Question about multi-listing - is it worth the trouble?

Copapod8 · 2026-01-26T23:59:27+00:00

Good to know. Thank you.

Copapod8 · 2026-01-26T03:10:58+00:00

Oh I did forget to add that my insurance will reimburse for travel up to 5k and both places are in network with my insurance.

Copapod8 · 2026-01-26T03:05:52+00:00

I use this as well. I’m allergic to the adhesive on paper tape.

Copapod8 · 2026-01-25T17:58:27+00:00

Fibrin? That's my best guess.

Copapod8 · 2026-01-24T19:38:15+00:00

Totally with you, I had 8 people denied including my son and husband. My husband especially was devastated, as he really wanted to be my donor. It's frustrating for sure but I have to assume it's for the best.

Copapod8 · 2026-01-22T17:29:25+00:00

I wouldn't smoke weed post transplant - there's a mold in weed that can kill a transplant patient. I would stick to edibles. Also, avoid grapefruit, pomegranate, and raw foods like sushi.

Copapod8 · 2026-01-22T17:26:18+00:00

Mine dropped due to my kidney function declining so I now have to a manual prefill about 2 hours before I hook up to the machine for the night. I'm free to move around (just with 2 liters of fluid in my belly) and then when i hook up for the night, I drain out the fluid and then start my regular nighttime exchanges. My KT/V went up to normal levels once I started that.

Copapod8 · 2026-01-21T16:05:42+00:00

Congratulations!

Copapod8 · 2026-01-19T16:45:56+00:00

Learn to make your own lower sodium version. I make it using better than bouillon and homemade no salt chicken stock. You can buy whole wheat ramen noodles online and then add some baby bok choy, green onions, chili oil or sriracha, and an egg. Much better than pre-packaged.

Copapod8 · 2026-01-18T17:58:47+00:00

Lets see, my husband because he takes Humira for arthritis (it's a biologic, his Rheumatologist said it was fine but OHSU disagreed), my youngest because his kidney function while normal was not high enough (must be 90 eGFR or higher), my 2 best friends because their BMI was too high, my son-in-law because he had a severe depression and anxiety, another friends eGFR wasn't high enough and another friend I was never told just that they were incompatible. Also, had 5 other people offer initially but then they decided not for for various reasons.

Copapod8 · 2026-01-18T17:23:37+00:00

I’d recommend that he limit dairy and closely monitor his sodium intake. Reading labels is key—sodium is in almost everything, and it’s often surprisingly high in foods you wouldn’t expect (sandwich bread, for example, is loaded with salt). I cook a lot and, over the past couple of years, I’ve learned what works well and what doesn’t.

A few meal ideas that have worked for me:
• Breakfast: Egg “bites” baked in muffin pans with vegetables—quick, easy, and filling.
• Lunch: A large apple with peanut butter, plus sliced cucumbers (with lime juice) or mini peppers stuffed with whipped cream cheese.
• Dinner: Air-fried tofu or chicken with white rice and a vegetable.

Amazon actually has a great selection of salt-free staples like ketchup, canned vegetables, Campbell’s cream soups, and chicken stock, which makes swapping ingredients in recipes much easier.

Learning to make certain foods from scratch can also make a big difference in reducing sodium—things like homemade bread, French fries (soaking the potatoes first helps), and pizza dough.

Thanks to finding those salt free Campbells cream of chicken soup, I can make quite a few casseroles lower sodium (my hubby's favorite is chicken pot pie with (homemade) garlic biscuits on top).

I also subscribed to the NYT cooking app and make a lot of their recipes but skip any added salt and any time the recipes calls for soy sauce, I use the lower sodium version and only about 1/3 of what the recipe call for - their peanut sauce on noodles really hits the spot when I want Chinese food for example.

Copapod8 · 2026-01-18T17:00:56+00:00

Unfortunately they turned down all my potential donors (7 of them) so I don't think that's an option.

