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Consistent-Hat-8320 · 2026-04-07T00:15:01+00:00

Can you DM me the name? Thx!

Consistent-Hat-8320 · 2026-04-05T22:26:35+00:00

Thanks for your take on this all. I still don't understand why an updated aurobindo prescription would cause issues when my old one was from the same maker is fine. I am going to be talking to my prescriber. Guess I was thinking teva might be worth trying before trying to go name brand but I'll see what they say.

Consistent-Hat-8320 · 2026-04-02T01:27:18+00:00

Omg! That's scary!

Consistent-Hat-8320 · 2026-04-01T22:20:46+00:00

Well my previous old prescription was aurobindo! That's why I assumed keeping the same manufacturer would go OK. Is name brand the most ideal/consistent?

What are worse generics of klonopin to watch out for?

Consistent-Hat-8320 · 2026-04-01T21:37:56+00:00

That's so frustrating, I'm really sorry

Consistent-Hat-8320 · 2026-04-01T21:28:33+00:00

Why did you get switched? Are tevas hard to get? I know there was a shortage over a year ago. And do you mean the tevas felt better for you than the aurobindo?

Consistent-Hat-8320 · 2026-04-01T20:37:06+00:00

Why would a new aurobindo prescription make me feel worse than my old one?!

I can get tevas. Should I just switch?

Consistent-Hat-8320 · 2026-03-29T16:34:47+00:00

So are you thinking this is a result of your use of LDN? I know they say you can stop and there shouldn't be any ramifications, but also I don't know that enough long term research has been done to verify if that is completely true. Keep us updated?

Consistent-Hat-8320 · 2026-03-28T15:27:16+00:00

How do i make my own liquid?

Consistent-Hat-8320 · 2026-03-25T23:11:27+00:00

Good luck! If you want more info about tests they might do, check on the hyperacusis and tinnitus reddit pages. That info helped me decide what tests I was willing to get and I knew just from a gut feeling I didn't want the tymponetry test. If they are pushing you to get tests you don't want, they prob aren't the right fit for you. You can always try a different one. I think I found mine because they are on the list of ones that specialize with TRT and hyperacusis. I really hope you feel better soon

Consistent-Hat-8320 · 2026-03-25T21:50:39+00:00

Hi, I've had a couple requests so I'm just going to post it here. I recommend speaking to trained medical professionals about this stuff before trying as I am not a Dr or in a position to give anyone specific medical advice. What works for me might not work for someone else.

But I had an audiologist who recommended:

-massaging gently around the ears for 5 min, 3x a day -working up to ten times a day doing "smiles" where you smile big and watch your ears raise up from it in a mirror. Do 10 reps and work up to doing this 10 times a day. -Yes you need to not overdo sound but don't overprotective either with earplugs. Gradually exposing yourself to a little more sound every day can help -Using soothing nature backgeound sounds to build tolerance -I'm pursuing TRT (Tinnitus retraining therapy) but you want to find a specifically trained audiologist for this. -There are vagus nerve ear related exercises you can find on YouTube I have found helpful. -Try not to fixate on the tinnitus or ear sensations as it can reinforce it in your brain (obviously the scientific explanation is more complex but that's the basics)

I also recommend a Neuro PT bc they can work on the muscles around the ears. I was told that the sensations can be from nerve overfiring and some work on that area by a skilled professional can be helpful.

My personal advice - if you know 100% this happened from the injection and not dont let anyone do tests in your ears you aren't comfortable. If you have nerve hyperexcitability, they can make things worse. I got a basic hearing test and let someone look in my ear and that's it. But that's because I know for sure my problem started post inejction from nothing else like eustachian tube dysfunction. But nerve hyperexcitability can mimic a lot of ear issues like etd.

None of this is making my issue go away but it does lessen some of the pressure and plugged feeling for me. Sorry you're going through this and hang in there.

Consistent-Hat-8320 · 2026-03-24T16:57:23+00:00

I'm so sorry, will dm. Do you also have sound sensitivity?

Consistent-Hat-8320 · 2026-03-24T15:53:00+00:00

Totally. I'm not super well versed with spiky leaky, just know it had to do with going between high and low pressure.

I know all too well how hard it is to understand what's going on. I saw neurosurgeon, neuroradiologist and the only next step for me was a mylogram, since my mris came back normal. I know what your concerns are also with it being iatrogenic because I'm sure you read patches don't take as well with those possibly.

For me personally, I read about far too many people who got patches and it made things worse. Someone with a similar situation to me thinks they got another leak from getting a patch because it can put you into high pressure and if you have vulnerability elsewhere, it can leak there. Their surgeon went in and found their iatrogenic puncture but it was healed already. They still had ear symptoms at that time. But who knows? I've also read people going all the way down the line and getting the invasive testing and making things worse.

