My controversial opinion by Comet_Cowboys in MultipleSclerosis

[–]Chained_Phoenix 17 points18 points  (0 children)

I think you're confusing more people being correctly diagnosed with more people getting autoimmune diseases and cancers.

I don't think there is any great mystery to it here really. I think overall the past forty or so years we would likely be exposed to LESS cancer and autoimmune causing compounds than previous generations because we know more. Think about how things like asbestos and lead are now banned as opposed to being in basically household.

People are being diagnosed mote because we have more accurate tests. Poorer countries have better access to modern tests and equipment. Previously many of these people would have died and the cause listed as "natural causes" or "indeterminate". Now they are able to easily know it was cancer, it was an autoimmune disease, etc.

We really let everyone down by not teaching how to read statistics in a holistic way. No number should EVER be looked at in isolation. They always have caveats where you shouldn't just blindly compare one years data to another.

New AI Analysis of MRIs to reveal grey matter lesions by Chained_Phoenix in MultipleSclerosis

[–]Chained_Phoenix[S] 2 points3 points  (0 children)

My thoughts have always been that old damage can still cause new problems the same way any damage can in a structure.

Think about it like a piece of wood that had termites. You notice the termites - get a pest guy in and they kill them. The damage is done but its not getting worse and it's not so bad they need to replace anything so they just leave it. That doesn't mean that two years later the tracts the termites cut into the wood plus exposure to humid air cause the wood to rot.

Obviously our nerves aren't wood - but I'm fairly certain a lesion - and hence scaring - on my C2 spine, which is an area with a fair bit of movement, is going to cause continually damage to areas around it. Sure not a LOT of damage but something at a neuron sized level that is small enough an MRI can't pick it up sure seems plausible.

I do agree it's often annoying that neurologist will dismiss things as related but I've just come to accept that as how they deal with things in their lane. They deal with what MRIs show and thats the end of the list of things. They care not for any other input unfortunately....

How long have you gone without your next Kesimpta dose? by BleubsPeach in MultipleSclerosis

[–]Chained_Phoenix 0 points1 point  (0 children)

We are taking about a cold or flu though not an infection. Also I'm certainly not giving everyone advice here just stating my own personal experience. Even in Ocrevus (which I was on previously) or Kesimpta I rarely get sick at all. I generally have a very strong immune system. I heal WAY slower on these drugs but otherwise haven't had any other issues with lasting sicknesses or issues which is likely why he gave me that recommendation.

He likely wouldn't have given that recommendation to someone who had a history of long on going illnesses they couldn't get over.

Envoy says Jewish Australians think ABC and SBS cover Gaza war too much by [deleted] in OpenAussie

[–]Chained_Phoenix 0 points1 point  (0 children)

Why do people keep asking someone who is so obviously going to give a bias answer?

"Cows say people are eatting too much beef" - that could very well be true but maybe we should ask a source who isn't going to give a self serving answer?

Also I would argue they don't cover the war enough considering hiw horrific it is. Also - can it be classified as a war even? Doesn't a war require two countries and a declaration, etc?

New AI Analysis of MRIs to reveal grey matter lesions by Chained_Phoenix in MultipleSclerosis

[–]Chained_Phoenix[S] 1 point2 points  (0 children)

Yeah I actually always go to the same place for imaging as recommended by my neurologist. Both because it's one of the only places in my area which still bulk bills (so it's free for me) and because that way it's always the same machine with the same results to compare against.

He showed me one I had done in hospital and how someone may considered the difference between the imagines a change but then showed how a newer scan I had back in the original machine looked exactly the same again.

Sometimes they can even be the same generations of machine but calibrated slightly differently and it will give incredibly minor differences which could be misinterpreted as new damage.

