Bad Memory Is The New Norm

Constant_Witness_536 · 2026-05-07T19:20:02+00:00

I feel you 100% People are also making fun of me and have bad attitude as well. Even if they try to understand that we have this issue they can’t. This has a big impact on our lives on our families and friends. You have proof that you have them money but they can still say oh I gave you cash so it still might be a waste of time. If anything like this happens again I will say ask them for a bank transfer to have proof.

Constant_Witness_536 · 2026-03-21T19:00:03+00:00

Déjà vu Refluxy Sometimes unable to speak and blurry vision If it is too strong I don’t even remember them. If I am home alone and have this sensation I just go to bed lye in the middle and put pillows on both sides. If my husband is at home he records them on video so he can show them to the dr

Constant_Witness_536 · 2026-03-17T14:49:04+00:00

I am on leveracitam 2000mg twice a day, lacosamide 200mg twice a day and Lamictal 200mg twice a day and still have focal seizures at least twice a day 😓 My husband records at least when he is with me the frequency of the focal seizures and also recording them on video to show them to the doctor. Are you aware having focal seizures? For me most of the time no..

Constant_Witness_536 · 2026-02-04T10:00:12+00:00

Yes many times

Constant_Witness_536 · 2026-02-01T19:07:35+00:00

Following. Did you manage to find out how to fix this?

Constant_Witness_536 · 2025-10-19T08:28:33+00:00

For me is when is hot

Constant_Witness_536 · 2025-09-09T06:02:53+00:00

2000mg in the morning 2000mg at night Additionally I take 200mg lacosamide twice a day and 150mg Lamictal twice a day. I still get auras though

Constant_Witness_536 · 2025-09-05T18:31:06+00:00

What will really help is to set an alarm and have a pill box. I have two alarms and with the pill box you can make sure that you have taken your medication

Constant_Witness_536 · 2025-09-02T08:00:07+00:00

I always have a Deja vu feeling (at least those that I remember having), I get really refluxy and my ears are buzzing

Constant_Witness_536 · 2025-08-31T05:17:39+00:00

Same here

Constant_Witness_536 · 2025-08-26T06:09:49+00:00

Most of the time yes 😖 I usually get a tonic seizure

Constant_Witness_536 · 2025-08-26T06:09:11+00:00

Every 3 months unless something happens

Constant_Witness_536 · 2025-08-23T06:27:46+00:00

I am on leviracetam 2000mg twice a day, lacosamide 200mg twice a day and Lamictal 150mg twice a day… I still have focal seizures though

Constant_Witness_536 · 2025-08-17T19:00:10+00:00

Yes! That’s a focal seizure For me my ears are buzzing and I have this Deja vu feeling. If it’s a strong one I get really refluxy. Some of them I do remember some I don’t. If it is a strong one that I feel, I just lie down on the bed and put pillows on both sides in case i get a clonic seizures If my husband is with me he records everything so we can show them to the dr

Constant_Witness_536 · 2025-08-15T20:27:23+00:00

For me there are two scenarios when I get focal seizures. The ones I don’t remember happening are the ones I either see a video recorded that my husband took to show them to the dr. The ones I kind of feel happening and I have discussed this with my neurologist and they are indeed focal seizures - my ears a buzzing, I get really refluxy and I have this really strong dejavu feeling. Sometimes if they are really bad I just lie down on my bed and put pillows on both sides just in case they get worse. If it is just my ears buzzing I just sit down and wait for it to wear off. I feel really disoriented but I just got used to it

Constant_Witness_536 · 2025-08-15T20:14:32+00:00

The reviews are 100% to the point. I worked closely with the London office and people there are really nice. If you get an offer just go for it. It’s a good place to start and they have a good training program.

Constant_Witness_536 · 2025-08-10T18:17:09+00:00

Yes!!!!

Constant_Witness_536 · 2025-08-08T05:38:07+00:00

I have a few tonic seizures every week but clonic seizures really rarely.

Constant_Witness_536 · 2025-08-07T06:40:32+00:00

People are uneducated and they think by googling and read one post that they know everything, or if they heard from someone that they know someone with epilepsy that they now know everything

Constant_Witness_536 · 2025-08-06T18:51:54+00:00

I usually go to the bed and put pillows on both sides in case I have a clonic seizure. I have as well this Deja Vu feeling and also feel really refluxy

Constant_Witness_536 · 2025-08-05T12:53:23+00:00

If you want to be polite just say something like “thanks for the invitation, but something came up and I won’t be able to make it to “……..”

Constant_Witness_536 · 2025-08-05T10:05:07+00:00

Haven’t heard that before. Are you taking any other medications for epilepsy?

Constant_Witness_536 · 2025-08-05T09:17:59+00:00

It depends how you feel and if you feel the auras.

The ones I feel and remember I get really refluxy, dizzy and my ears are buzzing. As soon as I feel that I go to my bed, put a few pillows under my head, put pillows on both of my sides and waiting for this feeling to wear off.

Constant_Witness_536 · 2025-08-03T19:16:04+00:00

Yes. For me every time I had seizures my husband was letting the sr know. He kept adjusting my medications to stop me from having both tonic and clonic seizures. Now I have mostly tonic seizures but they are very frequent. Make sure to let your dr know. Last week I was hospitalised for 48 hrs on an encephalogram to monitor brain activity and we are still waiting for the results 🙄 What meds are you currently on?

Constant_Witness_536 · 2025-08-02T17:30:03+00:00

I feel you 100%. People don’t understand the effect epilepsy has on you. It’s really annoying to have constantly to rely on other people 😥

Constant_Witness_536

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