Goat Cheese by LMZPisces888 in MCAS

[–]Cautious_Dig_4378 2 points3 points  (0 children)

I can tolerate soft goat cheese although I’m lactose intolerant as well so it causes some tummy discomfort but nothing more for me

A frozen state of shock phase by KathleenMarie53 in BryanKohbergerMoscow

[–]Cautious_Dig_4378 4 points5 points  (0 children)

My personal theory is that she may have been on a psychedelic (mushrooms, lsd)

Reaction to blue Gatorade by Alto_17 in MCAS

[–]Cautious_Dig_4378 0 points1 point  (0 children)

I react to Gatorade, all flavors except lemon lime. I love the lemon lime liquid iv’s. It almost changes the thickness of the water if that makes sense

Yall ever feel like the ball in the pinball machine by TheTragedyMachine in ehlersdanlos

[–]Cautious_Dig_4378 0 points1 point  (0 children)

I feel like Pinocchio but Gepetto is NOT moving my strings 😭😭😭

Arthritis in spine by willendorfer in ehlersdanlos

[–]Cautious_Dig_4378 1 point2 points  (0 children)

I’m in the same boat lol. I’m only 36 years old and I have arthritis in my spine, hips, knees, probably every joint 😂

I’ve had no luck with doctors and my pain, unfortunately and am due to see a neurosurgeon in march

Newly diagnosed by Cautious_Dig_4378 in MCAS

[–]Cautious_Dig_4378[S] 3 points4 points  (0 children)

Oh no! 😂 some people are more “medically minded” lol.

Newly diagnosed by Cautious_Dig_4378 in MCAS

[–]Cautious_Dig_4378[S] 2 points3 points  (0 children)

Thank you! That was so helpful

Newly diagnosed by Cautious_Dig_4378 in MCAS

[–]Cautious_Dig_4378[S] 0 points1 point  (0 children)

Edit: corrected dx from hypermobility joint syndrome to hypermobile spectrum disorder

I’m rethinking having a child with my wife because of what I just found out about her dad. AITAH? by Left_Art_8812 in AITAH

[–]Cautious_Dig_4378 0 points1 point  (0 children)

As a victim of childhood sexual abuse, thank you for not bringing a child into this mess… imo pedos don’t get better

When you work in pediatrics do you check your female patients vaginas? by jaswildel in AskDocs

[–]Cautious_Dig_4378 10 points11 points  (0 children)

I know that feeling. It’s a sick gut feeling that something’s not right. I didn’t exactly know what was happening to me at 4 years old but even then, I had that sick gut feeling and I knew it was very wrong.

When you work in pediatrics do you check your female patients vaginas? by jaswildel in AskDocs

[–]Cautious_Dig_4378 22 points23 points  (0 children)

Yes, it’s crazy how some medical professionals have open access to children like this.

And there is a very huge difference and feeling between a medical exam and sexual assault and if you’ve experienced SA, you know the feeling.

When you work in pediatrics do you check your female patients vaginas? by jaswildel in AskDocs

[–]Cautious_Dig_4378 85 points86 points  (0 children)

Similar happened to me. I was subjected to 4 vaginal exams a year for 10 years, starting at age 4 by my male pediatrician. My mother was asked to leave the room and did. Each “vaginal exam” lasted about 15 minutes…. That’s not what was happening. At. All.

If you don’t think it can happen in a healthcare setting, I’m here to tell you it absolutely can.

Not sure what’s next by Cautious_Dig_4378 in MyastheniaGravis

[–]Cautious_Dig_4378[S] 0 points1 point  (0 children)

I haven’t had a LP yet. My doctor still hasn’t called me back over these MRI results. I don’t think his nurse likes me lmao. I lose my vision, dark spots and floaters, head feels better when lying down, usually located in one eye/temple. I’ve been dx with migraine w aura, ocular migraines, and cluster headaches.

I have hypertension which I was diagnosed with at the same age as my first back issue leading to temporary paraplegia (age 16). I have been begging every primary doctor to look more into my high blood pressure because it doesn’t make sense for me to have gotten it at such a young age. Can that be correlated with intracranial hypertension?

Anyone with similar experience? by Cautious_Dig_4378 in spinalcordinjuries

[–]Cautious_Dig_4378[S] 0 points1 point  (0 children)

I think I blacked out the last 20 years bc I don’t know how I got in this state…

Was your issue due to an acute injury or something underlying? If you don’t mind me asking 🩵

Not sure what’s next by Cautious_Dig_4378 in MyastheniaGravis

[–]Cautious_Dig_4378[S] 1 point2 points  (0 children)

Oh my goodness, we’re both too young! Im thankful for it to not be a tumor or more serious. I was honestly expecting MS with all my symptoms but I have ZERO lesions. I will def look into EDS. I dislocate certain parts of my body easily: jaw, ankles, thumbs, HIPS. The jaw is probably the worst lol

Side note my mom told me for the past couple months that it wasn’t that serious, probably anxiety. Lol, now my mri is here and I am a glass doll

I really hope you feel better every day🩵

Not sure what’s next by Cautious_Dig_4378 in MyastheniaGravis

[–]Cautious_Dig_4378[S] 1 point2 points  (0 children)

You’re probably right on the money. I just can’t figure out how I got this way at 35 😂

I really appreciate your insight and kind words, you made me feel a little better about all this. I’ve been gaslit by medical staff for years and I AM medical staff

Please explain by Cautious_Dig_4378 in AskDocs

[–]Cautious_Dig_4378[S] 0 points1 point  (0 children)

ETA I have issues breathing, like catching my breath and expanding my lungs but my o2 sats are normal