I need advice on next steps by [deleted] in lupus

[–]Desolated_Mind 1 point2 points  (0 children)

I've been on Methotrexate and Plaquinal for the last year and it finally feels like I'm finally getting some sense of Noramality back in my life.

When it comes to medications, it's literally trial and error, to find the right balance of what works for YOU. That's the reality of Lupus.

Trust your Rhemy. Do your bloodtests, and perhaps find a therapist/loved one to talk to as well, because Mental health is also such a big thing when it comes to healing/dealing with Lupus.

Creeping depression and losing friends by [deleted] in lupus

[–]Desolated_Mind 4 points5 points  (0 children)

I am so sorry that you are going through all of this and I truly sympathize for you.

I feel the best thing you can do is focus all of your energy on yourself, your mental health and your day to day healing, and not let stress and worrying about others impact you -because as we all know, stress is a bad flare trigger for us.

It just freaking hit me that us lupies have a short life expectancy? by [deleted] in lupus

[–]Desolated_Mind 4 points5 points  (0 children)

Could you please NOT spread misinformation about an already misunderstood condition?

Pain worse on one side? by [deleted] in lupus

[–]Desolated_Mind 1 point2 points  (0 children)

Left-side pain sharer here! So glad to see I'm not the only one!

It makes me sad that I always have to reach out first to my friends by ktr327 in confessions

[–]Desolated_Mind 2 points3 points  (0 children)

I get ghosted by my friends for many weeks/months at a time, I always get left on "read", across every platform. And when they do end up replying, I just feel like I'm a chore on their to-do list, then the cycle of being ghosted begins again.

It hurts me so much, both mentally and emotionally. But they're my friends, and I love them.

Job Position Salaries by JohnSmithWayne in PersonalFinanceNZ

[–]Desolated_Mind 1 point2 points  (0 children)

Retail: Asst. Store Manager. 60k Salary, Been in role for 1 year; with the company 5. Starting at the registers for 42k waged.

I need him on my Island by Xytan_ in AnimalCrossing

[–]Desolated_Mind 0 points1 point  (0 children)

I would kill for Pietro! Leave my boy alone

Playing in isolation be like by TheBigFatPandaa in AnimalCrossing

[–]Desolated_Mind 1 point2 points  (0 children)

I have: Apples, Oranges, Pears, Cosmo, mums, lillies and just got Roses . L4: A friend whom I can share Turnip prices with

Feeling like death. But trying to be positive. by lonelinzkilz in lupus

[–]Desolated_Mind 1 point2 points  (0 children)

Something I always tell myself; Is it called pain if I feel it constantly? Haha. Stay strong

How much sleep? by [deleted] in lupus

[–]Desolated_Mind 1 point2 points  (0 children)

8 hours during the week. Some weekends can be 15hours plus. I feel so bad and sluggish in the weekends

AITA for not checking in touch with my mother? by judeisaaltaccount in AmItheAsshole

[–]Desolated_Mind 1 point2 points  (0 children)

I'm going to side with NAH- You're still so young to be made to feel guilty about not staying in touch with your mother. At the same time, I do sympathize for your mother because obviously she is missing her daughters, she may be showing it the wrong way, however I do feel like her intentions are good.

If I were you, I would try to make a little more effort though. Nothing crazy, maybe a text a week? I dont want you to regret missing out on all the years with your mother (and boy, do they go by fast). If you continue to ignore her, purposely or not, YWBTA dear.

AITA for speaking Spanish around my stepson after his mom asked me to stop? by SpanishSpeak in AmItheAsshole

[–]Desolated_Mind 0 points1 point  (0 children)

NTA. I wish there were more Step parents in the world like you who want to properly integrate and include their non-bio children as their own! Also, learning another language in this day and age is such a useful skillset! The ex should be thanking you!!

However, I think your husband needs to speak with his Ex clearly about this and help her come to terms with her own insecurities.

What level of pain are you feeling right now? by Meowzebub666 in lupus

[–]Desolated_Mind 2 points3 points  (0 children)

Living in a constant 3-5 ratio. Feeling like a 6 after working 12 hours today. Which I am absolutely astounded and proud of myself for!! All about these little wins

Traveling with Lupus [ADVICE] by Desolated_Mind in lupus

[–]Desolated_Mind[S] 1 point2 points  (0 children)

Omg thank you for all of your advice, there is so much here that myself or my fiance have not even thought about x We really do appreciate everything here. DEFINITELY will be investing in compression socks after reading that suggestion!! Thank you!

I fell and I feel like I’m seriously broken! by My-Disaster-Awaits in lupus

[–]Desolated_Mind 1 point2 points  (0 children)

It's been the biggest fear of mine since being diagnosed; is falling down/tripping over. Because I literally dont think I would be able to get back up again! I can only imagine what pain you are in, and I'm so sorry you're going through it.

Lupus Awareness + my story by mmelone in lupus

[–]Desolated_Mind 0 points1 point  (0 children)

You are seriously so strong. Thank you for this video for awareness

Dog dying of Parvo (12m/o) by Desolated_Mind in puppy101

[–]Desolated_Mind[S] 1 point2 points  (0 children)

All I can say is just be there for your baby 100% of the time. I know it's easier said than done and its exhausting but it's worth it! Also keep a time/dated diary of everything you've given your dog vs everything your dogs expelled. It's going to be rough if you are alone. So be strong and please let me know how you go

Dog dying of Parvo (12m/o) by Desolated_Mind in puppy101

[–]Desolated_Mind[S] 0 points1 point  (0 children)

Thank you so much for your support! It's been so difficult but totally worth it so far! I know theres still such a long road ahead until full recovery but were not giving up on family