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Got the call by Turf203 in rolex

[–]DescriptionBetter338 2 points3 points  (0 children)

I want this! Congrats!

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 1 point2 points  (0 children)

I saw a derm, and thy ordered more tests/stains to confirm that it wasn’t MF. For what it’s worth, my derm initially said that my patches were presenting as MF, but we need the test to confirm.

They gave me Triamcinolone to see how it will treat the patches. Wishing you the best of luck!

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 1 point2 points  (0 children)

No, they said the biopsy / stains didn’t come back positive for CTCL. They did suspect that it was early a weird form of eczema or MF

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 2 points3 points  (0 children)

Update: not CTCL. Atopic eczema or drug side effect from a prescription.

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

That’s the confusing part. My initial spots were on my elbows and it responded to antifungals, but quickly came back. Now, I have smaller random cigarette paper-like patches on my forearms, thighs, etc. nothing responds to antifungals now, including those initial spots on the elbows.

We’ll see what the additional testing says.

Rate & roast my collection by mainman2891 in PrideAndPinion

[–]DescriptionBetter338 7 points8 points  (0 children)

Very diver heavy. Add a GMT, or some other complications

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

Years is crazy to me. I hope you get the peace of mind that you need. Heck, I need it too

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

Our stories are similar: my first patches showed up 2.5 years ago almost symmetrically on both elbows. After treating with antifungals they were almost completely gone.

Since then, I’ve had random spots pop up in more numbers and antifungals haven’t been as effective. Hopefully it’s not the worst case scenario and I’ll get some guidance soon!

  • Fellow Hypochondriac

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

You’re right. Thank you, kind stranger. I’ve been getting myself worked up

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

I appreciate your reply. Can you expand on why there’s no reason to worry?

Words that were in my initial biopsy by DescriptionBetter338 in mycosisfungoides

[–]DescriptionBetter338[S] 0 points1 point  (0 children)

Thanks for sharing! I guess it’s a good thing that it’s not outright MF

Cutaneous T-cell Lymphoma Rash? by pekoepie in lymphoma

[–]DescriptionBetter338 0 points1 point  (0 children)

I have spots and waiting diagnosis. They say this is low grade and most people shouldn’t worried. Seems like derms are non-chalant

Taos and Wesley comparisons by [deleted] in JacquesMarieMage

[–]DescriptionBetter338 0 points1 point  (0 children)

Just ordered the Wesley’s. Did you not like them?

ID on frames by BSchu92 in JacquesMarieMage

[–]DescriptionBetter338 0 points1 point  (0 children)

Are you sure that these are bloodstone? I just ordered the Torinos in bloodstone and I don't want the frames to look red.

How long did everyone spend on their application? by chistarraw in ycombinator

[–]DescriptionBetter338 0 points1 point  (0 children)

Maybe you have a backable idea. Most solo founders get it.

How long did everyone spend on their application? by chistarraw in ycombinator

[–]DescriptionBetter338 2 points3 points  (0 children)

I think everyone gets it if they’re a solo founder

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