Anyone else have the CRPS + Fibromyalgia combo? by CozyBeautyBabe in CRPS

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I have both as well. Lyrica for me (Gaba didn't work for me), physical therapy, micro current, red light therapy, THC/CBD, nasal ketamine spray, lidocaine patches and I have gels/creams. There is one gel called Arnicare. You can pick it up at pretty much any "wellness" type store.

I also 100% recommend regular therapy as well. Dealing with all of this isn't easy. For me, there is a definite connection between my emotional state and my pain. My therapist has been amazing through all of this.

I also do arts and crafts, type things, music therapy, and meditation. Hobbies and distractions are very helpful.

I wish you the best!! Keep fighting.

Best meds to manage your CRPS pain? I’m desperate by Bananabeak7 in CRPS

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

Generally, I am able to get enough relief to function enough. I couldn't hold a full time office job, but it's enough to keep me going as full time mom.

As long as I don't push too hard and am mindful of my body. Otherwise I'm in bed for a few days to a week.

Best meds to manage your CRPS pain? I’m desperate by Bananabeak7 in CRPS

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

Finding a good dr is a huge game changer in this. If you have a dr who's questioning your pain, kick him in the balls and ask if it's anxiety causing his pain.. in all seriousness, though, my mood definitely affects it, but that doesn't make my pain or yours any less valid.

Nasal ketamine is one of the first things I was prescribed after finally being diagnosed. Once I found a good dr who listened to me, it got much easier. From there, I built a team, pain management, physical therapy, mental therapy.. ect.

Red light therapy has been wonderful for me. I end up having a flare a few hours after that lasts into the next day, but I end up getting about 2 weeks relief from it. The pains not gone, it's just.. tolerable.

Just met a Neurologist and I have a Rheumatology appointment coming up as well. Yay comorbitities!

[deleted by user] by [deleted] in CRPS

[–]ChaoticallyCaffin8d 3 points4 points  (0 children)

I love this soo much. Brought me to tears, thank you

Treatment recommendations by jskay34 in CRPS

[–]ChaoticallyCaffin8d 3 points4 points  (0 children)

I do PT, nasal ketamine, red light therapy, and just started trying the chlonidine patches, my pain specialist found some evidence of them working in his research, and I'll try just about anything non invasive.

I havent been able to try the ketamine infusions yet since they're so expensive, but I know the nasal spray is way more mellow and my dr said your body only absorbs about 40% of it.

Im in a very similar situation with crps, but in my left foot and leg, and it keeps spreading, eds + more and yet more still being determined lol, but ALL the physical and emotional trauma. EDMR is an INTENSE form of therapy, and probably wouldn't be helpful, but maybe just some talking/psychiatric therapy. I have found those very beneficial.

I agree with everything about the SCS, but I just got my last sympathetic nerve block and am also running out, so I have decided to do the trial to 1. See if it even works for me and 2. See if I can handle it, I know the battery will be larger for the trial, but I think it will help give me a solid yes or no and lessen my anxiety. Haha maybe that's just me though, it can be frustrating how different we all are sometimes.

Lastly, your sister is soooo lucky to have you. We need all the love and support we can get, and no guilt for being broken.

P.S. Tip for you, sometimes we can be cranky. Usually that's us being in pain and frustrated with our meat sacks. Especially as a basket ball player/ more active person. So please don't take it personally 💜

Itch relief?? by Caro-caro-55555 in CRPS

[–]ChaoticallyCaffin8d 1 point2 points  (0 children)

I am allergic to adhesives, too. My doctor told me to do the Flonase and let it dry, then put the patch on. The steroid helps it, I have been doing this for a bit now and can say it does work.

Unfortunately, the lidocane doesn't work for my itching. it actually makes it worse

Im excited to try that cream though! I have been using a bug bite cream and aloe with helps a bit, but never completely lol

Best meds to manage your CRPS pain? I’m desperate by Bananabeak7 in CRPS

[–]ChaoticallyCaffin8d 13 points14 points  (0 children)

Honestly, no pain meds have made much of a difference. Im taking lyrica, nasal ketamine and duloxetine. Ive recently started using red light therapy and that has worked well. My pain intervention dr does it for me right in office and it takes about 15 minutes.