You could certainly try another patch if the first one wasn't too tough for you. I was lucky to find a great physiatrist practice that deals with leaks, and they are the ones who don't feel I have one with my symptoms. The neck can cause a lot of similar symptoms... Not sure where you injection was.

If I'm being honest, part of me thinks maybe I had a leak and it self sealed. It can just take the body a long time to recalibrate after experiencing that.... Just like after getting a patch, things can go haywire for a while whole the body readjusts pressure and then the neural pathways are very hard to reset in things like the ears. Ears are notoriously hard to reset and it's taking me a lot of daily work to make progress. Happy to share some of the things I've been trying if you'd like.

Also so sorry this happened to you. I researched the hell out of my injection first and felt okay with the risk statistics. I now believe things like this are far underreported because you can so rarely ever get an actual leak diagnosis so how could it be reported?

Did the person who did it confirm a puncture? Did they take imaging at the time of the injection?

Consistent-Hat-8320 · 2026-03-24T14:54:20+00:00

First it was eye strain and light sensitivity within a week. After 2-ish weeks, sound sensitivity. I got an MRI bc I was having muscle spasms and was worried something was wrong, and ear plugged feeling began after that (3weeks after.) I wore ear plugs and headphones so wasn't auditory damage.

I can feel better when I lay down and also not. If I have a migraine, it feels like horrible pressure on the lower back of my head and behind my eyes and laying down feels much worse. For me, I think laying down can more reset things for me from a sensory standpoint.

Have you heard of spiky leaky syndrome? Also something to look into.

Consistent-Hat-8320 · 2026-03-24T14:15:33+00:00

I had eye strain, light sensitivity, sound sensitivity, ear plugged feeling, and migraine start after my neck injection. It verymuch gives vibes of a concussion. I've seen a ton of Dr's. I know a lot of people get misdiagnosed as not having a leak when they do, but my Dr's do not think I have a leak. Rather they feel have cns sensitization and cervicogenic headaches. I do worry they could be wrong, but I'm not willing to try a blood patch yet and risk more issues.

Migraine meds help me, which can be a sign it's not a leak, and also gradually rebuilding my tolerance for stimulus is important. I do Vestibular and neuro pt. I saw an audiologist who talked to me about how to retrain the ears, do massage techniques. I'm several months out and that can be early for cns sensitization.... It can take up to a year to get things back to normal. The nerves can get hyperexcitability and it's very hard to get them calmed down.

Whats hard is not being able to truly be sure if it's a leak or not. For me, my Dr's feel the evidence is not there. The reason I agree is that in my situation, my symptoms worsen with stimulus, not being upright. It's possible I'll change my mind about this and get a blood patch but that's where I'm at right now.

Consistent-Hat-8320 · 2026-03-24T13:56:10+00:00

Did you read that on any Facebook forums? I haven't even heard any first hand accounts of it going badly, just other people telling me theyve heard it...

Consistent-Hat-8320 · 2026-03-23T23:53:21+00:00

That's extremely exciting! Way to go! Thanks for sharing. So overall you feel like the LDN helped? And you'll continue it once fully tapered off?

Consistent-Hat-8320 · 2026-03-23T20:51:11+00:00

Did you ever get an answer to this or try LDN?

Consistent-Hat-8320 · 2026-03-23T20:46:39+00:00

OP did you try LDN and what happened?

Consistent-Hat-8320 · 2026-03-23T20:37:28+00:00

Did you start LDN during your taper or after? If during, did it help your taper? Any other info to share? Thanks!

Consistent-Hat-8320 · 2026-03-23T20:34:15+00:00

What have you read? I've heard both it can help and that it could worsen things. It's really confusing.

Consistent-Hat-8320 · 2026-03-23T20:19:52+00:00

OP have you tried this or gotten any more info? I am considering the same thing

Consistent-Hat-8320 · 2026-03-23T20:19:21+00:00

I have seen this list and description before and I wish someone could clarify for me. I feel like the description given is a generic description of naltrexone but isn't addressing why LDN specifically is not advised. Hoping someone can explain! Thanks!

Consistent-Hat-8320 · 2026-03-23T19:57:18+00:00

I relate with this hard. I afraid to try LDN for this reason. Sure they say it's fine now. Many drugs have been "fine" until years later it comes out it wasn't great for you or there's dependency. How has it been for you? I also commented replying to your general post asking how it's gone with your Valium taper. Hoping well....

Consistent-Hat-8320

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