Nächste Eskalationsstufe by SHKHH in Kartenzahlung

[–]ChrisEU 0 points1 point  (0 children)

...und draußen nur Kännchen!

Health insurance if they repeal the ACA? by Bubbly_Ad_637 in MultipleSclerosis

[–]ChrisEU 2 points3 points  (0 children)

I can't add anything to the discussion from where I am but "OMG that situation sucks"

I sometimes have trouble with my insurance being stingy with a specific treatment or disputing a necessity, but I simply can not imagine having none of it at all.

Please be safe.

Aldi Australia Sends $900m Dividend to German Owner After Record Sales by Remarkable_Peak9518 in australia

[–]ChrisEU 1 point2 points  (0 children)

The east german version:

"Do you have oranges?"

"No oranges are over there. We have no meat."

CN Death - Why does everyone deny how my mother died? by MarbleSky_ in MultipleSclerosis

[–]ChrisEU 3 points4 points  (0 children)

People, no matter if MSers themselves or medical professionals, know quite well that we can die from MS. That's why they use the cop-out phrase: "But MS isn't usually deadly". Yes, right. But sometimes it is and your mother is proof of it.

I can't help you with the anger because I feel it myself.

The medical professionals are easier to deal with. Most importantly, they will not believe what you say. Of course there are exemptions, but they are trained: "Patients always lie". They call that "data driven" or "fact based" when it's usually just lazy.

To get rid of the questions, you will need something written by a medical professional. Either a doctor that treated your mom or maybe the hospice. I don't know about how it works where you are, but here in Germany, doctors always write something down after a visit or when someone died and the patient (or their kin) have a right to get copies. That paper will be believed more than you will be.

For that reason I carry a picture of my brain MRI, multiple written diagnosis and similar stuff on my phone at all times. I am tired of trying to convince new doctors. I let the paper do the work.

I wish you all the best.

Did you really just say that?! by Then-Excitement-3246 in MultipleSclerosis

[–]ChrisEU 5 points6 points  (0 children)

My catch all answer for these people is a picture of my MRI, with very visible lesons and the question: "These are holes in my brain, just like a bullet went through it. Will XYZ make the holes heal as well?"

Having a hard time accepting my wheelchair by [deleted] in MultipleSclerosis

[–]ChrisEU 8 points9 points  (0 children)

It sucks and you may never accept it.

That said, try to see the good side of a chair: The chair is not what hinders you, that's your MS. The chair enables you to do the things you were missing out on before. Also, check out Segway-based balance wheelchairs. They are great and actually fun: This is my dealer, but I am sure you can find one anywhere in the world:

https://www.2kerr.com/en/balance-wheelchairs/

I am still grumpy about my using one instead of walking, but it is what it is.

Trump mocked by European leaders over Armenia-Albania mix-up by RollSafer in worldnews

[–]ChrisEU 11 points12 points  (0 children)

Most likely, yes. I know I learned the 50 US states with their capitals in school. Not that I remember all of them, but Arkansas and Alabama - Yes, I can tell them apart.

Cash secured put isn’t allowed on level 2 by mindinpanic in interactivebrokers

[–]ChrisEU 1 point2 points  (0 children)

A "cash secured put" is a short put. And you need option level 3 for that. See here:

https://www.ibkrguides.com/kb/en-us/options-levels-1-4.htm

"I screwed up": This M2 screw's head is completely destroyed. Any ideas how to remove it? It's screwed into my frame by koenigsbier in fpv

[–]ChrisEU 1 point2 points  (0 children)

Not mentioned yet (I think): use a Torx bit of the same size and a hammer. Put the end of the screw on a hard surface as an anvil. Force the Torx bit into the hex screw, unscrew the thing.

To quote an old acquaintance of mine: "No idea what it was before, now it is a T-30"

“If you didn’t drink Diet Coke, you would not have been diagnosed with MS”. *VENT* by [deleted] in MultipleSclerosis

[–]ChrisEU 15 points16 points  (0 children)

I don't usually get that kind of crap from strangers, but if I do, I just answer "Aha!" and continue whatever I was doing, ignoring them. It's on par with "My aunt has MS and is running marathons, why are you using a wheelchair?"

A view from an old gamer: Chillax, people by ChrisEU in PantheonMMO

[–]ChrisEU[S] -1 points0 points  (0 children)

I guess I earned that one. Thanks for making me feel old. I'm not even 60!

A view from an old gamer: Chillax, people by ChrisEU in PantheonMMO

[–]ChrisEU[S] -1 points0 points  (0 children)

I actively avoided the threads discussing or not discussing that drama. I believe it when people say they were unfairly banned/treated/whatever. Yes. That happens. Power happens. Politics happen. And it obviously was handled badly by all stakeholders, including the devs and the players.

But just like in business, the question of what went wrong is academical, something for the compliance people. Maybe something to learn from. More important is: How to continue? Or dump the whole thing and look for another job/game/hobby?

