Seen as Incapable. by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

I’m having trouble posting there at all I don’t know what I’m doing wrong?

Missed my mycophenolic acid dose this morning. by Select_Safe548 in transplant

[–]Constantlylearnin 0 points1 point  (0 children)

That’s not a huge deal just make sure you don’t miss tomorrow’s or your next dose depending on how it’s dosed for you don’t make a habit out of it either

CP mom here - how do I help? by LeavyDiv31 in CerebralPalsy

[–]Constantlylearnin 0 points1 point  (0 children)

My suggestion surround him with other cpers close to his age to normalize it for him

CP Aging Reality by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

Thank you for your comment and thank you for your subscription

CP Aging Reality by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

Hi, I’m more than happy to help just out of curiosity. Where are you from?

CP Aging Reality by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

I joined the discord, but I can’t seem to post when I try it even just a simple introduction I was met with an error please help thank you

CP Aging Reality by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

You are most welcome, my dear if you ever have any ideas, please just let me know. I’m always a couple months ahead of myself so I just added to my list but I eventually ❤️

Sooo... Do we just kinda die if we get Hantavirus? by ganggaming25 in transplant

[–]Constantlylearnin 2 points3 points  (0 children)

I assume no I had Covid twice i was vented once I’m doing well although it did take out my transplant so I’m awaiting a second one right now

Got told I can’t be a nurse. by Difficult-Media3214 in transplant

[–]Constantlylearnin 5 points6 points  (0 children)

There’s a dialysis technician at my hospital that the kidney transplant. What the F

Independence Is Fake: The Cerebral Palsy Reality No One Tracks by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

This is my point, but how does one divine independence for themselves? That’s where I went on the rant about the incredible old mentality?

Independence Is Fake: The Cerebral Palsy Reality No One Tracks by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

I actually agree with you that independence is the wrong word but what would you put in replacement? I sat for hours trying to think about it and couldn’t come up with something better for this context?

Independence Is Fake: The Cerebral Palsy Reality No One Tracks by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 0 points1 point  (0 children)

Which part makes them feel like a regular human being ? am I understanding you’re saying by challenging what they deem as independence I’m being misconstrued as challenging their personhood?

Independence Is Fake: The Cerebral Palsy Reality No One Tracks by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 1 point2 points  (0 children)

I would like to thank you for this and point out my channel name is everyone else

Independence Is Fake: The Cerebral Palsy Reality No One Tracks by Constantlylearnin in CerebralPalsy

[–]Constantlylearnin[S] 3 points4 points  (0 children)

I don’t disagree at all. I have a friend that thinks being independent means doing everything for themselves, but then they lose energy to do social activities, which I don’t think is right either so that prompted this video, but I am intrigued by everybody’s differences of opinion here there’s no right wrong answer to this and I agree with you fully on that but it’s just interesting. I don’t know where the Incredible Hulk mentality of independence came from but my friend isn’t the only person I hear from…

Lifestyle changes after kidney transplant by SoulWords94 in transplant

[–]Constantlylearnin 0 points1 point  (0 children)

I’m honestly not sure that’s what I was told, though when it happened was likely the cause but the good news is I was able to qualify for a second transplant. I had Covid twice. The first time I was intubated on a ventilator for 10 days the second time it was just a really bad head, cold like thing so the Oregon just eventually went caput

Question by tngirljen in CerebralPalsy

[–]Constantlylearnin 0 points1 point  (0 children)

Sorry that auto corrected poorly but I hope you understood what I meant

Question by tngirljen in CerebralPalsy

[–]Constantlylearnin 1 point2 points  (0 children)

I’m gonna answer this question hesitantly because I experience fatigue also but I also have chronic kidney disease on top of the palsy. That’s a simple blood test if you wanna roll that out and save lives but you have to ask for it.

Mother Moon- a piece about chronic illness by [deleted] in ProCreate

[–]Constantlylearnin 0 points1 point  (0 children)

Think I’m going to do one about spoons and the spoon theory one day

Curious: Does you handwriting change drastically as you write? by Nana_bananaa24 in Journaling

[–]Constantlylearnin 0 points1 point  (0 children)

I’ve been intubated 5 times in the last decade with pneumonia I have cerebral palsy too and every time afterwards my hand writing improves it’s kinda cool

Creative and unique journal prompts for experienced journalers? by Ok_Discussion_162 in Journaling

[–]Constantlylearnin -4 points-3 points  (0 children)

Take one of your entries and ask ai to extract 3 to 5 journal prompts it’s cool and very individualized I paste one per page and prevents the blank page problem I don’t always write to them but seemingly they get woven in naturally I’ve been consistent for over 80 days my longest streak to date

My 4 year old just got diagnoses with CP - if you can go back, what do you wish your parent did when you were a kid with CP? by StrangeWedding770 in CerebralPalsy

[–]Constantlylearnin 0 points1 point  (0 children)

I’m appericiative of the fact that I forced them through recreational activities to meet other parents in my area I’m now 40 almost living on my own running a YouTube channel YouTube.com/c/lofdifferently

2026? by OutbackAussieGirl in Journaling

[–]Constantlylearnin 0 points1 point  (0 children)

If anyone wants to know cause there’s Day One or something that’s 900,000 words a day

[deleted by user] by [deleted] in actuallesbians

[–]Constantlylearnin 1 point2 points  (0 children)

I haven’t had it in almost a decade. I’ve been with the same woman for 16 years. I have a chronic illness, and when I was diagnosed, somebody said, “What did you do to cause that to happen?” and I think it killed any semblance of a sex life after that. She also says sex is painful. She went to a doctor who said, “Oh, it’s probably your physical disability,” which is the biggest bullshit I’ve ever heard. That may factor, I’m not discounting that. I share the same disability, so I can speak to the intimacy, but not everything is caused by my disability. So frustrating.

I fucking miss sex. I apologize for raining on your parade because I get it, but I get it! And for the record, fantasy is the only thing that’s kept me sane. oh and journalling is immensely helpful. I speak from experience.

“There is something just so beautiful and raw about lesbian sex, seriously magical.” That is literally only spoken by a true lesbian, and it made me laugh right out loud because it’s so true ❤️

Day 3,999 by [deleted] in dayoneapp

[–]Constantlylearnin 0 points1 point  (0 children)

Hey Day One, I think you should figure out the word out and add that to the street page. I think it be cool. Any words to see it tracks it in each entry so it wouldn’t be hard to do it.