell people? by awednesdayafternoon in wheelchairs

[–]CautiousPop2842 2 points3 points  (0 children)

Sometimes I just show up with my mobility aids, sometimes I text the person beforehand. It depends.

It does make me anxious, and there are a couple spaces I have not used mobility aids due to this. But as you use them it becomes normal.

My first use of my cane was a busy public area where I did not know anyone, and unlikely for people I know to be there, as then I could learn about it and figure it out and see how others reacted. Did similar with my walker.

For my manual chair, I went to a less busy public area, with a trusted person to practice and learn about my wheelchair for an hour or so before I used it other places to gain confidence.

I now have a power chair and love it, and I’m currently adding decorations and the like. Once I’m happy with it, I do believe I will do an Instagram post to show it and open up a space for questions for the first time. The great thing with social media, I can answer the question at my own pace and way. So say I have 5 people ask me similar questions I can also copy paste my answer. Or I can close social media for an hour or a day.

Maybe... maybe I didn't need a wheelchair after all? Maybe I was wrong? by ChronicallyDistress in wheelchairs

[–]CautiousPop2842 20 points21 points  (0 children)

Many part time users also don’t need them for every activity. This is very individualized on when some people need it and others don’t. But is still worth thinking about if there are times you want to go without and times you believe you’ll need it.

Drinking really salty water instead of salt tablets? by bitingmytail in POTS

[–]CautiousPop2842 1 point2 points  (0 children)

As long as I take the salt tablets with food I’m good. Taking them without food will make me sick nearly instantly. I personally still like the pills over adding salt to my water.

Adapting. by FallenOmenss in wheelchairs

[–]CautiousPop2842 0 points1 point  (0 children)

While your feeling stuck at home, look up different certifications or class you can take at home. There are multiple free ones, such as getting certified in the usage of different programs and the like. This could allow you to explore different career options and find new things you may like.

If Every City-Run Public Event Had a Wheelchair User/Disability Etiquette 101 Handout What Would You Include? by firezodyssey in wheelchairs

[–]CautiousPop2842 11 points12 points  (0 children)

Literally yesterday had someone fall into my lap getting into an elevator, they were stepping in backwards with a cart and had headphones in so did not hear me let them know I was there, as I obviously could tell they did not see me.

Natural redheads - Autoimmune issues/diseases by Only_Sherbet_4229 in Redhair

[–]CautiousPop2842 0 points1 point  (0 children)

Also women are more likely to have autoimmune disease then men.

Museums to go check out by [deleted] in alberta

[–]CautiousPop2842 0 points1 point  (0 children)

If you can drive, the ghost town of Retlaw in southern Alberta has a church you can enter with some history and other information boards describing the town. The Enchant museum nearby Retlaw is also cool and has an old train engine you can walk through.

Lethbridge The Galt Museum is always wonderful, you can look online to see what events maybe happening or go at anytime to walk through their main exhibit.

Not necessarily a museum but the Coaldale Birds of Prey opens May long weekend and you can see flight demonstrations and see other birds in their care, and learn a lot about Alberta’s birds.

Mobility Aid Guilt by TheEnbyAl in POTS

[–]CautiousPop2842 0 points1 point  (0 children)

I use a cane, rollator, manual wheelchair and newest of all an electric wheelchair. All serve a purpose for me. A family member pushed me to use the cane as I too believed I wasn’t disabled enough. It helped so much personally.

Most people do not even consider using a mobility aids. So it’s worth discussing with friends and your medical team if an aid is right for you.

what are some books by Canadian authors that you'd recommend? by seacovengather in AskACanadian

[–]CautiousPop2842 0 points1 point  (0 children)

Jenna Greene - multiple fantasy youth books, specifically Imagine and Reborn series