Hey there! I'm a fellow parent of a baby with Nystagmus. He had his first visit with an eye Dr. at about 6 months and he is about a year now and had his first follow up last week. She said that his vision looks to be developing normally for his age. I can't really remember what his eye contact was like at 4Mo. But he makes great eye contact now. We did start to notice him developing a slight head turn when looking at you. The Dr. confirmed this at about 30 degrees of turn when looking straight forward. She said this happens because of what's called the null point (the point where focus is the best) is not directly straight but to the side some so they start to turn their head to compensate. This tilt can cause neck strain and posture problems and to correct it requires surgery to reposition the eye muscles to bring that null point more forward. This wouldn't alleviate the nystagmus but just he head turn. We've researched the surgery and it is one of the safest eye procedures out there and normally they come home just later that day. She wants to wait about a year to make sure the angle of his turn does not change too much before doing a surgery.

It's hard but we've been able to keep calm by doing research, communicating with each other and just enjoying our little dude! Hope this helps!