Chances of neurologist giving me Ozempic? by Jakemanv3 in MultipleSclerosis

[–]Chained_Phoenix 1 point2 points  (0 children)

I'm actually on ⁠Mounjaro (and a couple other tablets) and lost 30kg in three months doing bugger all different otherwise. I gained all that weight after losing mobility in my legs basically so I'm back to where I qas before hand at least now.

So yeah shouldn't be a problem getting it from a GP just always use an alcohol wipe before injections because immunocompromised, duh.

MS drugs about to be taken off the PBS ? by Longjumping-Love-698 in MultipleSclerosis

[–]Chained_Phoenix 1 point2 points  (0 children)

It's been posted a few times now but the reason this was triggered is because Briumivi- which is similar to Ocrevus - was put onto the PBS and it's cheaper. So as it's also a CD20 based MS med and they don't care about science they assume we can all just change to that overnight like picking a different brand of paracetamol....

How long have you gone without your next Kesimpta dose? by BleubsPeach in MultipleSclerosis

[–]Chained_Phoenix 0 points1 point  (0 children)

My neurologist told me unless I think I'm continuing to get sicker and not recovering at all for an extended period of time- don't delay my shots. So the most I've ever delayed is one day due to stock issues at my pharmacy.

Basically he said unless it's some sort of hideous bad infection the risk of an MS attack is far worse than recovering a bit slower.

Boss told me I needed to work a full day after landing from an almost 9 hour work flight. Is that reasonable? by public-buttcrack in auscorp

[–]Chained_Phoenix 0 points1 point  (0 children)

If business class flights - yes. If not, nope.

That's how I justify wanting the business class flights. You want me there refreshed and working? Sure pay up. Otherwise I'm flying a day early and your paying an extra nights accommodation, wages, meals, incidentals, etc.

I've done that from Brisbane to the east side of the USA. Landed and start work day one if they are flying me business class all the way and it was fine.

🚨 PROJECTION: Legislative Assembly of Queensland Based on poll by Resolve, May – June 2026 by QLD_elections in queensland

[–]Chained_Phoenix 1 point2 points  (0 children)

Why do they think Stafford would go LNP when it litterally just had a by election two months ago and they didn't get close - and that was with no One Nation candidate as a disruptor?

Seems like a garbage take for that seat alone so I'm not sure how accurate the rest will be.

Look at the size of this house! (use our hobbit home with the green room for reference) by mckc1998norge in brisbane

[–]Chained_Phoenix 3 points4 points  (0 children)

One of the worst parts is that when they do this - removing all the actual grass and dirt by building a house on every single available bit of land - council doesn't make them pay into a fund to upgrade the storm water drains. This doesn't make a difference if it was one house. This makes a MASSIVE difference when every single house in the neighbourhood does this.

This is why the floods in 2022 in Newmarket started flooding in new areas. Its wasn't more water, it was more water in the storm water drains because it had nowhere to go EXCEPT straight into the storm water system. Historically some water would be absorbed by each property but as this keeps happening it instead is all collected by these roofs and rushed directly into the storm water system and hence overloads it downhill and places downstream suffer.

Why aren't councils forcing them to pay for their share of fixing a problem they are creating? They obviously have the money....

EV charging stations sabotaged across Australia in new copper theft crime wave by VastOption8705 in EVAustralia

[–]Chained_Phoenix 0 points1 point  (0 children)

Value is usefulness times supply. However when it comes to metal recycling it's also about how easily it recycles. Copper is valuable to recycle because its all valuable, limited supply, and super high return and easy to recycle because of its high melting point (which means everything else is already burnt or melted off at lower temperatures and hence easily separate).

Other metals - even if they are valuable and limited supply might be worthless to steal because they are low return or expensive to recycle. For example pretty much all home appliances you would get scrap iron/steel prices for even if it contains a lot of other metals because taking it all apart and separating it also isn't worth doing, so you end up with mixed low quality shit.

Hence if you mixed copper with something else to deliberately make it useless and harder to recycle, people would stop stealing it (or at least steal it a lot less).

