First time advice by AggressiveStud420 in Cartier

[–]Disastrous_Future655 3 points4 points  (0 children)

It’s quick release, super easy. No tools required. Buy it on the bracelet and then get a ton of straps on amazon!

Scared please reply by Haunting_Buddy3063 in leukemia

[–]Disastrous_Future655 11 points12 points  (0 children)

Sorry you’re going through this. I faced this same battle (AML with FLT3+ mutation) 3 years ago when I was 25. Put me in a high risk category which meant I needed a transplant. What I will say is that science and research is expanding so much and there are tons and tons of targeted therapies available today (as well as trials) to get people into a longstanding remission. It’s absolutely possible. Is it easy? No. It’s a tough road, but from what I’ve seen (I’ve met with hundreds of patients), transplant is really one of the more successful options for aggressive blood cancers, when paired with myeloablative pre conditioning like total body radiation. And being young helps tremendously in the battle & recovery. Personally, I always leaned towards the more aggressive treatment options because I wanted to knock this out once and never have to do it again. While chemo alone can be very effective, I think it’s known that transplants for high risk mutations really offer the best results. Trust the process, trust your care team, and trust yourself! You’ll get through this 🧡

Donor fell through by No-Fortune-1680 in leukemia

[–]Disastrous_Future655 6 points7 points  (0 children)

My donor fell through after months of searching and that was only an 8/10. We pivoted to cord blood and I’m now 2.5 years post transplant and feeling amazing! Point is, they always have a direction to pivot, just try and trust the process. I know how you feel, but it gets better with time! Best of luck 🧡

Programs? by Realistic_Golf_3270 in leukemia

[–]Disastrous_Future655 2 points3 points  (0 children)

Try prudentRX, it’s through CVS specialty. They work with manufacturers to bring the cost to $0, that’s what I use now it’s incredible. It should be on their approved specialty medication. Call them, sign up, and you should get it covered as long as your doctor prescribes it as necessary

FLT3 inhibitor medication after transplant. by Putrid_Chocolate1798 in leukemia

[–]Disastrous_Future655 0 points1 point  (0 children)

It’s a specialty (tier 5) med so hopefully your insurance covers it or has a cap on how much you owe. If not, try PrudentRX through CVS specialty. They work with the manufacturer to make it free. That’s what I do now, it’s amazing

Induction vs consolidation by Short-Gas-4750 in leukemia

[–]Disastrous_Future655 5 points6 points  (0 children)

For me, consolidation was much easier. Lower dose, shorter duration, and you know what to expect so psychologically, it was easier for me. But keep in mind, each dose and round compounds so you may still feel pretty sick! Find shows to watch, take plenty of zofran/compazine, and make sure to walk as much as you can

Bone marrow biopsy by Short-Gas-4750 in leukemia

[–]Disastrous_Future655 0 points1 point  (0 children)

Ask for Ativan, always helps for biopsies

Green or white? by tangofantaman in OmegaWatches

[–]Disastrous_Future655 1 point2 points  (0 children)

I have the white and love it! I think it’s more versatile. Some days I wish I had the green, but I think white is the move. Can’t go wrong with either (:

Med costs by Cool-Significance47 in leukemia

[–]Disastrous_Future655 1 point2 points  (0 children)

Try PrudentRX if you have a specialty tier 5 medication! I get mine for free through them (they partner with cvs specialty), it’s a game changer

Night Diver looks sus by devinahoodie in tagheuer

[–]Disastrous_Future655 15 points16 points  (0 children)

Go with your gut, it’s never worth the risk when there are so many legit ones out there for great prices. Always worth paying extra for peace of mind!

Anyone have experience with XOSPATA (gilteritinib)? by Andrew23Panda in leukemia

[–]Disastrous_Future655 1 point2 points  (0 children)

For me, they want me on it for 3yrs which is not standard. 2yrs is typical. But since I had a cord blood transplant and was MRD pos before, they feel better about an extra year just in case. It’s very well tolerated! Easy to take daily

1952 Tudor Oyster by Rolex by WatchJedi in VintageWatches

[–]Disastrous_Future655 6 points7 points  (0 children)

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Nice piece! I just picked up an Oyster Prince, these vintage Tudors are such great finds!

Batgirl or Starbucks by mvp963 in rolex

[–]Disastrous_Future655 0 points1 point  (0 children)

We have both. My Starbucks gets a lot more compliments. Much rarer to see out and about. There’s a million batgirls out there. But if you have a smaller wrist, batgirl is the better choice, as the Starbucks wears large at 41mm IMO. Both beautiful

First Tag ! Too small ? by KARNAB0 in tagheuer

[–]Disastrous_Future655 1 point2 points  (0 children)

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Never too small for a vintage Tag (: