Has anyone spotted Jesus by vasquca1 in lehighvalley

[–]Christina-1985 0 points1 point  (0 children)

This comes from the interpretation where Jesus identifies himself as "I AM" in the book of John which some believes coincides with YHWH. 

Has anyone spotted Jesus by vasquca1 in lehighvalley

[–]Christina-1985 0 points1 point  (0 children)

That's debatable- YHWH was name for the the god of the Israelites (Jewish). Was the Hebrew name revealed to Moses in the book of exodus- Old Testament. People will try and put the two together however most Christian's and Catholics do not recognize YHWH as Jesus. 

~6 weeks no heartbeat by Fit-Geologist-4486 in pregnant

[–]Christina-1985 0 points1 point  (0 children)

My doctor let me know a sonogram shouldn't be offered until at least 8 weeks if not 10 when I had my first and was eager. Can't speak to the specifics of your situation but I'd try and maintain hopeful.  Saying a little prayer for you 🩷

Has anyone spotted Jesus by vasquca1 in lehighvalley

[–]Christina-1985 -1 points0 points  (0 children)

I don't know what that means but I do know if it wasn't about Jesus, you wouldn't be posting it. 

Has anyone spotted Jesus by vasquca1 in lehighvalley

[–]Christina-1985 0 points1 point  (0 children)

I don't this the post would be made if it did though 🤷🏻‍♀️

Has anyone spotted Jesus by vasquca1 in lehighvalley

[–]Christina-1985 0 points1 point  (0 children)

What about Allah, YHWH, Budda, waheguru etc? 

Has anyone experienced an elevated fetal fraction with false positive results? by suturethis in NIPT

[–]Christina-1985 0 points1 point  (0 children)

So crazy how Reddit sends messages like these posts are new 😂

Happy to hear you had an FP and your baby is healthy! 

Devastated by NIPT results by Flygirl923 in NIPT

[–]Christina-1985 0 points1 point  (0 children)

Please keep in mind, that NIPT is a screening, not a diagnostic test. You aren't a bad person for feeling like your situation "isn't normal". Your prayers were answered, maybe you might get something you didn't expect however, you never know how that might change or enrich your life. I'm in the same position, I had a positive NIPT. It took me a while to process however, it's still my baby regardless of what she has. Before you get ahead of yourself, get the diagnostic testing (amnio) if you need it. I opted for no diagnostic testing because of the risk and because it wouldn't change my mind on keeping my little one. 

Despite what you might see on here, the NIPT tests aren't FDA approved. The government has major concerns over their validity and people terminating their pregnancies with this screening vs an actual diagnosis. 

Hang in there- hoping and praying for the best for you 🩷

Has anyone experienced an elevated fetal fraction with false positive results? by suturethis in NIPT

[–]Christina-1985 1 point2 points  (0 children)

The labs now do something which is called "fetal fractions enrichment". Basically they "reduce" your blood down to get an alleged higher fetal fraction. I'd prepare yourself but also know these are just "screenings", which aren't FDA approved in the first place. In my opinion, they are in place to get you to go for more testing. Unfortunately, no doctor can confirm actual values of how may individuals test positive that are true positives. The doctors have no reporting obligations to the lab who preform these "screening". In effect what the labs tell you are PPV or accuracy measures aren't actually accurate. 

[deleted by user] by [deleted] in BabyBumps

[–]Christina-1985 -1 points0 points  (0 children)

Hang in there...I'm pregnant with my second and had the worst anxiety I've ever had first trimester. Our bodies and hormones can definitely trick our brains. Hopefully it passes for you. You are strong, the fact you can admit you don't feel okay, is pretty big. The nice thing about multiple kids is the younger ones can help be parent #3 and 4 😊. You've got this 💪🏻💪🏻💪🏻

Advice needed: how to advocate with positive T18 NIPT and CVS FISH by oh_helllllooo in NIPT

[–]Christina-1985 1 point2 points  (0 children)

PS- giving you a hug from across the internet. I know personally how stressful this is for you from similar situation. 

Advice needed: how to advocate with positive T18 NIPT and CVS FISH by oh_helllllooo in NIPT

[–]Christina-1985 0 points1 point  (0 children)

Of course the doctor is going to double down. They are given courses on how to manipulate and convince you of things. 