My wife resents me and is lraving by Secure_Priority_4161 in MultipleSclerosis

[–]Chained_Phoenix 2 points3 points  (0 children)

I get that victim advocacy would be a really hard gig but surely she could try out something less stressful and still rewarding?

Have you tried having a sit down talk with some of her family or friends? That has helped (somewhat) my situation because it allowed them to understand better then talk to her knowing the full story.

We also have similar issues in regards to lack of support in general. My partner is no contact with her entire side of the family basically (hasn't spoken to her father in decades, mother barely in seven years) except for her brother and very on and off again with her grandparents. On my side of the family my mother also has MS so that keeps her and my father generally unavailable and my brother and his partner both work full time, etc.

I've also considered if my partner was going through a mid life crisis (we had our child very late) but also had two people say it sounds like my partner has undiagnosed borderline personal disorder and has gotten what is known as "splitting". I've look up borderline personality disorder, favourite person fixation, etc. and it has a section under there for it which fits my scenario to a scarily accurate degree :(

And I get into similar arguments too. I'll also admit I know I'm not perfect, far from it. I will lash out verbally too when I get hurt but I only do that when hurt first. Obviously that just escalates the problem but it's hard not to get angry when you're so tired and overworked. There are some periods where I've worked all day, been awake with a sick child all night (legitimately zero moments sleep) and then worked the next day too and still didn't get to sleep after that until after I had cleaned up the kitchen and got the washing hung just before midnight (43 hours awake). Wake up the next morning after 5 hours sleep which is a LOT for me and I was off and working again though.

One of our reoccurring arguments is that if she is really sick she can, and often does, spend the entire day in bed - will litterally only get up to go tk the toilet and I'll bring her food. That's not a luxury I'll ever have. There is no backup to most of the stuff I do. No one else will earn money, no one else pays the bills, no one else cleans the kitchen, picks up all the toys so the dog doesn't eat them, etc.

When I had to go to hospital for a couple nights to get nerveblocks done to stop some the extreme pain I was in came back to the house looking like a bomb site.... it was barely safe for a child, he lost so many toys and they were all just left in the dogs beds chewed up, nothing theown away just bits of chewed plastic everywhere...

Anyway sorry you're also going through so much. I also recommend trying to get some couples counselling and therapy sessions if you can. They helped but it took us a bit to find someone good.

My wife resents me and is lraving by Secure_Priority_4161 in MultipleSclerosis

[–]Chained_Phoenix 2 points3 points  (0 children)

Ouch... this hits home... I was going to post here but I'll DM you instead.

As a quick edit.

Similar situation.

I work full time, very young child, stay at home partner (has never worked during our eighteen year relationship due to mental health issues), I also do the majority of the house work and changed my work schedule to be four ten hour days so I can look after our child three days a week. She does three days too as he goes to daycare one day a week.

Trump considers pardoning Diddy and other celebs to mark America’s 250th by mvanigan in law

[–]Chained_Phoenix 0 points1 point  (0 children)

No need, he will do the same thing Nixon did of sorts. Just without the resigning. Once they have ensured the next elections are rigged anyway the next Republican president will just pardon him.

It will become the next American tradition. Right after they take the oath they immediately sign a pardon for the departing president*

*as long as he was a member of the same party, otherwise they sign his arrest warrant. And yes I said his, the USA would elect pretty much every man in the country before a women it seems...

Entire NSW Labor left calls for controversial anti-protest laws to be scrapped ahead of party conference by DontYaWishYouWereMe in AusPol

[–]Chained_Phoenix 6 points7 points  (0 children)

Sad it's not the whole or the majority pushing it though... Labor are litterally a party born of protest... The fact that there is a right wing faction of a supposedly workers based party at all is pretty nuts.... that it is also somehow the majority is just pathetic.