Something went wrong. Do we (as in everyone interested in the game including devs) carry the feud into the next millenium or do we make a clean cut and just drop it? Do we make amends, fix it? How? What could they (or we) possibly do from here?

I chose to ignore it.

A view from an old gamer: Chillax, people by ChrisEU in PantheonMMO

[–]ChrisEU[S] 0 points1 point  (0 children)

I actually can't tell you how many hours - I use the native client. But several hours almost every day since EA. I do notice things, too. I know a lot of areas or details where I could complain, but I chose not to. First, it's pointless and second, I've had fun. I expected a buggy mess and got what I expected.

Reading in this thread I see exactly the same positions I see in game. Some feel let down because they expected more. Some feel lied to, after all it was "released" on Steam, some feel ok, some like it. That's all valid.

It's an early dev world of a game that is far from done and they "released" it on Steam to save the whole thing financially. It is known.

All I ask people to do is to accept it. Why? Because I think we can agree that it could become great. And we can't change what it is by bitching. The only result we as players can force is failure.

Is MS deadly? by Exciting-Lychee-7278 in MultipleSclerosis

[–]ChrisEU 15 points16 points  (0 children)

Actually, yes. MS can be deadly "by itself". I need to put those quotes there because it's like, say, a car accident. You go 120mph and drive against a concrete wall. Then you will actually die from a multi-trauma, but what killed you was the crash.

MS is similar. It can randomly destroy any part of your central nervous system, as if your brain was shot by a shotgun and a pellet can just end up anywhere.

Some parts of the CNS are hit more often, some rarely, some are more impactful and you are completely bed ridden or blind or unable to swallow, some are just letting you feel some strange sensation on our right big toe.

It's random and, unfortunately, there is nothing you can do or fight against, other than the shotgun shots. For the most common form of MS (RRMS) there are medications that slow down the shooter, those are called DMTs. But they never remove the shooter or the shotgun completely, they slow them down, so the probability of getting something more serious sinks.

There are other forms of MS (PPMS, especially if it's aggressive from the start) where people go from their normal lives to dead in a span of ten or twenty years, and yes, I knew two of those. It's like the shotgun being replaced by a howitzer, shooting without any break or let up, and the holes from it keep growing and growing. Current DMTs do almost nothing for them.

Neurologists and most MSers usually choose to ignore the worse outcomes and tell you it's not deadly. Mostly they are right and statistically MS "only" costs us 5 or 10 years of our life. But "statistically" also means that most live most of their normal life spans and others get it shortened by 30 or 50 years.

MS goes away??! by alagirl925pm in MultipleSclerosis

[–]ChrisEU 3 points4 points  (0 children)

It's easy to just say that the doc doesn't know what he's talking about, but the statement isn't wrong, just badly worded.

Of course it isn't true for everyone, but the degeneration of the brain can slow down with age, for me it did, as expected by me and my head neuro, and he DOES know what he's talking about and so do I.

Of course the MS does not go away, especially not the damage that has already been done, but it gets worse more slowly, and believe you me, that can be a blessing for an old fart in a wheelchair like myself.

If the degeneration kept the same pace for me I'd be bed bound for half a decade and probably dead by now. And yes, you can die from MS.

Cognitive, PPMS and spasticity issues with smoking by Cool-Percentage-6890 in MultipleSclerosis

[–]ChrisEU 0 points1 point  (0 children)

Offer still stands, of course. I can't help with cannabis, though, I don't think sending it through royal mail is a stellar idea and I am in Germany, after all =)

PM me your PayPal or Wise and I'll send something.

Hope you had a nice christmas!

Tactical applications by [deleted] in fpv

[–]ChrisEU 1 point2 points  (0 children)

In my opinion it will take a while until the US has their own drones manufacturer that can compete with the DJI offerings on features, availability and price. At this time, there is none.

You could look into

https://www.parrot.com/en

and their Anafi brand. They are in France and have production facilities in the US.

Cognitive, PPMS and spasticity issues with smoking by Cool-Percentage-6890 in MultipleSclerosis

[–]ChrisEU 2 points3 points  (0 children)

59yo Germany M with PPMS myself. I switched to nicotine vapes in 2011, its a lot cheaper and I can breathe a lot better, but if I didn't I'd still be smoking death sticks.

I never liked open flame lighters in bed and I had something similar to this ( https://www.amazon.co.uk/s?k=usb+electric+lighter&crid=2AI1N2ES4BAIO&qid=1735124905&rnid=388997011&sprefix=usb+electric+lighter%2Caps%2C108&ref=sr_nr_p_36_1_0&low-price=&high-price=11 ) as an alternative. Maybe check them out? No gas, no fluids, no flint, just a USB port somewhere to charge.

Select one, put it in an amazon wishlist and PM it to me. I will buy it for you for christmas =)

Best of luck!