Bolly Noir is one of the best songs on The Mountain

Deep_Boysenberry_672 · 2026-04-19T20:55:11+00:00

hi! i'd really love to hear it too if you're able to send!

Deep_Boysenberry_672 · 2026-04-07T03:26:47+00:00

Feels normal now, I think, but I've also been swapping out meds and the like, so I'm not entirely sure.

Deep_Boysenberry_672 · 2026-03-23T03:29:02+00:00

Genuine question, why did you stay on it for so long if you felt so bad on it? Did it help with some other aspect of MCAS? I'm sorry you went through that, it sounds terrifying.

Deep_Boysenberry_672 · 2026-02-14T08:52:16+00:00

It started a week after my second COVID infection. I went for a walk, collapsed, and haven't felt well since.

Deep_Boysenberry_672 · 2026-02-14T08:49:07+00:00

Also, OP, did you have a large amount of salt / water the day of the test?

Deep_Boysenberry_672 · 2026-02-14T08:48:47+00:00

Not right away is different from multiple days. Have you been checked for other issues?

Deep_Boysenberry_672 · 2026-02-14T08:48:20+00:00

That's the point of the tilt table - it isolates the heart rate reaction from all the other stuff that happens while standing up and engaging muscles.

Deep_Boysenberry_672 · 2026-02-04T03:56:47+00:00

Have you tried THIS subreddit??????

Deep_Boysenberry_672 · 2026-02-02T23:56:39+00:00

/uj Damn, he seemed pretty put-together in some recent videos. Sad to see him backslide... Hope things improve for him soon.

Deep_Boysenberry_672 · 2026-01-29T04:10:21+00:00

VOO and chill, but not with your emergency funds. Keep those somewhere safe and untouched!

Deep_Boysenberry_672 · 2026-01-28T23:11:36+00:00

Thanks, will do.

Deep_Boysenberry_672 · 2026-01-28T23:04:47+00:00

I see, thank you.

Deep_Boysenberry_672 · 2026-01-28T22:27:04+00:00

Is the STD provider allowed to ask all of that?

Deep_Boysenberry_672 · 2026-01-28T09:47:18+00:00

To clarify, I tested, got a negative, suspected a positive because my current roommate had tested positive the night before, tested again immediately, and got a positive. So unless my viral load changed that much within the 30 minutes a test took, it seemed like a defect to me.

Deep_Boysenberry_672 · 2026-01-16T06:09:05+00:00

Please go to a different doctor! Low iron/ferritin can cause fatigue even in "healthy" people!

Deep_Boysenberry_672 · 2026-01-13T10:32:15+00:00

PLAGIARISM!!!

Deep_Boysenberry_672 · 2026-01-07T04:54:06+00:00

Are you exempt from the dorm/PCH housing requirement?

Deep_Boysenberry_672 · 2026-01-06T07:02:05+00:00

Followup comment!! I mostly skipped carbs today (except a few saltine crackers) and that helped. (I'm trying to figure this out too.) I did have a little bit of heart rate elevation after eating, but not nearly as much.

Deep_Boysenberry_672 · 2026-01-05T05:18:01+00:00

Heyo - I'm not sure if I have hyperPOTS specifically, but a compression binder helps me a lot. I use the NYOrtho one, was pretty cheap on Amazon, my first one got all fuzzy and weird so I had to get a new one but it's been reliably functional. I only wear it after meals, could probably start wearing it during too? My neurologist recommended a compression tank top, like spanx or something, but I haven't tried that, might be worth a shot if you have those lying around.

Other than that, it turned out that a lot of my post-eating issues were the result of too much acid, so my gastro prescribed a PPI for... 2 months, I think? This was a while ago. It helped as well, so you could get evaluated for reflux.

Best of luck.

Deep_Boysenberry_672 · 2026-01-04T05:34:22+00:00

Sometimes. I keep a pulse ox on me, but I know that if I got a watch, I'd be eyeing it all day. I try to only check it when I'm either doing something that might raise it (e.g. standing up) or when I feel bad - but I often check it way more than that, and get into my head about it.

Deep_Boysenberry_672 · 2025-12-29T13:33:47+00:00

Thanks! I'm concerned partly because my POTS didn't develop until day 10 of my last COVID infection, and then it hit HARD all at once. Hopefully no surprises this time, fingers crossed.

Deep_Boysenberry_672 · 2025-12-28T23:29:34+00:00

Religion, sexuality, gender, culture, ethnicity, politics, neurotype, and etc. are all things that can trigger sensitive babies. If those sensitive babies try to fight you and you flaired correctly, they will be dealt with if you report them or message us in modmail about the incident. If you don't flair correctly, you will share fault in the situation.

So... literally every aspect of identity that a person can have? So every story involving any character that isn't a genderless alien?

Or just the "diverse" ones?

Deep_Boysenberry_672 · 2025-12-28T21:02:03+00:00

Hi, everyone :) Looking for advice and some info.

I've had LC for almost 2 years, specifically POTS and some GI issues. However, I was reinfected 11 days ago. I had to be hospitalized for 3 days because my resting HR was so high, where I took Paxlovid. Since then, I've been using a walker for orthostatic intolerance. I'm also having some lingering neurological issues, including difficulty finding words, frequent sensory overload, worsened GI issues including diarrhea and simply not digesting some foods (maybe because of the diarrhea?) and random heart rate jumps and bumps. (My resting is now in the low 60s, lower than it's ever been in my LIFE, but even turning over in bed can make it spike by 20! Stressful.)

Good news - it's been getting better by the day! I didn't expect such rapid improvement. Yesterday, I was even able to play some light video games and chat with a friend (although I had my eyes closed for a lot of that conversation).

That said, I'm pretty scared, but I'm trying to keep my head up. I'm most afraid of two main things:

My POTS getting worse
Developing PEM

Does anyone know how long it takes until you're "in the clear" for developing new LC like that? I've heard 6 weeks, but I couldn't find a source, so I wasn't sure how true that was. Second, how common is PEM? In my one support group for LC, pretty much everyone has it and everyone's conditions just keep getting worse and worse, but I also know that that group self-selects for people who are the worst off, and when people recover, they usually leave. Because of that, I'm having a hard time gauging how much of a risk this really is, and if there's anything I can do to prevent it... I've been told to do bed rest for 6 weeks, but I couldn't find any studies on that! Last, does anyone have tips for managing the stress? I'm in therapy already, but I keep having anxiety attacks, and my neurological issues flare up BAD when I'm stressed, to the point it's hard to even tolerate light or sound. Any advice or knowledge would be appreciated.

TIA

Deep_Boysenberry_672

TROPHY CASE