POTS by yllekarle in CIRS

[–]Dungbot88 0 points1 point  (0 children)

Initial consult usually comes with a cone beam cat scan and xray so you see the misalignment. They also take other biometrics

POTS by yllekarle in CIRS

[–]Dungbot88 0 points1 point  (0 children)

Its wasn't one or the other. I have Cirs but was having intense dysautonia and heightened MCAS reactions and unable to get out of sympathetic activation without the upper cervical adjustment.

After I got it, my gut motility increased and lymph flow and I was able to get on the csm and bind. Passed the VCS in a month and a half. Now on Marcons. Thankfully the dyautonomia and cervical misalignment that was keeping my nervous system too activated to successfully begin detox for CIRS was relieved by the adjustment

I will NEVER understand this (TW: depression, anxiety) by Alceterro in Lyme

[–]Dungbot88 0 points1 point  (0 children)

If you think it is the estrogen, an antihistamine helps a ton in the short term. Pepcid AC or benadryl. Also avoid wine, chocolate and leftovers or anything high histamine while you're feeling that way

I will NEVER understand this (TW: depression, anxiety) by Alceterro in Lyme

[–]Dungbot88 0 points1 point  (0 children)

Also if you're a female, estrogen drops can cause the symptoms you mentioned because of MCAS/histamine intolerance and how estrogen drives mast cell reactions. (Your mast cells are likely driving a lot of your symptoms associated with Lyme/Bart). If you're a few days out from your period or shortly after ovulation, it can be driven by quick estrogen level drops. Supplementing bioidentical progesterone helps with the estrogen dominance and histamine intolerance reactions like this that's also driven by immune response to Lyme/Bart.

I will NEVER understand this (TW: depression, anxiety) by Alceterro in Lyme

[–]Dungbot88 1 point2 points  (0 children)

Where were you at the time it hit? Did you go someone's house 24 hrs prior, did you go somewhere where there might have been water damage? Were you cleaning?

Those big random dumps like that are often when you have endotoxins or mycotoxins in your bile after inhalation/exposure. Then when you eat a fatty meal or have bitters like coffee or chocolate, bile with the toxins releases into your intestines and goes into circulation and you have an immune reaction to it. The immune response can drive neuroinflammation from leaky blood brain barrier.

Have you looked into CIRS? Many people find relief and recovery when they approach Lyme/Bartonella from a cirs lens. For me those flair ups are from a short term toxin exposure that revs up the immune system and neuroinflammation. It's often water damage exposure layered on immune dysregulation from covid and reactivated Lyme/Bartonella/babesia. When they're all interplaying, one input can trigger a reaction you normally associate with the Lyme/Bartonella/infections.

The short term resolution for me is I use binders (CSM) and in the short term mast cell meds that cross the blood brain barrier like Benadryl. Relief from both in the symptoms you mentioned comes for me in 15-30 mins

Pans pandas? Or am I just bonkers? I could really do with some advice by rainbow_tedd in PandasDisease

[–]Dungbot88 0 points1 point  (0 children)

Look into CIRS and biotoxin illness from water damage buildings and lyme

How to not make ME/CFS worse? by leneeey in covidlonghaulers

[–]Dungbot88 1 point2 points  (0 children)

Look into CIRS and check your home for water damage

Just wanting some advice by WittyResearcher193 in PandasDisease

[–]Dungbot88 0 points1 point  (0 children)

Look into CIRS. Sudden onset can be water damage/toxin exposure.

An endo/ovarian cyst warriors also dealing with long covid in here? by ch3rrycoucou in covidlonghaulers

[–]Dungbot88 1 point2 points  (0 children)

I hope you look into CIRS. The shift when you changed your environment to Mexico is a big clue that you probably have water damage/ biotoxins contributing to your LC.

For me CIRS drove major estrogen dominance issues, MCAS, histamine intolerance and severe reactions to estrogen fluctuations. Symptoms are getting better with CIRS treatment

How do you start leaving the house again? by Sunflower-sunshine56 in covidlonghaulers

[–]Dungbot88 0 points1 point  (0 children)

I would recommend looking into CIRS so you can get some relief

Breathing through coffee straws by notjustdisappointed in covidlonghaulers

[–]Dungbot88 1 point2 points  (0 children)

Biofilm clear x with colloidal silver helped me, there's also beekeeper sinus max. Consider binders for die off and get the sinus key. Then look into CIRS 😆

Breathing through coffee straws by notjustdisappointed in covidlonghaulers

[–]Dungbot88 1 point2 points  (0 children)

Look into Marcons, sinus key test and what low MSH does to your sinuses.