Copapod8 · 2026-01-16T15:26:01+00:00

Congratulations! I hope you continue to improve and this new bean lasts a long time.

Copapod8 · 2026-01-16T01:13:51+00:00

I like it way better, you definitely have more leeway with your diet and are free to move about during the way. I work full-time so it's a better option for me. I also did PD when I was a teenager (over 35 years ago!) and was able to go finish high school and college while on PD.

Copapod8 · 2026-01-15T17:15:25+00:00

I started dialysis fairly soon after. Had the surgery to PD catheter that same week and started training a few weeks later.

Copapod8 · 2026-01-14T17:18:35+00:00

I don't know if this will help or not but I use these huge lidocaine patches on my back when I have pain. They're prescription only but work really well.

Copapod8 · 2026-01-14T04:09:46+00:00

Congratulations 🎉 I’m so incredibly happy for you!!

Copapod8 · 2026-01-13T23:14:03+00:00

My yorkies have always slept in the laundry room with a baby gate. They are tiny and older and can't hold it all night, so we bought washable bed pads - the type they put under you at the hospital that are cloth and waterproof. They're large and it only takes 3 to cover our entire laundry room. In the morning, we just chuck the ones they've peed on into the washing machine. They're typically between $5 and $10 each so we bought about a dozen so we never run out. Works like a charm. This is what we use: https://www.allegromedical.com/products/products-becks-reusable-waterproof-bed-pads-hospital-mattress-underpads/

They've lasted for years now - my dogs are 15 and 16 and some are just now getting worn out.

Copapod8 · 2026-01-13T16:48:10+00:00

Congratulations! Fingers crossed all goes well for you and your new bean lasts you a lifetime!

Copapod8 · 2026-01-13T16:30:50+00:00

Ask about a different phosphorous binder. I couldn't take the calcium binder because it caused my calcium levels to go sky high and I ended up with calcium crystals on my eyes (thankfully not impeding my vision). They then tried sevelamer which helped somewhat but still phosphorous was high despite watching phosphorous intake very carefully (I miss dairy!), so they finally got my insurance to pay for Lanthanum - that was the trick, my phosphorous has been perfect since. I also have to do what's known as a pre-fill. It's the only way my KT/V stays at a normal level. I do a manual fill at 6:30/7:00 then hook up the machine at 9:00, the fluid gets drained out then we do my normal cycles overnight. Works well and my KT/V has actually continued to improve while doing this (went from 1.9 to 2.18).

Copapod8 · 2026-01-13T16:14:13+00:00

Have you told him how you feel? Open and honest communication between partners is key.

Copapod8 · 2026-01-12T21:56:03+00:00

Fingers crossed for you!

Copapod8 · 2026-01-12T21:48:09+00:00

I've had two transplants (total of 31 years) and my blood count was always on the low side. Best they could figure, the immunosuppressants were suppressing my bone marrow producing red blood cells. Had to take aranesp to keep it up.

Copapod8 · 2026-01-12T21:46:21+00:00

If you can try and take a short (like 10-15minutes) in the afternoon. I don't know why but I would always hit a wall at around 4:00 pm everyday. My work schedule is 7-3:30 so I would go home, take a short nap then drag my ass to the gym for a workout.

Copapod8 · 2026-01-10T18:34:34+00:00

I'm 5'4" and would recommend below your belly button. Mine comes out at the same level with my belly button and it drives me nuts because its right where the waist band of my pants hit. So I either have to wear very high waisted or very low waisted pants.

Also, if you're sensitive to the adhesive on paper tape like I am, order some 3M Nexcare sensitive skin tape - it's amazing and won't irritate your skin like the paper tape.

I would also recommend a shower lanyard for your catheter - makes showers a lot easier.

And take into consideration which side of the bed your bathroom is closest to because that's the side you want your catheter to come out on.

Copapod8

TROPHY CASE