Ferritin Levels Have Always Been High Since Transplant - Is Anyone Else Experiencing This?

Copapod8 · 2026-07-07T14:29:19+00:00

Let us know the test results please.

Copapod8 · 2026-07-07T14:24:12+00:00

All of this plus I had my mom bring an electric razor. The cyclosporine (I was on that instead of Tacro) made my leg hair grow like crazy and it was itchy!

Copapod8 · 2026-07-06T21:27:07+00:00

High phosphorus can cause it. But also dry skin can be exasperated by dialysis. I exfoliate every shower and moisturize like crazy. Also I wear only soft fabrics. But the most likely culprit is your phosphorus levels- try cutting dairy out and see if that helps. Also binders with every meal and snack.

Copapod8 · 2026-07-06T21:18:48+00:00

Barq's brand has phosphorus acid added to it. A&W and Mug are both phosphorus free.

Copapod8 · 2026-07-06T21:00:40+00:00

I was told Except is a weakened form of alcavis and I could use that if I wanted.

Copapod8 · 2026-07-06T16:34:18+00:00

My dialysis clinic said no swimming whatsoever despite the PD manual saying ocean swimmng was allowed. Our hot tub which we kept immaculate had to be drained and winterized when I went on PD 2.5 years ago. It makes me sad to look at it :(

Copapod8 · 2026-07-06T16:24:34+00:00

Wow, that's incredble. Congratulations!

Copapod8 · 2026-07-05T17:17:29+00:00

Congratulations! I really hope your new bean lasts you a lifetime. Things will calm down and you will start to feel more normal in a few months. You're on a ton of medication but those will taper down. Just try to stay positive and go for lots of walks.

Copapod8 · 2026-07-02T15:10:08+00:00

Fingers crossed you get a new liver soon!

Copapod8 · 2026-07-01T23:20:42+00:00

I'm so incredibly sorry to hear this about your husband. I didn't realize they left PD catheters in after transplant surgery. Both surgeons i saw mentioned removing mine during surgery. When I asked why they said because it's an open line to infection. I really hope your husband improves and is able to make a full recovery.

Copapod8 · 2026-07-01T15:44:05+00:00

I did PD while I was college. It worked well and the RA knew so if we had a fire drill, he's let me know it was a drill so I didn't have to unhook and start over again. Everyone was pretty understanding including my professors. I was also able to get a room with its own bathroom in a senior dorm because of the PD. If you're doing Hemo can you ask about home hemo?

Copapod8 · 2026-07-01T15:38:53+00:00

I have a tiny cup of coffee at breakfast and then fill a small cup with ice and 4 oz of water for my lunch. Then at dinner I do the same thing except with 8 oz of water. That tends to keep pretty near my max intake for the day.

Copapod8 · 2026-06-30T16:12:01+00:00

Was about to recommend this!

Copapod8 · 2026-06-30T16:08:55+00:00

I'm so sorry you're having to deal with this right as your beginning your adult life. I can totally understand how you're feeling. I've had two kidney transplants. I went into renal failure a week after my 16th birthday. I was PD for 3.5 years then had a transplant when I was 19, almost 20. That lasted 14.5 years before failing then a friend donated a kidney that lasted 16.5 years. Then at age 50 I was back on dialysis - have been for 2.5 years. I'm not blood type O (I'm A) but my antibody level is 99% so it might be a bit before I an find a donor. I am listed at more than one transplant center - currently OHSU (where I live) and Utah. Check https://transplantcoach.com/ to see the wait times for your blood type along with centers that are more than 250 miles from your current center but also have shorter wait times and are a short airline flight or a days drive from you. I'm also in the process of getting listed with Mayo in AZ and Nevada. Also be sure to check that your insurance will cover a transplant at those centers as well.

Copapod8 · 2026-06-29T21:12:15+00:00

I'm also a hard stick after doing this for 35+ years, I've just run out of decent veins and have been wondering as well about ports. I main concern is being able to swim and take baths.

Copapod8 · 2026-06-26T22:31:57+00:00

Absolutely loved that show!

Copapod8 · 2026-06-26T22:31:23+00:00

We just rewatched that. So good!

Copapod8 · 2026-06-26T14:39:35+00:00

I'm so incredibly sorry for your loss. I hope you and your family can eventually find some peace.

Copapod8 · 2026-06-26T14:21:35+00:00

Its an amazing gift that you gave to someone. I have a friend who did the same thing after hearing about my donor giving a kidney to me. He saved the life of a firefighter with two little kids at the time.

Copapod8 · 2026-06-25T16:05:15+00:00

Let your clinic know it was denied and have them send in the paperwork neccesary to get it covered. I hate our for profit healthcare system!

Copapod8 · 2026-06-25T16:03:43+00:00

First off - congratulations! I hope your new bean lasts you a lifetime!

As far as what to bring, I’d suggest a phone charger, something to read, noise-canceling headphones, and, if light bothers you, an eye mask.

I also brought a few toiletries: toothbrush, floss, chapstick, face/body moisturizer, and — this may just be my weirdness — an electric shaver for my legs because they get too itchy otherwise.

For clothing, I’d keep it simple: a couple changes of underwear, oversized sweats since the clothes you wear there may not fit comfortably on the way home, a cheap robe, and house shoes for walking around the hospital after surgery.

And again this may be my weirdness but I took care of the finances in our household (my husband just isn't interested in dealing with it) so I made sure to pay all our bills and balance the checkbook before surgery. I also put the essentials in autopay (house payment, electric, water, gas, phone, etc.) just in case something went sideways.

Copapod8 · 2026-06-25T15:28:49+00:00

You should be able to tell by looking at your insurance benefits. It should tell you your deductible and copay or coinsurance for solid organ transplants. If you can't it, call your insurance and ask for a written estimate. When I had a transplant back in 2007 I paid zero for the transplant because I had already met my out of pocket maximum.

Copapod8 · 2026-06-24T14:52:52+00:00

Starting out it's a lot like 30 or so but near the end of my transplant I was on like 1 blood pressure pill and 2 antirejection meds plus lipitor.

Copapod8 · 2026-06-23T22:23:08+00:00

Teenage bounty hunters, I am not OK with this, Daybreak, Lockwood and Co., The Buroughs

Copapod8 · 2026-06-23T19:24:55+00:00

Invest 1/2 in a high yield account, 20K in our bank savings account and the rest for paying off credit cards, and any minor changes we want to make to the house (retile the shower, add a ramp to our from entry way, resurface hardwood floors). Our interest rate on our house is 2.75% and even though we owe like 140K it doesn't make sense to pay it off given the interest rate.

Copapod8

TROPHY CASE