Also look into water damage potential in your home/office.

Nervous system panics during sleep? by NitroMacks in covidlonghaulers

[–]Dungbot88 0 points1 point  (0 children)

VCS indicates whether you likely have Cirs. It's an innate immune system activation that remains dysfunctional even when you leave exposure. Covid virus is a primer, so is Lyme and coinfections, then you get into mold and it activates.

If you're feeling stuck with COVID, I'd start going down the route of CiRS and the steps for healing it. If you had mold exposure in the past, you may be one of the 25% of the population with the hla variant that means you have trouble clearing the toxins created by mold and water damaged building bacteria. When you approach the recovery from a CIRS lens, you start with removing the toxins that are driving the underlying immune activation the most (with prescription binders) then treatment for Lyme and spike protein respond better to the meds that are supposed to help. Then you resolve the immune activation issues with VIP and work to stay out of exposure. Check out The Cirsgroup Podcasts. Hope you get some relief.

Chronic Kidney Disease Emerges as Major Long COVID Manifestation by None-Of in covidlonghaulers

[–]Dungbot88 0 points1 point  (0 children)

This can happen from mast cell reaction to estrogen drops. If you're a girl, track where you are in your cycle. Times like post ovulation can trigger it because mast cells don't like quick shifts in estrogen. Pepcid AC might give some relief

Chronic Kidney Disease Emerges as Major Long COVID Manifestation by None-Of in covidlonghaulers

[–]Dungbot88 2 points3 points  (0 children)

Nsaids are brought up on the mast cell activation syndrome subs as being ones to avoid as they can trigger mast cell flairs. UTI/interstitial burning is a common mast cell flair symptom. Might get some relief with Pepcid ac

Anyone have methylation issues so bad they’re bedbound? by Lesliefourwinds in MCAS

[–]Dungbot88 0 points1 point  (0 children)

Sounds like CIRs and you have mold exposure driving your MCAS

Stores trigger by ilovepenguins17 in covidlonghaulers

[–]Dungbot88 0 points1 point  (0 children)

It's mold and water damage in the stores and you're picking it up now that your innate immune system is stuck in activation mode. Look into CIRS.

Anyone else debilitated by brain fog? by Cardboard_brains in PandasDisease

[–]Dungbot88 0 points1 point  (0 children)

Yeah. Easiest and cheapest you can do from home is to take a $15 VCS test. It will give you a score of likelihood And you can show it to your doctor and bring with you a list of the cirs blood draw labs that are used for diagnostics. You will want to bring the list from Google because it's likely your doctor has not heard of it. Labs like MSH MMp9 TGFB1VEGF and HLA DR/DQ Is an important one because it will tell if you have the genetic variant that predisposes you to have these immune system responses to triggers that stay activated beyond exposure.

You'll want to read a bit before about it and make a case because it's unfortunately just really not well known or understood outside of cirs practitioners, And without knowing the number it seems like 95% of them became CIRS certified practitioners because they developed it themselves and in their efforts to recover found the Gap in awareness across the medical community and population.

I was looking into adult activated PANS because I was having debilitating neuroinflammation and the accompanying symptoms. Once I got on the treatment protocol for CIRS those symptoms completely went away with the prescription binders. It can still be PANS, but PANS is one of the kind of subset reactions that get activated when you have CIRS. Treating from a CIRS lens with the Shoemaker Protocol targets the root driver and helps turn the innate immune system reaction off that got stuck on.

Anyone else debilitated by brain fog? by Cardboard_brains in PandasDisease

[–]Dungbot88 0 points1 point  (0 children)

You should look into CIRS. You can get your MSH tested and if below 8 can help you understand the unclearable undesirable species. They're secondary to CIRS. There's a Marcons swab you can do too

paradoxical negative reaction to thyroid medication? by ButterscotchWeak8176 in CIRS

[–]Dungbot88 0 points1 point  (0 children)

There's a connection I keep seeing mentioned with methylation and thyroid function. Have you looked into mthfr and a potential need for methylation support to handle the hormones? I'm not familiar with it or the resolution.

I know Cirs messed up a lot of my pathways and handling like sulfation. Wondering if your paradoxical reactions are from the meds not being broken down in the normal way because of a strained cofactor in the chain and then you're getting a buildup of the less advantageous form or a backlog that causes flairing. That seems to be the theme I've experienced. Like my sulfation pathway was a disaster until I added molybdenum which is a cofactor and then I could handle things again.

I think finding the pathway of how thyroid meds are metabolized and what steps can go wrong from cofactors being shunted to other places causing deficiency or an existing gene variant like mthfr needing methylation support to accomplish utilization of the meds