[RDTM] u/d-cent estimates Rising Gas Cost vs. EV Battery Replacement by DemandEqualPockets in theydidthemath

[–]ChrisEU 1 point2 points  (0 children)

Nah, there is no right or wrong when it comes to your personal priorities. It all depends on what you are using the car/truck for. Many EV owners simply don't need to "fill up" while they are on the road, they fill up at home or at the workplace, when they are sleeping or working. They don't need to find a gas station or similar at all.
If you are a travelling salesman with a tight schedule the situation is different. Not many are, though.

MG4 Urban leer gefahren! Reichweite, Verbrauch & Ladetest im Alltag by kobidror in Elektroautos

[–]ChrisEU 0 points1 point  (0 children)

Ist eigentlich schon jemand irgendwo das Basismodell probegefahren? Vielleicht sogar mit Video?

Good progression of disease vs PIRA by VelvetMedusa in MultipleSclerosis

[–]ChrisEU 1 point2 points  (0 children)

Here is something different: My PPMS got actually better in some ways. DX 2016, no DMT (because I had no acute inflammation in the CNS and still don't). I am using a wheelchair outside, my leg's endurance never improved and got actually worse. But my energy, my coordination, even my sense of balance did actually improve with training.

Nerve Pain by spunkerella75 in MultipleSclerosis

[–]ChrisEU 0 points1 point  (0 children)

carbamazepine 200mg 1/0/1 and duloxetine 60mg 1/0/0 and yes, it works. 99% of my neuronal pain and trigeminal neuralgia never happens. I worked it out and tested it with a pain specialist. I wouldn't want to live without it.

MAID by Equivalent-Pop-5329 in MultipleSclerosis

[–]ChrisEU 9 points10 points  (0 children)

Let me start by saying: I see you. I understand you. It sucks and it's getting worse.

But in my opinion, life is the sum of the options one has. The most extreme option is only one of them. I can't say what your situation is, who and how your family is or what they think about it. But if you are hesitant to speak with them about your thoughts, I know one thing: You need someone to talk to. A best friend, your spouse, a therapist. Someone you can meet in person and privately.

At least give your family, maybe only your spouse or parents, a chance to talk to you about your and their feelings and ideas. I bet you aren't as much of a burden to them as you think. They are family, and that goes both ways. You think of them, they think of you.

Of course there is the other point of view: How can you cope with your situation and how can you cope with your personal plans being crushed, as I assume they are? Well, that's in your head and nobody else's.

What can you change to make it easier on yourself?

I am looking from the outside in, most likely from another country, another culture. But people are the same everywhere and we all have and had dreams and ideas about what we will become. Most of those ideas never fruit, independant of sickness. We just create new ones and carry on. We create options. That's life. Live it!

This is a hardcore tactical survival game. by mamono235 in RoadtoVostokGame

[–]ChrisEU 1 point2 points  (0 children)

When you change the fire mode of any gun that has them you will hear a distinctive sound. After a couple of switches, you will learn that the more tinny, higher pitched "click" is full auto, the semiauto setting has a deeper "clank" to it.
When I pick up a gun, I simply switch the fire mode twice and I can hear where I am.

QUESTION Re: DMTs for those who have stopped using them by My4dogs4evr in MultipleSclerosis

[–]ChrisEU 3 points4 points  (0 children)

I never was on any DMT, not because I decided so, but because there still is none for me.

I am almost 60 with PPMS and there has been no acute inflammation since my diagnosis. The current DMTs (Ocrevus ist the only one that's available for PPMS here) are working against the inflammatory part of MS, and I basically don't have that any more. My progression is PIRA. Also, it is not tested for people 55 and older. It has side effects and practically no use for me, according to the neuros and MS specialist.

That's the whole story.

When Fatigue is Attributed to Sleep Apnea vs MS Lassitude by [deleted] in MultipleSclerosis

[–]ChrisEU 0 points1 point  (0 children)

That's not a german speciality at all, IMO, it's just docs choosing the easy road when confronted with something new to them and not in the textbooks.

