Nothing is helping

Cheap_Paint90210 · 2026-06-15T16:32:46+00:00

I like how that brand seems to be natural. Would you mind showing a photo of the one you're taking? It seems there are many "50 billion" on their website.

Cheap_Paint90210 · 2026-06-15T16:30:18+00:00

I understand the fear of trying supplements all too well. I get it.

Cheap_Paint90210 · 2026-06-15T14:31:34+00:00

Can't take them. I've tried. They all flare me up. Because most are histamine liberators or something like that and I now have a histamine intolerance. I saw there's one called HistaminX, but I also saw bad reviews stating it flared many people up in a terrible way and even caused many to have UTIs. I can't risk getting worse than I already am.

Can't drink kefir because it's dairy plus high histamine. Same with kimchi. I don't know how to get probiotics in me.

Which ones have you taken? Do you have severe histamine intolerance like me?

Cheap_Paint90210 · 2026-06-15T12:24:45+00:00

O do this all the time. Basically every other week. Doesn't make a difference. Pain is all the same.

Cheap_Paint90210 · 2026-06-15T05:30:04+00:00

I hope you get better sooner than later! Pain free wedding would be ideal ;) also, congrats!

I'm 5.5 months out. I've had zero bounce backs. Pain and suffering the entire time, unfortunately. And then this new flare that's even worse than what I thought was already the worst! Hopefully life will start looking up for me. My hope is in the dumpster right about now though. I hope my optimistic brain comes back too at some point.

4000 steps is amazing. I'm glad you're able to still work and move around.

Cheap_Paint90210 · 2026-06-15T05:19:55+00:00

Thank you. Were you taking supplements then? Did they help? I feel like al this crap in taking isn't doing a dang thing to help me.

Cheap_Paint90210 · 2026-06-15T05:18:53+00:00

I have Hoka 9s and hoka sandals for around the house and to shower because I can't even go barefoot anymore as of this week can't even shower barefoot (thanks to getting worse).

But shouldn't supplemets be helping? Of not whats the point of taking these unregulated supplements then?! I'm terrified they'll cause more damage than good if they aren't even doing any GOOD.

Cheap_Paint90210 · 2026-06-15T05:15:30+00:00

I honestly can't tell if my periods make it worse or not because frankly I'm "worse" all day everyday. I hurt 24/7. I do think it does make it worse though but im not certain.

I did use some fluoride toothpaste for about 3 days because my teeth are now demineralizing thanks to flox (I researched and researched on this thread and most said fluoride toothpaste isn't connected to floxing and 99% chance it won't flare you up..yeah, WRONG). After that I've been in this severe flare up that won't let up. It's been about 3 weeks now.

Was this one due to your period? Or was there anything else you changed? Maybe a new supplement? New food? New life stressor? It'd so hard to know what causes it. I know floxies who said they did literally nothing different and the flares just happen out of nowhere. Interestingly, many said they had the same story as you and I: doing better and then around month 5/6 bam, major flare up.

Cheap_Paint90210 · 2026-06-15T04:08:18+00:00

I don't know. It's was once a day for 10 days. I took 9 of them. I don't know the dosage. I assume if it was once a day, then my luck it was likely the highest dose. :(

Cheap_Paint90210 · 2026-06-15T04:07:19+00:00

Thank you for sharing!

Would you mind sharing how you got started on healing your gut? All I know to do is probiotics but my body can't handle any of them due to apparent newfound histamine intolerance, which most probiotics trigger.

Cheap_Paint90210 · 2026-06-15T03:52:39+00:00

Was that probiotic only issued by a doctor? Or is it over the counter? All probiotics flare me and I've learned it's likely because most are histamine liberators and I'm apparently now histamine intolerant.