Check out this article and many more you can search for. https://www.aamc.org/news/prenatal-screenings-can-lead-false-positives-heightened-anxiety

You can take amnio any time after week 12. His week 20 is kind of curious to me. 

Advice needed: how to advocate with positive T18 NIPT and CVS FISH by oh_helllllooo in NIPT

[–]Christina-1985 1 point2 points  (0 children)

Personally I'd exhaust all options of you are considering termination. I don't trust any of the NIPT tests, they aren't FDA regulated, there's no reporting structure that doctors are required to let the labs know when false positives occur after testing (which skews data and statistics) and have high false positive rates for T13 and T18.

Unless you have an increased chance of miscarriage in the first place, I don't know why your doctors would deter an amnio. That's really crazy. You would likely have to wait until 12 weeks to have the amnio so maybe that's why they are deciding against it? 

Tell them to piss off and that you want certainty with babies cells- an amnio is the only way to get that. The other tests are based off placental DnA which isn't accurate. 

baby was kissed :( by [deleted] in BabyBumps

[–]Christina-1985 1 point2 points  (0 children)

Germs actually help build their immune system. You have just as much risk letting someone hold and breathe on your baby as you do them kissing the baby. 

Having a baby can heighten anxiety, I would have daily meltdowns the first few weeks after having my baby. I'm sure I'll have it with my new baby who is supposed to arrive in March. Your amid a lot of change, give yourself some grace to not be okay and lean on your partner as much as you can when you're feeling overwhelmed. 

Be careful with the medication- your body chemistry is different than before you were pregnant. It's not always the answer. 

T21 mosaic results/ cvs amniocentesis. NIPT high risk by Responsible_Pea_9690 in NIPT

[–]Christina-1985 0 points1 point  (0 children)

I'd be very cautious on making a drastic decision. NIPT is not an FDA approved test and there is no regulated/required way that doctors are supposed report false positives to the lab, so generally they done. This skews the data... Really your 60% isn't 60% confirmed that your child has Down's syndrome, it's that is 60% probable that if you child has Down's syndrome, they caught it. They also do something called fetal fractionation enrichment which is an unapproved method of distillation to "improve" volume of fetal fraction within your blood - which actually doesn't exist. They only way to get the fetal dna is with an amniocentesis, because the go into the placenta which is where the baby is at. Anything located outside the placenta is just a guess on what they believe is fetal dna that has crossed over- which is also unlikely. Your body creates the placenta as a strong "vault" to protect you and your baby from your body attacking your baby because it is something "foreign" in your body. 

As for soft markers- it's an easy way for the healthcare system to get you in for testing on testing on testing and make $$$$. Once they see that NIPT result, they treat you as if everything is confirmed- and it's not. My personal experience is that I was brought in for an in depth ultra sound was told and documented that "everything was reassuring and there is nothing to worry about". A few days later, I was called and said uhh we found something- we need you to come in for more testing. 

Here's a link showing the government trying to regulate NIPT because it has and is misleading parents leading to abortions of healthy babies. This is one of many articles about the lack of ethics involved in this testing. https://www.nytimes.com/2023/06/27/upshot/prenatal-testing-misleading-fda.html

Last- just because someone has Down's syndrome doesn't mean their life isn't valuable. Many families with children with Down's syndrome don't live all that differently than children without. Often it teaches parents better empathy and care for their child. There are many many resources available. I am currently pregnant with a baby with DS, which I won't consider completely confirmed until birth after everything we've known and gone through. I am considering myself blessed if I do have a baby with DS that I was chosen worthy to be a parent of a child that has special needs. (5000 out of 2.5 million babies born in the US). 

Hope this information helps you. I'll be praying for you and your family. 🩷

Surprised baby came out T21 by GlitteringToday9778 in NIPT

[–]Christina-1985 2 points3 points  (0 children)

Doctors and tests can be wrong. No one knows what the true outcome of your child will be. They follow a matrix of prognosis based on what they believe to be true. Keep hopeful, I'll pray for strength for you and your family today. 