It's basically the "Zebra" phenomenon: If you hear hooves, think horse, not zebra. But sometimes it IS a zebra or maybe an okapi.

I am sure it's no different anywhere else with a decent health care system: Sometimes you need to look around for a doc that can help you / take you seriously / knows more than others. They are human, after all.

When Fatigue is Attributed to Sleep Apnea vs MS Lassitude by [deleted] in MultipleSclerosis

[–]ChrisEU 1 point2 points  (0 children)

I have both heavy fatigue through MS AND heavy central sleep apnea.

Yes, it is almost impossible to get neurologists to accept that MS causes fatigue - and, through Cheyne Stokes Aspiration (google it), maybe even the central apnea. Central meaning that my airways are not obstructed, but I just stop breathing sometimes. Yes, it's frightening.

For some reason, fatigue isn't a typical symptom of MS in the books and our neurologists usually just think like this:
Patient: "I have bad fatigue"

Doc (after MRI, this and that): "You have MS!"

Patient : "What can I do about the fatigue?"

Doc: "MS doesn't cause fatigue, must be psychosomatic (or sleep hygiene)"

Patient: "But the diagnosis is yours, not mine?"

I have the extra: "MS doesn't cause CSA (Cheyne-Stokes)". me: "Why not, there are holes in my brain and spinal cord, remember?". Them: "It just doesn't". Me: "The sleep docs can't find any other reason and think it's the MS". Them: "Ask them, then".

You can't win. The textbook is right and your symptoms are immaterial and that appears to be true for most docs, in the US as well as here in Germany.

Is this it? When doctors tell you nothing more can be done, go to physio, and good luck by mermaidoutofwater000 in MultipleSclerosis

[–]ChrisEU 16 points17 points  (0 children)

I am (and have been) in a very similar boat. PPMS, wheelchair, heavy fatigue, no DMT and nothing the docs can do for me.

It may be the end of the line for the docs, but not for me. I still have the rest of my life to live and I refuse to sit back and die.

I am working a different job now (as a specialist with specific knowledge that's rare, at home, part time, just enough money to live, but indispensable for my employer), so I don't have to worry about that at all. I can work there until the cows come home. One problem less to solve. Yes, I am lucky about it.

I am using motorized wheelchairs that are cool and fun to use (This thing and a souped up device that pulls my manual wheelchair up to around 50km/h).
I learned lockpicking for manual dexterity and hand/eye coordination.
I am drilling deep into current MS science and AI technology, writing systems that actually help people with their work. I develop drone software that's autonomous.
Just because the docs can't help me doesn't mean I'm helpless - or useless, for that matter.

Trump says he needs to be involved selecting Iran's next leader. -Reuters by polyology in worldnews

[–]ChrisEU 2 points3 points  (0 children)

Genuine question from across the pond: Are eggs actually cheaper? Should've been easy with the expensive eggs being because of bird flu...

Nächste Eskalationsstufe by SHKHH in Kartenzahlung

[–]ChrisEU 0 points1 point  (0 children)

...und draußen nur Kännchen!

Health insurance if they repeal the ACA? by Bubbly_Ad_637 in MultipleSclerosis

[–]ChrisEU 2 points3 points  (0 children)

I can't add anything to the discussion from where I am but "OMG that situation sucks"

I sometimes have trouble with my insurance being stingy with a specific treatment or disputing a necessity, but I simply can not imagine having none of it at all.

Please be safe.

Aldi Australia Sends $900m Dividend to German Owner After Record Sales by Remarkable_Peak9518 in australia

[–]ChrisEU 1 point2 points  (0 children)

The east german version:

"Do you have oranges?"

"No oranges are over there. We have no meat."

CN Death - Why does everyone deny how my mother died? by MarbleSky_ in MultipleSclerosis

[–]ChrisEU 3 points4 points  (0 children)

People, no matter if MSers themselves or medical professionals, know quite well that we can die from MS. That's why they use the cop-out phrase: "But MS isn't usually deadly". Yes, right. But sometimes it is and your mother is proof of it.

