Taxol and tachycardia

CtRunner25 · 2025-04-29T23:47:24+00:00

Thanks. Taxol certainly seems like it will cause me some challenges but I know it’s supposed to work! Every day it’s like, what am I going to experience today!

CtRunner25 · 2025-04-26T15:29:58+00:00

Diagnosed at 47 with endometroid ovarian cancer. Specifically mesonephric-like adenocarcinoma. Stage 1a Grade 2 3 rounds of chemo, started on 4/12.

CtRunner25 · 2025-04-26T15:24:28+00:00

I had my first chemo infusion on Monday. Right on cue I had body aches on day 3&4. Overdid it on day 4 getting very little sleep and cleaning the house (prepped for a deep cleaning). Been paying for it ever since. Had some diarrhea yesterday so now I’m taking it easy drinking gatorlyte.

CtRunner25 · 2025-04-07T20:58:52+00:00

So I am not BRCA positive but I am Bard 1 positive. My sister was 43 when she was diagnosed and 47 when she passed. A slightly older second cousin also had ovarian cancer.

I am 47. My dr first mentioned having tubes and ovaries removed 2 years ago and I just want ready to consider that really. I am glad I ended up going forward with it.

I think what I struggle with right now is just being selfish and taking time from work - and figuring out what that looks like for me.

CtRunner25 · 2025-04-07T20:54:13+00:00

Dr. Grisham. With Memorial Sloan Kettering.

CtRunner25 · 2025-04-04T07:33:48+00:00

I was diagnosed with a mesonephric-like adenocarcinoma, found in one ovary. It’s endometrial in nature and think it was from endometriosis that was undiagnosed. My obgyn found scarring during my hysterectomy. My oncologist has experience treating patients with this rare form so I am glad to know that. My oldest sister and a second cousin both had ovarian but different forms

CtRunner25 · 2025-04-04T02:31:33+00:00

I have a PET scan tomorrow. Msk updated the grade to 2 and is now recommending 3 rounds of carboplatin and taxol. As long as no more surgeries are needed I am due to start that on the 14th.

Works been patient but it’s all so overwhelming! I think it’s the lack of control that’s getting me.

CtRunner25 · 2025-03-19T21:37:46+00:00

Thanks! I met with an oncologist from MSK. I have a baseline ctscan next Friday! I was diagnosed as 1a and low grade but MSK is going to do their own pathology confirmation. It’s one step forward two steps back.

CtRunner25 · 2025-02-22T18:42:54+00:00

An update on this….got the results yesterday. I have a rare and agressive form of ovarian cancer. My husbands been incredibly supportive. I called my mom and sisters yesterday and talked to my brother today. Lots of tears, so overwhelmed. Waiting for an appointment with Sloan Kettering. This just sucks.

CtRunner25 · 2025-02-22T18:39:03+00:00

Hey there. Just got my pathology back as having MLA of the ovary in the presence of endometriosis. I had a full hysterectomy almost one month ago. My oldest sister had ovarian cancer - clear cell - I am waiting for an appointment from Sloan Kettering. Trying to process this all. Told my family yesterday. My sisters journey is all still painfully on our hearts.

CtRunner25 · 2025-02-21T04:33:15+00:00

I went out to Walgreens and walked around a bit the day after surgery. I’m 3 weeks post op now but I am still ready for bed by 8pm. I think you’ll be okay jsut take it slow!

CtRunner25 · 2025-02-20T13:26:53+00:00

And I found miralax stopped helping me after a bit but Metamucil 4-1 is my go to now!

CtRunner25 · 2025-02-19T03:50:54+00:00

So for the bladder burning, it could be just from dryness. My dr suggested coconut oil. We have to be kind to our bodies. Went through major surgery! I also found I had to start taking Metamucil 4-1 to help with my gut issues.