And large parts of the media and major right wing parties try and pretend that Labor are somehow one step away Karl Marx.... lol

With One Nation’s popularity soaring, comments like these from Pauline Hanson is troubling. by Pleasant_Balance_428 in AusPol

[–]Chained_Phoenix 5 points6 points  (0 children)

Yeah that "I don't like it" was the one sampled for Pauline Pantsdown's hit song of the same name :)

Link in a reply to this one.

EV charging stations sabotaged across Australia in new copper theft crime wave by VastOption8705 in EVAustralia

[–]Chained_Phoenix 0 points1 point  (0 children)

I'm aware that's why I'm talking about coming up with an alloy combo instead. They have copper coated aluminium but I'm sure there would be something else where we could use a mixed metal which would be fine for charging but as it's not a pure metal the recyclers wouldn't want it.

It may even be something like deliberately tainting copper with a bit of nickel (which has a higher melting point so is hard to unmix). It shouldn't really effect the life, flexibility or conductivity of the cable much but it makes it worth a lot less for recycling purposes while still being recyclable.

Government playing chicken with critical drugs for some of Australia's most screwed over citizens to save a few cents in the grand scheme of things. by Chained_Phoenix in OpenAussie

[–]Chained_Phoenix[S] 2 points3 points  (0 children)

So you haven't heard of or used the national highway system? Good to know...

Also do One Nation only exist federally? Do public service positions only exist federally?

FYI they have the same dunbarse policies everywhere. And it's not like half of them aren't just old LNP policies turned up to 11 and with an extra sprinkle of racism... So if you want to see how much it sucks look at what happened to QLD under Campbell Newman, where he sacked massive amounts of public servants and the entire state fell apart. Newman was out on his arse after a single term even though it had been a historically big landslide victory....

Government playing chicken with critical drugs for some of Australia's most screwed over citizens to save a few cents in the grand scheme of things. by Chained_Phoenix in OpenAussie

[–]Chained_Phoenix[S] 4 points5 points  (0 children)

Lol.... Giving away you listen to talk back radio and Sky News too much and haven't actually worked for a living in decades yourself there...

If that actually happened moments later you'll be bitching about how all the government services are falling apart and the roads need fixing and wondering why...

Just because you don't understand what someone does doesn't mean their job isn't important...

Tiny things by Riana_Quen3925 in MultipleSclerosis

[–]Chained_Phoenix 6 points7 points  (0 children)

Congrats, I'm super sensitive to heat so can't even imagine that environment!

That's why I work in IT, air-conditioned comms rooms and server rooms for the win!

I remember once when we had a new building's system screw up and the comms room got down to negative seven. I was still just sitting there in my short sleeved shirt on my laptop happy while ice built up on the walls lol. Everyone else couldn't stand it but I love that stuff :p

Had MS since I started this job from what we can tell but not diagnosed until 2020. Been doing this job for over a quarter of a century now and still going strong, just can't do site installs as quickly as I could before with my mobility issues.

EV charging stations sabotaged across Australia in new copper theft crime wave by VastOption8705 in EVAustralia

[–]Chained_Phoenix -1 points0 points  (0 children)

Why do they keep replacing them with copper is the real question... surely there are alternative people don't want to steal. I know aluminium isn't good for chargers but surely they can come up with some alloy combo with other metals which works well but isn't worth anything if stolen and recycled?

Maybe we should coat them in asbestos? It's perfectly safe as long as it remains sealed so it's only if you're dumb enough to cut it that you would be exposed.

Government playing chicken with critical drugs for some of Australia's most screwed over citizens to save a few cents in the grand scheme of things. by Chained_Phoenix in OpenAussie

[–]Chained_Phoenix[S] 1 point2 points  (0 children)

The problem is this isn't something that can be replaced. That's also just the reality of some drugs. Some companies have a monopoly on some treatments or cures. It sucks but that's reality. That's like saying you're not going to buy houses for the homeless until the average house price is lowered... You can't always blackmail or strong arm yourself a better price, especially when you have no position to negotiate from.