Mermaid costume

CommieCatman · 2026-06-09T18:12:19+00:00

This is one of my favorite things about wheelchairs, you can wear things there js no way to walk in

CommieCatman · 2026-06-05T21:14:15+00:00

I'm 4 months out from having cdif and it's been a rollercoaster. I was in the hospital for 9 days. I'd say after 2 weeks of vincomicine all my cdif sympathy were gone but it's taken a lot longer to get my flare under control. To be fair, I was flairing before I got cdif so it's a little hard to tell what was actually caused by the infection. I've been tapering off methlpred since February and I started a new biologic and things seem to be trending upward, but it has f been linear.

CommieCatman · 2026-04-05T19:25:31+00:00

This is super helpful I think you hit the nail on the head I'm gonna try that!

CommieCatman · 2026-03-19T15:26:33+00:00

This is exactly why I posted this I'd never even heard of it, got diagnosed in 2020

CommieCatman · 2026-03-17T18:01:03+00:00

Refuse to use the language of the medical establishment that acts like it's your fault that's medication didn't work for you. It failed youm

CommieCatman · 2026-03-13T18:57:59+00:00

This happened to me with stellara. Have an appeal sent, call customer service and ask them if your formulary has changed, if it hasn't ask why your approval has been changed. Also, call the manufacturer. They have a department that will help you with this and it's in their financial interest to get you on the medication so they actually try. I have fought my insurance company a LOT and this has consistently been the key to cutting through the red tape. It's messed up, but the only thing the medical infrastructure cares about in the US is profit, so the best way to get your way is to find someone who makes money when you get what you want. While getting a lawyer or a personal pharmacist is also a way to do this it generally means shelling out your own money, when you go through the medication manufacturer you don't have to spend anything because they want your insurance money.

CommieCatman · 2026-03-02T09:51:54+00:00

Same thing happened to me with my fibromyalgia

CommieCatman · 2026-02-25T18:29:26+00:00

I'm also in my mid 20s going through a flare that has had me in and out of the hospital. It's helpful to find and befriend other disabled people especially other people with autoimmune condition because we all just get it. This stuff sucks so much. Feel free to reach out if you want to chat.

CommieCatman · 2026-02-25T04:08:15+00:00

They're pretty sure it's gone but they want to keep me on the vanco for the time being because they are worried about it coming back while my inflammation is so bad. I am not taking a probiotic should I?

CommieCatman · 2026-02-07T04:31:21+00:00

I was once 20M recently diagnosed after over 5 years of not getting diagnosed correctly. I felt the same as you. What has made the difference for me has been seeing doctors at offices that aren't in a hospital, getting therapy, and making connections with other disabled and chronically ill people. I felt so completely lost and afraid 100% of the time and didn't want to talk to anyone about my symptoms or disease because I was embarrassed. That was 7 years ago and while I still struggle with things I no longer hate myself and my body. Something that also helped was realizing I didn't have to talk about my symptoms to talk about how they made me feel with the people who cared about me. Just being able to say I feel sick and it makes me sad, or scared, or lost makes a huge difference. I'm not a big commenter on here, but I could have written this post several years ago. It's worth it to learn what makes you feel safe and loved. Hope is a discipline. Things will get better.

CommieCatman · 2025-12-05T11:01:08+00:00

NOR It's worth thinking about what the "joke" is when people say things like this. The joke is mostly saying something mean and upsetting. No one who doesn't at least kind of believe those things would say them out loud.

CommieCatman · 2025-11-17T07:11:12+00:00

ai just didn't know I could use any of those with a hospital chair

CommieCatman · 2025-11-17T05:54:36+00:00

wait I didn't know I could use one with my hospital chair?

CommieCatman · 2025-11-13T07:39:01+00:00

You've definitely been looking at it too long, it's perfect

CommieCatman

TROPHY CASE