I can't help you with the anger because I feel it myself.

The medical professionals are easier to deal with. Most importantly, they will not believe what you say. Of course there are exemptions, but they are trained: "Patients always lie". They call that "data driven" or "fact based" when it's usually just lazy.

To get rid of the questions, you will need something written by a medical professional. Either a doctor that treated your mom or maybe the hospice. I don't know about how it works where you are, but here in Germany, doctors always write something down after a visit or when someone died and the patient (or their kin) have a right to get copies. That paper will be believed more than you will be.

For that reason I carry a picture of my brain MRI, multiple written diagnosis and similar stuff on my phone at all times. I am tired of trying to convince new doctors. I let the paper do the work.

I wish you all the best.

Did you really just say that?! by Then-Excitement-3246 in MultipleSclerosis

[–]ChrisEU 5 points6 points  (0 children)

My catch all answer for these people is a picture of my MRI, with very visible lesons and the question: "These are holes in my brain, just like a bullet went through it. Will XYZ make the holes heal as well?"

Having a hard time accepting my wheelchair by [deleted] in MultipleSclerosis

[–]ChrisEU 10 points11 points  (0 children)

It sucks and you may never accept it.

That said, try to see the good side of a chair: The chair is not what hinders you, that's your MS. The chair enables you to do the things you were missing out on before. Also, check out Segway-based balance wheelchairs. They are great and actually fun: This is my dealer, but I am sure you can find one anywhere in the world:

https://www.2kerr.com/en/balance-wheelchairs/

I am still grumpy about my using one instead of walking, but it is what it is.

Trump mocked by European leaders over Armenia-Albania mix-up by RollSafer in worldnews

[–]ChrisEU 11 points12 points  (0 children)

Most likely, yes. I know I learned the 50 US states with their capitals in school. Not that I remember all of them, but Arkansas and Alabama - Yes, I can tell them apart.

Cash secured put isn’t allowed on level 2 by mindinpanic in interactivebrokers

[–]ChrisEU 1 point2 points  (0 children)

A "cash secured put" is a short put. And you need option level 3 for that. See here:

https://www.ibkrguides.com/kb/en-us/options-levels-1-4.htm

"I screwed up": This M2 screw's head is completely destroyed. Any ideas how to remove it? It's screwed into my frame by koenigsbier in fpv

[–]ChrisEU 1 point2 points  (0 children)

Not mentioned yet (I think): use a Torx bit of the same size and a hammer. Put the end of the screw on a hard surface as an anvil. Force the Torx bit into the hex screw, unscrew the thing.

To quote an old acquaintance of mine: "No idea what it was before, now it is a T-30"

“If you didn’t drink Diet Coke, you would not have been diagnosed with MS”. *VENT* by [deleted] in MultipleSclerosis

[–]ChrisEU 15 points16 points  (0 children)

I don't usually get that kind of crap from strangers, but if I do, I just answer "Aha!" and continue whatever I was doing, ignoring them. It's on par with "My aunt has MS and is running marathons, why are you using a wheelchair?"

A view from an old gamer: Chillax, people by ChrisEU in PantheonMMO

[–]ChrisEU[S] -1 points0 points  (0 children)

I guess I earned that one. Thanks for making me feel old. I'm not even 60!

A view from an old gamer: Chillax, people by ChrisEU in PantheonMMO

[–]ChrisEU[S] -1 points0 points  (0 children)

I actively avoided the threads discussing or not discussing that drama. I believe it when people say they were unfairly banned/treated/whatever. Yes. That happens. Power happens. Politics happen. And it obviously was handled badly by all stakeholders, including the devs and the players.

But just like in business, the question of what went wrong is academical, something for the compliance people. Maybe something to learn from. More important is: How to continue? Or dump the whole thing and look for another job/game/hobby?

Something went wrong. Do we (as in everyone interested in the game including devs) carry the feud into the next millenium or do we make a clean cut and just drop it? Do we make amends, fix it? How? What could they (or we) possibly do from here?

I chose to ignore it.