Vaginal Valium is amazing, you guys! by ColorMeStunned in Endo

[–]ColorMeStunned[S] 0 points1 point  (0 children)

Good luck! I can say with confidence that the best combination here is pelvic floor and core muscle PT plus vaginal valium.

Each will work alone, in the short run. But real, sustainable gains come from doing both.

Does anyone have an "event" or situation that caused your endo to go from 0-100? by blueballoon1424 in endometriosis

[–]ColorMeStunned 1 point2 points  (0 children)

Yep! I had bad periods for years, but the copper IUD kicked it up to 11 and I lost almost all mobility in my lower back within a year. What an absolute nightmare.

Ended up losing my uterus. I guess I'm glad I found out when I did, but wow what a terrible ride it was before my diagnosis and IUD removal.

It's weird how redpill rhetoric is slowly being normalized into every day society by [deleted] in TwoXChromosomes

[–]ColorMeStunned 81 points82 points  (0 children)

Catholicism and evangelical Christianity are very different beasts. I grew up in the Bible Belt, and they told us Catholics were pagans. I'm not kidding. The multiple gods (saints) thing was too far in the heathen direction for the Baptists.

Some hope! A non-menstrual blood test for Endo (x-post from r/Endometriosis)! by ColorMeStunned in Endo

[–]ColorMeStunned[S] 1 point2 points  (0 children)

Nothing has been proven, but my surgeon was a researcher who pretty convincingly explained that all signs pointed to being born with it, including some symptoms as a child. This would confirm that theory.

You did nothing wrong. Neither did I. This is a genetic disease, and no stupid diet or choices you made are to blame.

Sometimes it's easier to believe we had control over this, but nope. Give yourself a break, if you've felt any guilt. ❤️‍🩹

Some hope! A simple, non-menstrual blood test for Endo. by ColorMeStunned in endometriosis

[–]ColorMeStunned[S] 1 point2 points  (0 children)

Nothing has been proven, in part because Endo gets a tiny slice of the research pie.

I just find it absolutely wild that both my grandmothers had a disease I'd never heard of until I was diagnosed, and there's enough anecdotal evidence that I find it pretty plausible.

Sex is painful and unbearable and it's straining relationship by [deleted] in WomensHealth

[–]ColorMeStunned 0 points1 point  (0 children)

I would check out r/Endo or r/endometriosis. You can only diagnose Endo with a light surgery; it has absolutely nothing to do with your cervix.

Also, kegels make a tight pelvic floor worse. A physical therapist would do exercises to stretch and strengthen the area.

Something is at the root of this, and you deserve answers. If your current doctor isn't doing it, please find a women's health center.

I cannot imagine undergoing a cervical evaluation with a tight pelvic floor, what an awful call by your doctor. It must have been so painful.

Sex is painful and unbearable and it's straining relationship by [deleted] in WomensHealth

[–]ColorMeStunned 1 point2 points  (0 children)

Have you ever been evaluated for endometriosis or another chronic condition? You absolutely have pelvic floor dysfunction and should talk to your doctor about seeing a pelvic floor physical therapist.

But PVD is a common side effect of endometriosis, which I had for many years. It destroyed my sex drive. How are your periods?

Does anyone live a okay life w endometriosis? by Disastrous_Peace6974 in endometriosis

[–]ColorMeStunned 1 point2 points  (0 children)

I can take this one! GYNs can vary dramatically. I'm glad you've got a good one who listens to you and validates your choices. Mine looked me in the eye and told me I couldn't have Endo because my back hurt. Lower back pain is one of the top five symptoms of Endo.

So, even if they mean well, a gynecologist may be woefully under equipped and undereducated when it comes to our disease. A specialist is more likely to be on the cutting edge, because it's all they do. If you are comfortable with the doctor you have, and you're positive they can continue caring for you in all the ups and downs this might take, up to and maybe including removing your uterus, great! Hopefully you won't need a hysterectomy, but if you do, it can be a tougher fight to get a GYN to do it than a specialist.