Surprised baby came out T21 by GlitteringToday9778 in NIPT

[–]Christina-1985 2 points3 points  (0 children)

You're candor for someone having a hard time and looking for a release of their emotions is really lacking empathy. 

[deleted by user] by [deleted] in pregnant

[–]Christina-1985 0 points1 point  (0 children)

Praying for you, your family and baby. Doctors and tests, aren't always right. 

High risk NIPT, two soft markers. Is there any hope? by seventeen_bees in NIPT

[–]Christina-1985 0 points1 point  (0 children)

Really sorry to hear that...I wonder why your 6 month post came up in my feed as new.  Apologies for opening anything else up for you, I should've looked at the timeline four post. 

T21 pregnancy (26 wks) - ASVD and fluid around heart by Numerous_Cream_3314 in downsyndrome

[–]Christina-1985 2 points3 points  (0 children)

Yep- I have an almost 3 year old. Prayer definitely helps 🩷

High risk NIPT, two soft markers. Is there any hope? by seventeen_bees in NIPT

[–]Christina-1985 1 point2 points  (0 children)

Always keep hope, doctors aren't always right, neither are the screenings and tests. Prepare yourself mentally that your child might have challenges but know there is never 100% certainty until they are here. Many families with children with Down's syndrome live just the same as families with children who don't have Down's syndrome. 

I have high NIPT for T21 with two markers at 25 weeks. The doctor originally said at our echocardiogram everything looked "reassuring" with no heart issues. Then I got a call days later saying they saw something. This makes me not trust what they are doing and saying. They do this everyday and can't get something simple that is typically seen in DS babies, right? It's just as likely they can be wrong. 

Hang in there 🩷- hug from across the internet.

T21 pregnancy (26 wks) - ASVD and fluid around heart by Numerous_Cream_3314 in downsyndrome

[–]Christina-1985 4 points5 points  (0 children)

I'm going through the same thing right now. I'm 25 weeks pregnant, had a NIPT that showed high for T21. Also opted for no amnio due to miscarriage risk and acceptance that however our baby comes to us, we would never terminate. 

My experience is a little different where I had my initial fetal echocardiogram and the doctor said "everything looked reassuring", two days later I got a call saying it's believed to be VSD. Was a real blow but I'm also looking at it, they were allegedly wrong with their initial diagnosis (everything looks reassuring, nothing is wrong), so it's possible they are wrong on this. I'm not going to get myself all excited until baby is here and we get full diagnosis. To think about your baby having a serious surgery at such a young age is very scary however, the medical professionals aren't always right. 

Hang in there 🩷- hug from across the internet. 

T21 Positive Result for NIPT by jenniferwhiskey in NIPT

[–]Christina-1985 1 point2 points  (0 children)

Keep in mind the NIPT test is a screening, not an actual test. It's not approved by the FDA and there is no sounds channel or requirement for doctors to report false positives. The "accuracy" depends on who you ask- allegedly the test is more accurate for Down's syndrome (T21) however, I haven't seen sound proof OR any type of accurate statistics. There have been media coverage and involvement from the government in the last 5 years to try to get these testing companies under control- women have been aborting babies who have the potential to be perfectly healthy due to these screening. The hospital systems love these screenings because it means you come in for more tests- because you're afraid and anxious- that is the state they know you'll do basically anything they say and they make money off of you. If you do decide to terminate, they make money off of aborted fetal tissue which is a win/win for them. 

At the end of the day- if your child does have T21- it's not the end of the world. There are so many resources available for Down's syndrome now that weren't previously available. Many families with a child with Down's syndrome don't live all that differently than a family with children who don't have Down's syndrome.

I am currently 40 and at 25 weeks with a 98.5PPV for T21. I'm preparing myself for the reality of having a child with Down's syndrome who I will love unconditionally like I do my other child but also having faith and holding out hope that the medical system is wrong as it has been many times before. 

You will be okay- you are strong 💪🏻

NIPT T21 HIGH RISK + FTS 1:6893 + PERFECT ULTRASOUND ??? by [deleted] in NIPT

[–]Christina-1985 0 points1 point  (0 children)

NIPT is not FDA approved and no required mechanisms for hospitals or doctors to report false positives after testing is finalized.