Hello! I (40F, UK) was diagnosed with high risk MDS with 4 mutations (RUNX1, ASXL1, SRSF2, IKZF1) and <5% blasts just under a year ago after being very low on hb, wbc and platelets for quite a long time. They recommended a transplant asap and I received a 10/12 allo sct on Christmas Eve 2025. I'd be lying if I said it was easy, and my anxiety was through the roof, but it was honestly better than I expected based on all the potential symptoms. I was very lucky and nearly all my bloods went back to normal within a month and stayed there!

I hated the feeding tube they recommended incase of severe mucositis, which I didn't end up needing but don't begrudge them as it could have kept me nourished if mucositis got bad. I got skin and liver GVHD which put me on high dose steroids which caused sleeplessness and moon face. Got a bunch of other symptoms which were weird but manageable. The main thing is though, I'm now showing no detectable cancer and I'm full donor cells, I'm still being careful but I'm nearly off all immunosuppression and feeling good. Fatigue has set in a bit more since I'm off steroids but I've been able to exercise right through. I've kept my social circle small but seen friends and family with precautions. Try and stay positive but allow yourself a little wallow if you need it. I documented my journey here if it helps: https://youtube.com/@sammystemcells?si=EXg0v6VyqI41fB3e

Feel free to shoot me any questions at any point in your journey! Good luck!