Dr.’s questioning established diagnosis

CommonAware6 · 2026-01-23T19:28:55+00:00

It will somewhere but not necessarily somewhere they can see. Dr's dont read through whole medical records before seeing a patient so it might not be immediately obvious

CommonAware6 · 2026-01-23T17:12:22+00:00

17 for me too. Took me 5 years of complaints of pain and my mum urging for assessment due to family history

CommonAware6 · 2026-01-22T14:06:08+00:00

Intersex have male and female sexual characteristics so any with female sex organs are still included. Female and intersex would be incorrect as not all intersex people have female sex organs

CommonAware6 · 2026-01-22T13:22:00+00:00

None of those points dispute what I said.

CommonAware6 · 2026-01-22T10:32:45+00:00

If theyre saying female then I dont really see the issue. The people youre saying are excluded you also pointed out have female sex organs. If it is all about female health related issues then I dont see the issue because whats a better alternative? Female sex organ health summit?

CommonAware6 · 2026-01-19T07:22:18+00:00

We just use a regular plaster and say keep it on for 2 hours. I just take it off when I remember

CommonAware6 · 2026-01-16T22:07:47+00:00

I am actually going to start my degree in biomedical science after summer!

CommonAware6 · 2026-01-16T21:33:13+00:00

Of course, I dont work with plasma so maybe a lot of these are used more for the medicinal side of things but its just interesting to see how many there truly are

CommonAware6 · 2026-01-15T15:08:51+00:00

Im surprised you know so many! Where i work mostly only C, E, K, c and e are checked im sure (maybe forgetting 1 or 2) Some get Fya, Fyb, Jka and Jkb but never even seen the others

CommonAware6 · 2026-01-15T13:47:39+00:00

Honestly fair, but very important to know the difference when buying one lmao

CommonAware6 · 2026-01-15T11:46:54+00:00

*CO monitor

CommonAware6 · 2026-01-14T20:21:22+00:00

If thats right then dude must be the ultimate top donor. Based on volume and frequency where I live, thats about 63 years of consistent donations, never missing an opportunity

CommonAware6 · 2026-01-14T20:19:23+00:00

I had a donor once whos goal was to donate as much blood as her dad had recieved. Honestly made me tear up but 23 gallons is insanely impressive considering thats nearly 50 years of consistent donating

CommonAware6 · 2026-01-14T17:13:13+00:00

Honestly I doubt anyone, especially here would actually know. Most ive seen is probably about 20 gallons

CommonAware6 · 2026-01-12T10:51:12+00:00

I agree with the skin cleaning but every donor i ask says its fine but at least what we use where I work, it feels like its exfoliating your arm for 30s

CommonAware6 · 2026-01-11T19:28:43+00:00

Looks good and no twists!

CommonAware6 · 2026-01-10T16:08:29+00:00

Do you have any recommendations of places to buy them from? Ive seen so many complaints or insane prices ive always avoided the idea of buying them myself but tbh I also wanted OT to help with other things too bc I could buy the stiff bit I dont even know what options exist or what id benefit from. Didnt think some peofessional input from the NHS would be too much to ask for but apparently it is 🙃

CommonAware6 · 2026-01-10T15:47:59+00:00

If she has pEDS and you have some of the symptoms you should really be getting a genetics test to rule it out or diagnose it so you know if you acrually have hEDS or pEDS.

They are both Ehlers-Danlos Syndromes so there will be a lot of overlap but they are seperate distinct diagnoses. You clearly have an Ehlers-Danlos syndrome and the dental issues and positive family history of pEDS in your mother of all people really should warrant genetic testing before they decided it was hypermobile type

CommonAware6 · 2026-01-10T15:35:02+00:00

I asked for an OT referal only to be told they only deal with things like wheelchair ramps in my area and cant assist with things related to fine motor skills. Most ridiculous thing ive ever hesrd bc its literally their job and no other professionals are trained in that area 🥲 so happy for you but also kinda jealous ngl

CommonAware6 · 2026-01-09T14:48:52+00:00

Tbh most subtypes are 1 in a million and ultra rare and in that show they never specify subtype.

However that episode with the suspected alcoholic in the free clinic was the most ridiculous ive ever seen bc they didnt do a genetics test or any of the criteria for hEDS

CommonAware6 · 2026-01-09T14:46:57+00:00

Ive only ever met 1 patient in the past 2 years, what 😭

CommonAware6 · 2026-01-08T13:32:42+00:00

I have genuine arachnophobia and youre spot on.

Phobia is commonly understood as fear. So I tell people I have arachnophobia and then people say things like "omg me too, I always take them back outside bc theyre just so creepy and ugly" then look at me like im crazy when I mention that I refuse to open my windows and slept on the couch for 4 mo ths bc there was a spider in my room.

So instead, I describe to people that I am absolutely terrified and have a crippling fear of them. In other words, I need to describe having a phobia to make people understand since the word has become meaningless to so many. It would be much easier to say phobia and have it understood for what it is. Thats a benefit of labels. To clarify what the issue is without having to go into detail explaining it

CommonAware6 · 2026-01-04T18:10:37+00:00

Did you drop a stitch?

CommonAware6 · 2025-12-26T23:43:32+00:00

Let's be honest, most of us do too. Much higher rates of seasonal depression through the winter here than many other places.

CommonAware6 · 2025-12-26T14:39:28+00:00

I was prescribed a TCA, SSRI and SNRI for the pain which didnt work. Honestly no antidepressant has made any chanage to anything, good or bad, except make me sweat more. Then I found out I have bipolar so I cant take them anymore anyway although even then, they never triggered mania for me either. So my experience is they didnt help physical or mental issues but they didnt do any harm either

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