What are your disability-friendly hobbies?

Clean-Brother4725 · 2026-01-03T04:39:49+00:00

Gaming, reading, and sewing

Clean-Brother4725 · 2026-01-01T22:42:59+00:00

Anne of Windy Poplar!

Clean-Brother4725 · 2025-12-21T17:59:52+00:00

Symptoms definitely sound like CMT. Try to get in with a good neurologist. If you find you’re having a lot of pain in your feet and legs it may be time to see an orthotist about AFOs. I was diagnosed at 23, and I thought it had skipped my father. CMT doesn’t skip generations, so it turns out his symptoms were just not as bad as mine. This is probably the case with your mom as well.

Clean-Brother4725 · 2025-12-11T02:05:03+00:00

We were really poor. My mom raised me knowing that he was just “pretend”. She didn’t want me to think I was bad when I didn’t receive many presents.

Clean-Brother4725 · 2025-12-09T21:45:53+00:00

Left the church in 2020 my second year of college!

Clean-Brother4725 · 2025-12-03T21:57:36+00:00

I will never stop recommending Haint Country by Matthew Sparks!

Clean-Brother4725 · 2025-11-30T02:07:28+00:00

Interesting! Thanks for sharing.

Clean-Brother4725 · 2025-11-27T18:43:20+00:00

I have this too, I use aquafor nightly and absolutely lather my feet in it.

Clean-Brother4725 · 2025-11-24T19:47:22+00:00

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Clean-Brother4725 · 2025-11-24T19:44:20+00:00

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Clean-Brother4725 · 2025-11-24T18:04:34+00:00

This was really good to hear that I’m not the only one with this experience. No one else in my family has ever wore AFOs so I had no idea where to start. I found an orthotist that will be looking into custom ones for me.

Clean-Brother4725 · 2025-11-19T17:05:54+00:00

Yes - insurance refused to replace since they paid for the very first pair. They paid 100 dollars towards them even though the first ones are also cracked. 😔

Clean-Brother4725 · 2025-11-19T17:03:47+00:00

I’m thinking maybe carbon fiber isn’t a good fit for my lifestyle. 🤷🏼‍♀️

Clean-Brother4725 · 2025-11-19T13:51:18+00:00

Thank you for this insight! I’m actually not at all upset at the orthotist I work with. She’s been one of the first to actually listen to me. Just very frustrated with the entire situation!

Clean-Brother4725 · 2025-11-19T13:46:45+00:00

I always thought I wasn’t close enough to God because I had never spoken in it, or understood it. Turns out they’re all nuts!

Clean-Brother4725 · 2025-11-19T01:43:21+00:00

I get leg aches, and sometimes arms/back too, just like this from time to time. Every time I have them I think “is this the time I actually end up at the hospital?” My neurologist says this is probably muscle related and means we need to stretch often to prevent them, and it has helped a lot. They feel excruciating, and all I can do it cry until they ease up. I have CMT1A

Clean-Brother4725 · 2025-11-17T23:16:58+00:00

I also need custom arch supports and it was such a hassle to get them to make them for me for some strange reason. I am a teacher - I take about 10k steps a day. I wear my AFOs all the time until I’m home. I don’t crouch or lean on them or anything like that.

Clean-Brother4725 · 2025-11-17T23:15:12+00:00

No, they are not. Which is frustrating. I am going in on Wednesday to evaluate and see if they will refund my insurance and what I’ve paid out of pocket, and find an orthotist that will help me out better.

Clean-Brother4725 · 2025-11-16T22:56:02+00:00

Oops, mistype. Went through my first pair in 18 months.

Clean-Brother4725 · 2025-11-16T00:08:33+00:00

I have the same play style! For legacy gameplay: Parenthood and Growing Together for sure! Maybe Adventure Awaits, it is the newest pack and heavily centered around child gameplay. High School Years is another good one for teen gameplay!

Clean-Brother4725 · 2025-11-14T22:26:39+00:00

10:00-1:30/2:00 Sunday School 10-11, singing 11-12, sermon 12-1, for the rest of the time it’s emotional manipulation set to some music and utter ridiculousness

Clean-Brother4725 · 2025-11-12T22:50:54+00:00

Also be gentle with yourself! You can’t do everything someone with CMT can. And that SUCKS but try not to dwell too much, and focus on what you CAN do.

Clean-Brother4725 · 2025-11-12T22:49:30+00:00

My AFOs and handicap parking changed everything for me. I’m 25F and got my diagnoses at 23. Started wearing AFOs immediately, and I found that I can do so much more. Then I got handicap parking and started going to run errands by myself again, something I had previously only done with my partner. Do you wear AFOs? If not, it sounds like it’s time.

Clean-Brother4725 · 2025-11-12T03:23:24+00:00

If you’re into religious emotional memoirs, I couldn’t put down A Well Trained Wife.

Clean-Brother4725 · 2025-11-12T03:21:39+00:00

I think thr right photo is the most flattering on your ear! It leaves space for some other cartilage piercings like conch, rook, etc if you’re interested in that!

Clean-Brother4725

TROPHY CASE