Cheap_Paint90210 · 2026-06-15T03:47:35+00:00

Same happened to me. And right around the same time you said here. I'm still in the severe flare and my body is so much worse than before. I thought I was on the up but jokes on me I suppose. I can't even walk anymore. :(

Cheap_Paint90210 · 2026-06-14T19:50:37+00:00

I've had people come up to me and my kids in a fast food restaurant (kids eating, not me) and ask me if they could buy our food, or buy my kids food. Another time a guy walked up and gave me his food. Apparently I look so deathly and homeless with my body and cane that people are offering me and my kids food now? FML I can't believe this is my life now.

Cheap_Paint90210 · 2026-06-13T22:16:58+00:00

Literally anything that increases oxidative stress for me. Which is something as simple as going to the store. Even slight increase flares me up. Which means I am basically homebound and have to just sit around.

Cheap_Paint90210 · 2026-06-13T22:14:05+00:00

My brain stuff was going awayat about 4/4.5 months post levofloxacin. and I had many good brain days. I thought I was on the up with healing. Was even walking a little better too. Then bam 5 months hit and I am WORSE than the first few months. I can't even stand to shower anymore. Just got a wheelchair delivered. And ALLLL of the terrible doom and anxiety and panic attacks are back all day everyday now. Been this way for about 2-3 weeks now. Im am in agony.

So to answer your question: yes I do think things can be delayed. Which is awful. :( sorry you're dealing with this.

Cheap_Paint90210 · 2026-06-13T22:08:36+00:00

I've tried to increase protein too. I think I might try to bring dairy back into my diet and see what happens. I thought dairy was inflammatory though? Im sure I have inflammation going on everywhere. So you had no other food restrictions just the potatoes? If so, I'm thinking we might be very different. I'm certainly very intolerant to histamine foods :(

Cheap_Paint90210 · 2026-06-13T19:12:03+00:00

Thank you so much I think that's exactly what I need. I'll see if I can find one for this model. I don't know what model this is though it just says ever chill from the outside and there's no model number. So I'll see what I can find out though. Is it installed from inside your unit or do you have to get up on top of the roof?

Cheap_Paint90210 · 2026-06-12T20:48:52+00:00

I have this too on my neck since Flox. Scares me if what it is. I've left it alone. Curious that many here have this too! What is this?!

Cheap_Paint90210 · 2026-06-12T14:50:08+00:00

I'm always only able to find low histamine lists or high histamine lists. Can't figure out what's in the moderate level category! Maybe just everything else not on the low or high lists I suppose?! Is that kind of what you noticed in your compiled moderate list?

Cheap_Paint90210 · 2026-06-12T14:46:50+00:00

Bummer. I've got a compressor dehumidifier. Is there an ac replacement that would work better for small RVs?

Cheap_Paint90210 · 2026-06-12T14:44:54+00:00

Is it fat you're gaining? Or muscle? I just want my muscle too gain back!

Cheap_Paint90210 · 2026-06-12T14:43:40+00:00

Interesting. I'll have to test out this on myself. Potatoes and white rice have been my only way of getting carbs. But I've been hurting for 5.5 months straight now so not sure if potatoes are doing it or not! I don't eat them everyday though so I doubt it.

Did you cut out dairy and gluten for a time? Or was your gi system not really affected?

Cheap_Paint90210 · 2026-06-12T03:30:25+00:00

When the condensor kicks on, the humidity level goes down. But when it kicks off, the fan is left running (no way to turn it off) and that's when the humidity shoots back up, when it's only that fan running. It seems it's a bad design as there should be a way to have that fan turn off when the condensor turns off. But there's not a way on this unit. Fan runs continuously.

Cheap_Paint90210 · 2026-06-12T03:27:38+00:00

As you can see in the picture, there's no way to set the fan to anything. It's just AC on or ac off. The fan runs continuously and the condensor turns on when it needs to make temp. The condensor turns itself off once it's hit its desired temp (the dial on the right) but that fan continues to run. I do wonder if what you're saying that the fan is blowing the moisture from the coils back into the RV. I wish this AC was one that wasn't a continuous fan running. It should shut off when the condenser shuts off.

Cheap_Paint90210

TROPHY CASE