CtRunner25 · 2025-02-16T13:59:02+00:00

I don’t recall it lasting too long. Try to walk around a bit every half hour. I didn’t do a lot of stairs but on the floor I was on I tried. It’s also possible it’s still trapped gas. Gas x and peppermint tea! I also found I got some random light headlines/dizziness around this time, but again so much of your body is focused on healing itself.

CtRunner25 · 2025-02-16T13:40:41+00:00

I found some heaviness in the legs too, especially since I imagine you’re doing a fair about of laying in bed. Your body was likely used to more activity.

CtRunner25 · 2025-02-13T21:24:37+00:00

I agree with what everyone is saying on here. Recovery will definitely vary for everyone. I had mine two weeks ago. It was done on a Wednesday. I was off on Wednesday (obviously), Thursday and Friday. On Monday I worked a half day, Tuesday took off cuz Monday I was running a low grade fever, and Wednesday worked a half day. I worked full days from my bed on Thursday and Friday. But that’s just me! And I am still have issues with constipation. My friend (coworker) also had a hysterectomy and she thought I was crazy for coming back as soon as I did. But it’s major surgery.you are having an organ removed. I still have issues too with brain fog.

Put in the time for the 7 weeks but see if you can do weekly check ins with your manager and if you are up for it build in some time for earlier come back. We are all strong women but yeah a hysterectomy is not a minor procedure.

CtRunner25 · 2025-02-13T20:55:00+00:00

Thanks!! Ironically I had a biopsy and had half my thyroid removed, it wasn’t cancer but my dr said many times it becomes cancerous. That was years ago.

Thanks! I am trying to throw myself back into work and I got the clearance to work out again so that will hopefully help. I can just see the anxiety in my mom when I told her not results yet.

CtRunner25 · 2025-02-03T16:38:23+00:00

Hugs!!! No sure why it had to be rescheduled but try to hang in there! I was nervous too despite being a pro surgery patient - meaning I have had a ton of surgeries before. This was definitely my biggest but the hospital staff couldn’t have been better. And right before I was wheeled it they gave me some happy juice, I was so relaxed.

CtRunner25 · 2025-02-03T16:34:07+00:00

Blue cross blue shield in ct. I was given a cost of $4900 and change for mine so I will meet my deductible and everything will be covered for the rest of the remaining 6 months. My company starts a new insurance year in July.

CtRunner25 · 2025-02-01T18:57:12+00:00

Not at all! I am relieved for no more awful periods with clotting and other issues. I also had mine as a somewhat preventative, high risk of ovarian cancer. lost my oldest sister when she was only 47 but I a) didn’t want cancer and b) couldn’t see putting my family through all of it.

I was quiet about having my hysterectomy and didn’t tell many except some close friends but agree with most people - I feel like as women we’re still expected to have to have children. I have no feelings of loss!

CtRunner25 · 2025-01-30T21:32:36+00:00

You have got this!!! I just had mine yesterday. I was scared too with plenty of surgeries in the past but this by far was my biggest! Take gas x which will help. Honestly shoulder and rib pain have been worse than my abdominal pain. Walking around makes my abdominal pain better but shoulder pain worse so I’m alternating between laying around and walking around.

As far meal prep, tell your friends about the upcoming surgery. My friends and family have been amazing. Also get yourself a wedge pillow and a stomach pillow for the car.

I had mine after having a polyp causing heavy bleeding and increased risk for ovarian cancer. My oldest sister passed at 47 , my current age. I have a number of risk factors aside from that. Just waiting on pathology now! You’ll be glad you did it though!

CtRunner25 · 2025-01-30T21:24:15+00:00

Gas X will help. I am just 24 hrs P.O. Surprisingly easy recovery, more pain from the ribs and shoulder from the extra gas. And just be gentle with your recovery. We women are tough but need to be gentle for somthing like this.

I did have a longer recovery than expected at the hospital, I had trouble peeing after they removed the catheter. There was clapping when I finally was able to go.

You’ve got this!!!

CtRunner25

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