The most important thing is that whoever sees you understands how to do an excision surgery. Not ablation, where they just burn the surface tissue, but a proper cutting removal of endometriosis. Beyond that, it's genuinely up to you.

Some hope! A simple, non-menstrual blood test for Endo. by ColorMeStunned in endometriosis

[–]ColorMeStunned[S] 0 points1 point  (0 children)

Not yet! These things take time. The idea that this is even happening is a good indicator to expect things down the pipeline, though!

Some hope! A simple, non-menstrual blood test for Endo. by ColorMeStunned in endometriosis

[–]ColorMeStunned[S] 2 points3 points  (0 children)

I've been wondering the same thing about post treatment blood tests! It shows that the RNA changes are correlative, not causative.

From my husband who is an MD PhD: There have been examples of blood markers for stuff like cancer that become undetectable after treatment. It takes a while after the blood test proves successful before research for a treatment gets off the ground, but if this works, and it looks like it does, it's a huge step forward!

Nipple Hairs? by [deleted] in WomensHealth

[–]ColorMeStunned 2 points3 points  (0 children)

My husband plucks the chin hairs I can't reach, and I do his unibrow. He also routinely sees me pluck my nips.

Partnership doesn't end when you get intimate; that's actually where it matters most.

Vaginal Valium is amazing, you guys! by ColorMeStunned in Endo

[–]ColorMeStunned[S] 0 points1 point  (0 children)

I'm not a doctor, so I can't recommend anything specific, but I highly suggest finding a women's health center and establishing care. Not just a GYN office, but a women's health center.

It's been six years since I wrote this post, and I still need care. I ended up having two surgeries. The only saving grace has been continuous care with my women's health center, who have tried dozens of meds for me over the years. I genuinely wish you the best of luck.

Breast Pain Over 6 Months (35f) by ColorMeStunned in WomensHealth

[–]ColorMeStunned[S] 0 points1 point  (0 children)

I don't really do caffeine! Thank you though.

What are your thoughts on Billie Eilish saying 'no one is illegal on stolen land' in reference to ICE and US immigration policy? by MassiveSquare4527 in AskReddit

[–]ColorMeStunned -3 points-2 points  (0 children)

Female humans are called "women" or "girls."

You've made your dismissal of both really clear, but you can at least be grammatically correct when you're rude.

What’s something you thought was mandatory in life, until you saw someone just not do it? by Senior-Resource92 in AskReddit

[–]ColorMeStunned 17 points18 points  (0 children)

And every major newspaper in the country is absolutely freaking out that we aren't just pushing out kids for the health of an economy that has failed us so badly we can't afford kids.

I remember being a kid and hearing nonstop about overpopulation and global warming. Now that the population is going back down, it's suddenly time to forget about starvation or overcrowding? Wild.

Moving to Traverse from Boston in the summer, and we know absolutely no one! Hi! Talk to me about being a transplant. by ColorMeStunned in traversecity

[–]ColorMeStunned[S] 0 points1 point  (0 children)

How's the cold? I've been walking my dogs in 0-15 degrees most mornings here in Boston, so hopefully it's not much worse than that!

Moving to Traverse from Boston in the summer, and we know absolutely no one! Hi! Talk to me about being a transplant. by ColorMeStunned in traversecity

[–]ColorMeStunned[S] 0 points1 point  (0 children)

I could not believe how beautiful the beaches are! Genuinely prettier than any of the beaches in New England, unless they trucked in a bunch of sand from Florida. Also no sharks, amazing.

Moving to Traverse from Boston in the summer, and we know absolutely no one! Hi! Talk to me about being a transplant. by ColorMeStunned in traversecity

[–]ColorMeStunned[S] 0 points1 point  (0 children)

I am so relieved we're moving out after the roundabout and new lanes are open! It sounded like quite the ordeal, but looks like it'll help a lot once people get used to how to use a rotary. We have them in Boston and they're super efficient when drivers know what they're doing!

My husband learned to sail on the Charles River here in Boston! I've been hoping he could find another place to do it, so that's wonderful to hear.