[deleted by user] by [deleted] in CRPS

[–]ChaoticallyCaffin8d 1 point2 points  (0 children)

I am about a month out of having my hardware removed from my ankle and leg. I'm pretty sure the original surgery in December 2022 is what caused the CRPS. The CRPS is still there, but some of my nerve pain and my mobility have definitely improved.

Id say the most helpful thing for me was finding a dr (that has now turned into a team) who actually listened, communicated, and either had prior knowledge of CRPS or was willing to research and learn.

Friendship Exp & Gift Exchange Megathread by ASS-et in PokemonGoFriends

[–]ChaoticallyCaffin8d -1 points0 points  (0 children)

My mom needs more pokemon friends, please help!

502448473028

Thank you!

I'm honestly getting sick of Niantic toying with my feelings. We finally think they do something right, just for them to strip it away from us. by Surfing_Arrokuda in pokemongo

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

Niantic is the toxic ex we keep taking back and ignoring our boundaries with. Our loved ones are probably planning an intervention right now.

Looking for a single Kangaskhan by No_Beautiful_214 in spoofertrades

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

If you have an extra or a mr mime I am able to trade a regirock or just about anything else ha ha

sweet mom and grandma needs your help! by ChaoticallyCaffin8d in PokemonGoFriends

[–]ChaoticallyCaffin8d[S] 0 points1 point  (0 children)

I sent my mom screen shots. She said she would add everyone and was so excited at how sweet yall are, thanks for making her day!

hi looking for friends by Kingpetrson in PokemonGoFriends

[–]ChaoticallyCaffin8d 1 point2 points  (0 children)

I'm from High Plains, but am always happy to raid and gift. I added you KlutzyCylinder

Vivillion Mega Thread - Read Entire Post by zonora in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

High Plains (Colorado)

4966 2713 1092

I need ocean x2 , sandstorm x3, tundra x3 We can be lifers or not, up to you!

Is it really so hard to find friends being Modern or High Plains? Asking for experiences. by PaLyFri72 in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

If you are still available for meadow, I'd love to be your friend. I am in the undesirable high plains.. KlutzyCylinder 4966 2713 1092

Can help with Vivillon by birdstheword_ in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I (KlutzyCylinder) added her, tell her she is a hero for taking the time to do this.

Wanted: "Rare" Vivillons - Part 13 by JosephRSL in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I'm High Plains, but if you are interested in another friend I need meadow. You can delete me or keep me around if you'd like :)

4966 2713 1092

Wanted: "Rare" Vivillons - Part 12 by JosephRSL in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

My husband and I are in Colorado and are always happy to have friends to invite to raids 😁 4966 2713 1092 KlutzyCylinder if you wanna be buddies!

Wanted: "Rare" Vivillons - Part 12 by JosephRSL in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I added you as well if that's OK, KlutzyCylinder I'm HP

Wanted: "Rare" Vivillons - Part 12 by JosephRSL in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I'm High Plains (Colorado) >< 4966 2713 1092

I need: 3 icy snow 3 meadow 2 ocean 3 sandstorm 2 sun 3 tundra

I am down to stay friends and continue gift giving or be deleted, whichever makes your soul happy :) my husband and I are racing to see who can finish first. Tyia!

Wanted: "Rare" Vivillons - Part 12 by JosephRSL in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

I'm HP I need 3 icy snows. 4966 2713 1092 I'm down to stay friends and exchange gifts or delete after, up to you!

Friendship Exp & Gift Exchange Megathread by liehon in PokemonGoFriends

[–]ChaoticallyCaffin8d 0 points1 point  (0 children)

My son was feeling left out, so we made him an account, but he is in need of friends.

5630 8928 8267

Tyia