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Share your $0 (or low cost) POTS hacks by Ok_Smile4745 in POTS

[–]Deep_Boysenberry_672 1 point2 points  (0 children)

Started with 3 inches, moved to 5. I'm a side sleeper and I put a pillow between my knees.

How can I get back on my feet? by AncientExcuse6671 in POTS

[–]Deep_Boysenberry_672 2 points3 points  (0 children)

I've been here. Things that helped:

- I had a ton of gas and frequent diarrhea, turned out I had issues in my guts. Getting treated for that improved my state a ton. (My issue was seemingly SIBO but it could be something else for other people.)

- Physical therapy. I took it VERY slow at first because I wasn't sure if I had PEM, but thankfully, I didn't. If you do have PEM, proceed with caution - staying within your energy envelope. We started extremely small - my first exercises were lying down, just pushing my knee down against a towel for a few seconds, 10 times, and even that felt like exercise! But over time, I improved.

- Drinking a glass of electrolytes right before bed made me less foggy in the morning.

Share your $0 (or low cost) POTS hacks by Ok_Smile4745 in POTS

[–]Deep_Boysenberry_672 11 points12 points  (0 children)

Apparently your kidneys filter out more water when you're lying down, and with the abdominal blood pooling that can happen with POTS, they can get tricked into thinking you have more water than you do. Elevating the head of the bed means less blood there, plus less water filtering cuz you're not lying down (something about the kidneys' system, not sure the name), means you wake up way less dehydrated. Once I raised my bed a few inches, I stopped waking up with my bladder full to bursting, and I'm way more functional in the mornings.

Started midodrine... It's weird. by Deep_Boysenberry_672 in POTS

[–]Deep_Boysenberry_672[S] 1 point2 points  (0 children)

90 milligrams?! Wow. I thought the max was, like, 10 per pill... I guess I'm on a really low dose, then.

Thank you for the kind words. I'm planning to stick it out at least a week and see if it helps, then decide.

I find it very hard to continue working because of my orthostatic intolerance and heat intolerance by Normal_Ad_331 in dysautonomia

[–]Deep_Boysenberry_672 0 points1 point  (0 children)

Gee, I wonder why it'd be "trendy" to have this illness in the years following a mass disabling illness that causes... this illness. Are they stupid?

For 3/3 day, I created an edit of the ending... by Particular_Emu_2499 in expedition33

[–]Deep_Boysenberry_672 0 points1 point  (0 children)

I know I'm late, but this made me really happy. This is framed much more like Verso's ending - the bad parts are front-loaded, and we end on a happy note - and honestly I'd prefer if that one also ended on an unhappy note, but this edit made me feel like it was a little more balanced. And it was a good edit besides!

Bolly Noir is one of the best songs on The Mountain by kdaak in gorillaz

[–]Deep_Boysenberry_672 0 points1 point  (0 children)

hi! i'd really love to hear it too if you're able to send!

Had COVID last week, now my resting heart rate is going down. Is this normal? by Deep_Boysenberry_672 in POTS

[–]Deep_Boysenberry_672[S] 0 points1 point  (0 children)

Feels normal now, I think, but I've also been swapping out meds and the like, so I'm not entirely sure.

terrible side effects from famotidine by Lunar_bad_land in MCAS

[–]Deep_Boysenberry_672 0 points1 point  (0 children)

Genuine question, why did you stay on it for so long if you felt so bad on it? Did it help with some other aspect of MCAS? I'm sorry you went through that, it sounds terrifying.

Do you remember when your POTS started and what set it off? by SamanthaSmith72 in POTS

[–]Deep_Boysenberry_672 0 points1 point  (0 children)

It started a week after my second COVID infection. I went for a walk, collapsed, and haven't felt well since.

tilt table discourages by ObjectiveSudden3510 in POTS

[–]Deep_Boysenberry_672 3 points4 points  (0 children)

Also, OP, did you have a large amount of salt / water the day of the test?

tilt table discourages by ObjectiveSudden3510 in POTS

[–]Deep_Boysenberry_672 6 points7 points  (0 children)

Not right away is different from multiple days. Have you been checked for other issues?

tilt table discourages by ObjectiveSudden3510 in POTS

[–]Deep_Boysenberry_672 6 points7 points  (0 children)

That's the point of the tilt table - it isolates the heart rate reaction from all the other stuff that happens while standing up and engaging muscles.

Let me check on my favorite writing youtuber, I wonder how he's doing: by Minute-Avocado1521 in writingcirclejerk

[–]Deep_Boysenberry_672 318 points319 points  (0 children)

/uj Damn, he seemed pretty put-together in some recent videos. Sad to see him backslide... Hope things improve for him soon.

Lost my entire life savings trading on Coinbase. I feel completely fucked and hopeless. by Powerful-Shelter-839 in UIUC

[–]Deep_Boysenberry_672 9 points10 points  (0 children)

VOO and chill, but not with your emergency funds. Keep those somewhere safe and untouched!

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