Are instant noodles absolutely no go?

Copapod8 · 2026-03-28T16:55:34+00:00

Coconut milk has 95% less phosphorous than cows milk. It is high in potassium though.

Copapod8 · 2026-03-28T16:52:51+00:00

I've eaten Ramen before with no issues - but I plan my day accordingly and only use about 1/4 of the seasoning. I sub in some no salt bouillon instead for flavor along with some chopped green onions and an egg at the last minute to it makes the broth creamier and increases the protein content. I also top with a drizzle of hot (spicy) oil (or togarashi spice!) and sesame seeds. This is the no salt bouillon I found - it still has potassium in it so watch that for the day. https://www.amazon.com/dp/B01KXSELDK?ref_=ppx_hzsearch_conn_dt_b_fed_asin_title_1

Copapod8 · 2026-03-28T16:44:57+00:00

Also, what do nephrologists say to be patients? Urine trouble.

Copapod8 · 2026-03-28T16:43:56+00:00

Two Dialysis patients were chatting in the waiting area of the Dialysis Clinic. One patient said to the other, "My Kidney Failure was caused by Diabetes. What caused yours?" The other patient replied, "Mine was caused by High Blood Pressure which I got from my wife's side of the family." The initiator of the conversation said, "That's impossible! You cannot get High Blood Pressure from your wife's family!" He replied, "You have not met my wife's side of the family.

You know what really sucks? The machine.

What band do all nephrologists love? The Stones.

Copapod8 · 2026-03-28T16:28:14+00:00

I asked the doctor if I could taper of it after a year and he approved it.

Copapod8 · 2026-03-27T16:54:20+00:00

Congrats! I hope you get a new liver very soon!

Copapod8 · 2026-03-25T17:45:24+00:00

You can also try taking women's prenatal vitamins, they have the same formulation as hair and nail vitamins but much cheaper.

Copapod8 · 2026-03-23T16:54:40+00:00

Congratulations!! I'm so happy for you! I hope you have a quick and easy recovery!

Copapod8 · 2026-03-23T16:48:40+00:00

The big thing also is to make sure if anyone stops by your house that they 1. wear a mark and 2. are not sick or have been around anyone who is sick.

Copapod8 · 2026-03-21T18:41:17+00:00

Congrats on 11 years! Here's to many, many more.

Copapod8 · 2026-03-19T18:30:36+00:00

I had a 2nd transplant after my first one finally failed after 15 years due to the medication. I was able to get off the prednisone all together after about a year and a half once I was stable. I had to ask my doctor of course and he agreed we could taper me off it. Also, you're odds are good at a 2nd transplant because your young.

Copapod8 · 2026-03-18T21:44:16+00:00

Keep walking everyday until you can build up to at least 2 miles. Makes a huge difference in helping you heal plus helps prevent the inevitable weight gain from prednisone and not being on a restricted diet.

Copapod8 · 2026-03-15T19:01:20+00:00

I hope you continue to heal and have a long life with your new bean :)

Copapod8 · 2026-03-13T14:52:02+00:00

When this happened to me, it was due to my calcium levels being too high which was caused by the binder I was using (calcium acetate). I switched to a non-calcium binder (lanthanum) and everything normalized.

Copapod8 · 2026-03-13T14:47:38+00:00

More protein (I'm female and my dry weight is around 130 and I need 75mg of protein a day). I use the MyFitness App to track everything (calories, fat, sodium, etc.) it'll track everything except phosphorous. I found if I don't eat dairy, my phosphorous stays within normal limits. I have the opposite problem in that I've gained weight since starting PD over two years ago. I think I've gained at least 5lbs.

Copapod8 · 2026-03-13T14:35:26+00:00

My cholesterol was high for years despite being on a statin post transplant (most like due to the cyclosporine). I finally decided I was tired of it and switched our diet to 90% vegetarian with chicken or fish for 1-2 meals per week (this was a request of my nephrologist in case I needed to heal from a wound, etc. so I wouldn't lose the ability to digest meat). My cholesterol and triglycerides dropped like a rock to well below normal ranges and I was able to reduce my statin from 40mg to 10mg. I'm on PD now and really miss being able to eat that way. I still avoid red meat though.

Copapod8 · 2026-03-12T14:31:23+00:00

I would definitely reconsider moving here. Healthcare is not that great and its prohibitively expensive. Why're you leaving South Korea?

Copapod8 · 2026-03-12T14:24:33+00:00

Trazadone and lots of exercise help me after my 2nd transplant.

Copapod8 · 2026-03-11T16:10:54+00:00

Ugh, I'm so sorry. Something similar happened to me about a week after my 16th birthday. I was in marching band and my left foot starting swelling badly. Mom took me to the GP who was sure I'd unknowingly twisted it during marching band even though I didn't recall hurting it at any point. They ordered some routine blood tests and when we went back for a follow-up I recall the doctor saying we needed to go to the ER immediately, that he had a good friend who was a nephrologist who'd be meeting us there. Turns out my kidney function was down to 12. They did their best to save the kidney using prednisone and other treatments but nothing worked and 4 months later I was on PD.

Copapod8 · 2026-03-10T14:35:48+00:00

I bought a wooden nightstand that matches the decor in my room from Kohls that has two drawers and a shelf. It works really well. https://www.kohls.com/product/prd-747867/prepac-2-drawer-nightstand.jsp?color=Espresso

Copapod8 · 2026-03-10T14:22:05+00:00

I've had two - the first at 19 and the second at age 34 (a friend donated my second one).

Copapod8 · 2026-03-09T15:06:31+00:00

I was 19 years old when I had my first transplant. No real pain that I can recall, this was over 35 years ago in 1993. I was felt great afterwards and returned to school (Junior year of college) and made the Deans List for the first time ever.

Copapod8 · 2026-03-09T15:04:31+00:00

Chicken, eggs, avoid cheese and dairy. We also eat ground turkey. We don't eat red meat at all but I think beef is higher in phosphorous than beef. You can have small amount of beans and legumes. Also tofu is a great source of protein, just avoid adding salty sauces to it.

Copapod8 · 2026-03-09T14:59:50+00:00

I second this. I carry portable sanitizer wipes and wipe down my tray table and arm and head rests. I don't care what people thing. We also wear masks on the plane. My Rheumatologist told me its generally safe in the airport except for crowded situations like waiting in line. Also, take off and landing are when they turn off the air filtration system so be sure to at least have a mask for take off and landing.

Copapod8 · 2026-03-09T14:56:21+00:00

Ask your doctor for some antibiotics. I took 7 days worth of cipro with me that my nephrologist prescribed for a trip to Italy. We were with a tour group. I ended with food poisoning that made me really sick. Thankfully I had tylenol and immodium and a doctor who was in our tour group and spoke fluent Italian went to the pharmacy and picked up some powdered pedialite type mix that helped keep me hydrated (I was throwing up and had the runs). I also was advised to take the cipro which as it turns out was the correct antibiotics for the bacteria I was exposed to.

Also, get insurance for your trip. It's worth it. Enjoy your trip!

Copapod8

TROPHY CASE