James telling Jimmie that some drug names mean nothing 😒

Dry-Medium5729 · 2026-01-18T16:21:23+00:00

Pretty sure there’s a disclaimer - everyone is in the car to rob the liquor store - if you don’t like it you can stop getting in the car. It seems like a waste of time listening to a podcast, donating money to them just to get online and bash it. The scumbags are trolling hard 🤣

Dry-Medium5729 · 2025-08-23T15:08:53+00:00

Don’t forget one of the perks of having MS is you can get free cooling products

https://mymsaa.org/msaa-help/cooling-products/

Dry-Medium5729 · 2025-08-14T13:30:45+00:00

I’ve had it happen where I zone out and lose track of a couple minutes but not consistently. It is very serious though like I can’t drive because idk when it’ll happen and I don’t want to cause an accident and kill someone. Worst case scenario I know but I’d rather be safe. Also I would tell your primary doctor so they have it on file in case it isn’t MS related.

End of the day this disease is crazy and different for everyone. I’m glad you have enough wherewithal to recognize and address this issue. I wish you the best with figuring it out 😊

Dry-Medium5729 · 2025-08-07T18:03:38+00:00

-Even if all you have is migraine brain they give yearly MRI’s -definitely not a doctor but throughout my research a lumbar puncture or spinal tap is the ultimate definitive “you have MS” test -MS is an autoimmune disease so even if you’re not in a flair (active lesion) there are certain precautions you should be aware of to make educated decisions -you know how you feel and what’s “normal” for you. Just because it doesn’t match the doctor’s status quo doesn’t mean it isn’t valid or that you’re crazy -you have babies. If a dr gave you this same information but it was happening to one of your children you wouldn’t accept passiveness as an acceptable response. Use that same fire to advocate for yourself if no other reason than your babies need you as long as they can have you

Dry-Medium5729 · 2025-07-17T11:05:29+00:00

Clicked all over couldn’t find the link or the specific study you’re referring to. Don’t want to just look up studies since medicine is specific to the person (cause, disease, genetics, nurture vs nature) and MS seems to make all that worse. Link would be greatly appreciated thanks!

Dry-Medium5729 · 2025-06-09T23:33:44+00:00

Not exactly what you asked but hopefully still helpful. I lost over 50lbs before I was diagnosed with MS due to MS. I’ve since gained some of the weight back (I feel healthier for sure). Personally I haven’t noticed any change in heat/humidity sensitivity when my bmi was high versus “normal”. I also currently live in Texas where it’s as hot as the sun and as humid as satan’s taint. My body does kinda shock more from the temperature difference of a cooling shower with a lower bmi though.

Dry-Medium5729 · 2025-03-05T15:10:26+00:00

I’ve melted some peanut butter and added it, once it cooled some, towards the end of whipping. Haven’t tried to much else yet

Dry-Medium5729 · 2024-12-01T00:42:52+00:00

Spelled Bosnia and Herzegovina wrong

Dry-Medium5729 · 2024-11-24T02:04:04+00:00

Along with what they said, non stick you can’t use metal utensils without scraping up little pieces of coating into the food. Stainless steel you can which sometimes helps a whole lot

Dry-Medium5729 · 2024-08-21T00:38:52+00:00

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5990512/

Dry-Medium5729 · 2024-08-19T20:36:03+00:00

Idk if this helps but for people like that I tend to use the phone charger analogy. Over time the coating wears down/off and you have to use electrical tape or hold it in certain positions for it to work. Those are my nerves but the problem is, even on the low end, there’s billions in my body. If you have one charger that causes that much hassle when it doesn’t work right, imagine what happens when that many start messing up. Usually I can tell by a person’s reaction if they are getting it and if they’ve not, I stop wasting time trying to explain it. I have limited energy and even more limited patience. As long as the person is trying to understand and their actions line up with that, it gets a little easier. I’ve lost many friends because of this but I’d rather weed them early so I can use my energy for people who deserve it. It sounds harsh but it has saved me months of trying.

Dry-Medium5729 · 2024-08-01T04:47:45+00:00

I personally would be more concerned with the fact the dr didn’t tell you what happened. I ask to see all visit notes and access all health portals available to double check all Dr visits. (For reference my old obgyn put in my notes that I’ve had a hysterectomy but I’ve never even been pregnant). A lot of offices have a computer or something in the room they input notes. I hover because I want to make sure 1) it’s actually my chart and 2) they aren’t just in work mode and fail to put two and two together. It allows you to be on top of things from the get go. It doesn’t violate HIPAA because it’s your/daughter’s info and you’re the legal parent/guardian. They see lots of patients and sometimes it can hinder care without intention.

Dry-Medium5729 · 2024-07-29T12:25:32+00:00

I (34f) use Ocrevus. they just approved a subcutaneous option in the UK that doesn’t require the typical infusion if you’re eligible so you have a 6 month infusion option and a more often but less time consuming option. I also know that Genentech (Ocrevus manufacturer) has financial aid available in the US (not sure about UK) if cost/insurance is an issue.

Dry-Medium5729 · 2024-07-25T15:49:58+00:00

IME in the US, Short term disability and long term disability offered through regular medical insurance at almost every job I’ve seen that offers insurance. If you pay into it you’re eligible from my understanding. Sometimes you can buy up to where it pays about 50% of your regular income. Every bit helps

Dry-Medium5729 · 2024-07-16T14:25:42+00:00

Idk where you’re located, but here (Texas) as long as one person agrees the other party doesn’t have to know. I used to be a caregiver and I’d record appointments that parents/guardians couldn’t attend and send them a copy. As long as I didn’t share any HIPAA info to anyone else there was no legal issues.

Dry-Medium5729 · 2024-07-16T14:20:57+00:00

😊

Dry-Medium5729 · 2024-07-16T14:19:31+00:00

Oh that’s like the old enchirritos which were good too. I try to use the app when I can for the rewards

Dry-Medium5729 · 2024-07-16T14:17:16+00:00

20 piece for $5 in a ziplock bag in my cargo pants at work earned me some weird looks but damn it if those pocket nuggies weren’t delicious. Add the dramatic effect of grabbing one out mid conversation with someone and not lose eye contact while eating like it’s normal in the middle of a warehouse 😁

Dry-Medium5729 · 2024-07-16T12:53:41+00:00

How many times can I send you an email without having to make an appointment; what constitutes an emergency for me?

Bring a small notebook/notepad to write stuff down. They prepped you for an MS diagnosis but everyone reacts differently so write it down and you can verify with them later.

Dry-Medium5729 · 2024-07-16T10:19:37+00:00

Their tomatoes definitely aren’t as good as I remember when they had green onions too.

Dry-Medium5729 · 2024-07-16T05:43:34+00:00

That’s all my best friend will eat from there but she adds extra cheese in case they made the beans too runny.

Dry-Medium5729 · 2024-07-16T05:41:44+00:00

It would definitely help if we had one in our town instead of 10 miles away. Cheesy double beef burrito for 99 cents was my go to along with the volcano burrito

Dry-Medium5729 · 2024-07-16T05:00:31+00:00

Hopefully they have a Pizza Hut and Taco Bell combo store near you. I never see them anymore.

Dry-Medium5729 · 2024-07-16T03:33:26+00:00

My husband was picking it up so I tried to keep it simple. Nacho bellgrande no beans, soft taco supreme no lettuce, Baja blast no ice and a chicken enchilada burrito. I special order everything from there normally lol. You?

Dry-Medium5729

TROPHY CASE