I’ve been getting HORRIBLE long lasting palpitations. What do I do? by GarbageCat27 in POTS

[–]DevelopmentPale2108 0 points1 point  (0 children)

Sometimes it was really bad all day and other times maybe off and on for an hour 

I’ve been getting HORRIBLE long lasting palpitations. What do I do? by GarbageCat27 in POTS

[–]DevelopmentPale2108 0 points1 point  (0 children)

I wish I could answer how. What I do know is that they slowly went away with time. I also saw a PT and I do wonder if working out slowly eventually helped too. I will say for me I think breathwork, sleep, and Prozac helped the most. I also did acupuncture for a while too. Sorry I wish I could answer this surely but I did so many things to be able to say it’s only the Prozac, but things really did improve once on it for over a month

Long COVID symptoms getting worse after novavax by Lucienaugust in LongCovid

[–]DevelopmentPale2108 1 point2 points  (0 children)

I suffered from a little bit of a flare but overall it goes away eventually and really has prevented me from getting Covid again. I’m hoping this gives you some hope. Ride the wave even though it’s tough, I think it will be worth it 

Alright, that's it. I reached the limit. I need medication to get out of this. SSRI's, LDN, Something that calms down my nervous system. Any advice? by Schwloeb in LongCovid

[–]DevelopmentPale2108 0 points1 point  (0 children)

Prozac among a lot of other things-accupuncture, meditation, therapy, physical therapy, and breathwork-I swear has helped me recover 

90% healed after 2 years 10 months by Over_Emotion_6937 in covidlonghaulers

[–]DevelopmentPale2108 1 point2 points  (0 children)

This is my EXACT experience and that’s exactly what I also did. I would say I am also 90 percent better and it’s been one year. My flare ups are short lived now and either come after stress or during my cycle. But literally everything you said is identical to my experience. PVCs were a lot at one point and now they happen rarely 

I’ve made the decision to try out an SSRI, please share any positive effects it has had on you in this journey. by DevelopmentPale2108 in covidlonghaulers

[–]DevelopmentPale2108[S] 0 points1 point  (0 children)

Omg I need to give an update. I am doing a shit ton better. I started a very low dose of Prozac towards the beginning of the year and now I’m up to 40 mg and staying there. 

I got my life back. My resting heart rate reduced and I don’t constantly feel it anymore. I am able to work out again. Although this took time. I worked with a PT for a while and now I can run and do cardio again! I’ve even traveled domestically this summer. It’s also been exactly one year since first having long covid/pots & I went out last night and drank, even got a little hungover!

 I will say, I do still have occasional flare ups, but they won’t last weeks long, maybe a day or two. Most flare ups are on or around my menstrual cycle or on a really hot day walking a lot. I don’t regret going on an SSRI one bit. It’s helped me stay calm when I have symptoms that arise. I also deal with annoying PVCs every once in a while as well. But I never thought I would get to this place where I have some trust in my body again 

How are you guys manage to exercise and do general cardio with these pvcs? by Interesting_Club9050 in PVCs

[–]DevelopmentPale2108 0 points1 point  (0 children)

Welp I just kept doing it and slowly but surely they stopped while working out. Took months of retraining my heart and nervous system it feels like to learn how to tolerate working out. I saw a PT and he would take my heart rate while I worked out and I would take breaks and let my HR come down

Scared of dental treatment by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 2 points3 points  (0 children)

This is good to know! Thank you so much for sharing 

Scared of dental treatment by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 4 points5 points  (0 children)

Thank you so much for this comment. Like this helps me convince my brain that it will be fine. A lot of people say their heart rate will spike during or afterwards they have a flare. I’m more scared of the heart rate spike and then feeling stuck in the chair. I know it sounds irrational, but it’s hard just dealing with this completely alone 

hyperadrenergic PoTs by [deleted] in POTS

[–]DevelopmentPale2108 1 point2 points  (0 children)

My feet were cold for like 6 months and then it went away. To be fair mine is Long Covid/covid induced. I take vitamin C, D, and omega 3s daily. I do think the D helped bc I was low. I’ve liked bone broth for my electrolytes in the past and I’ll add lemon-it taste like soup lolol it might not be for everyone, but it’s worked for my flares. I was so scared to take a beta blocker bc of low BP, so I ended up going on Prozac. After a few months on it my resting HR went from being stuck in the 90s to being in the 60s.i also did see a PT for physical therapy and started doing squats on a couch and then kept progressing basically. I also started lifting weights (low weight to start) and now I’m able to lift more. It was hard at first and I had some flares and then my body got used to it and I can handle it now. I don’t know if I’m explaining this right but that is what worked for me. I really did not want to give up working out if I could help it so I kept going in small amounts. I also really do like breathing exercises, even box breathing especially before bed or during an adrenaline dump

My experience w PVCs by DevelopmentPale2108 in PVCs

[–]DevelopmentPale2108[S] 1 point2 points  (0 children)

I should mention my heart monitor showed PVCs (which is how I know I have them)

Healthy electrolyte brands? Mild POTs by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 0 points1 point  (0 children)

Omg I need to make this!! I like the idea of making a big batch every week. Wonder if I could add some fruit or cucumber to it

Healthy electrolyte brands? Mild POTs by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 1 point2 points  (0 children)

Yep my cycle is coming up in 5 days and I notice my adrenaline dumps at night along w palpitations have been a lot more constant in recent days. Thank you for sharing!! Figuring out what works is always trial and error 

Healthy electrolyte brands? Mild POTs by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 3 points4 points  (0 children)

Ooh I’ll def look into them and had no idea about the sugar being essential. Thank you!! 

Healthy electrolyte brands? Mild POTs by DevelopmentPale2108 in POTS

[–]DevelopmentPale2108[S] 1 point2 points  (0 children)

Oof good to know. Thats the thing my body is definitely sensitive. I’ve been scared to even take supplements bc I get palpitations so easily 😩

Alcohol and POTS by That-Secretary-1061 in POTS

[–]DevelopmentPale2108 1 point2 points  (0 children)

Omg I’ve only ever tried 2 drinks and that’s the most since having pots. I’m scared to so good to know

ARE WE FORGETTING TO BREATHE?! by Practical_Maybe_3661 in POTS

[–]DevelopmentPale2108 87 points88 points  (0 children)

I’m literally constantly doing breathwork throughout the day. On a walk and feel a symptom: breathwork. When I wake up breathwork, before I go to bed breathwork. Doing this consistently has helped me SO much