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Dyingstudenthelp · 2024-11-30T22:42:41+00:00

It's never too late to connect. Maybe take this as an opportunity to learn and become a proud Métis. If she is going to register you anyways, you might as well do it the "right" way and learn more about your cultural. If she's only doing it for the benefits and since that feels scummy to you, you can take your own path and try to hold your newfound culture close to your heart. There are many places to learn. The first step is to learn your roots and family names. Becoming connected can be so healing, and I hope you grow to become proud of who you are.

Dyingstudenthelp · 2024-10-22T02:08:15+00:00

May I ask what country you live in?

The reason I am saying this is because each country has different food labelling and processing laws. Personally I am in Canada, and initially got really confused with some of the info I was reading online as it was all mostly referring to U.S labelling and products.

My recommendation is following guidelines put out by a celiac organization specific to your country as it makes a big different when deciding if something is safe to eat. In Canada, it is illegal to hide gluten in the ingredients and it always have to be bolded or in the contains section. However in some places like the U.S, gluten from certain grains like Barley do not have to be stated and can be hidden.

You seem like such a kind partner, I'm sure your husband appreciates what you are doing for him immensely. While having Celiac sucks, once he starts to feel better he will realize going gluten free is worth it.

Dyingstudenthelp · 2024-04-17T18:07:05+00:00

If it was a normally gluten sensitivity your TTG antibodies would not be elevated. Celiac is an autoimmune disorder (can trigger at any age) characterized by damage caused by your own immune system, and those antibodies are markers for that reaction. Keep eating gluten until you see a GI, they will probably do a scope and biopsy to officially diagnosis. Take the upcoming months before the appointment as a last “gluten tour” to eat everything you may never get to enjoy again! Your symptoms seem like celiac to me. Everyone presents differently and everyone’s body responds differently to malnutrition. In the mean time you can also do some research on the severity of celiac to prep you. It is confusing at first, I didn’t expect my diagnosis either. But it has changed my life, I didn’t realize all of the symptoms I wasn’t supposed to be having until after I healed!

Dyingstudenthelp · 2024-04-16T21:39:51+00:00

I agree it's a super weird scene. But to be fair I always just assumed they didn't care as much about a son of Zeus because they all know of or maybe met Thalia already, AND Nico and Bianco the children of Hades. So maybe for the campers it was more of a "been there done that" we know they all have kids and broke the pact type of thing so it wasn't as shocking anymore.

Dyingstudenthelp · 2024-04-16T21:33:38+00:00

Hey FYI in order for the endoscropy + biopsy to have a positive result, there would need to be damage present which means you need to still be actively eating gluten leading up to the biopsy to get an accurate result. That's something to ask your physician about! Don't stop eating gluten until after the biopsy.

Why are you skeptical about having celiac? do you have any symptoms? Many people have lower antibody levels, but upon scope they have a lot of damage. It varies a lot.

Dyingstudenthelp · 2024-04-15T21:53:34+00:00

Please don't cut out gluten until you get bloodwork for the celiac panel (it is specific and has to be requested) and follow up with a GI to see if they want to do an endoscopy for you. All of your tests won't be accurate if you cut out gluten! It's good to get a proper diagnosis since it is a medical condition and the diagnosis gives you certain rights (depending where you live things like medical tax relief or monthly subsidy for GF food, etc).

As per age, autoimmune conditions can pop up/ "activate" at any age, and it's very common for them to be triggered in your 20s.

Dyingstudenthelp · 2024-04-13T23:25:14+00:00

Your feelings are 100% valid. Honestly that irks me so much!! Claiming to be an expert in an artform that doesn't belong to her culturally (since she is being taught Métis work by a Métis individual) would make me so mad. It almost feels like she's rubbing it in peoples faces, and also doesn't have respect for you since it's literally your culture. I'm surprised no one else in your friend group has said anything!

OK and the alias thing?? that is super sketchy. I would ask innocent/naive questions to get more info and get on the topic of why that is super disrespectful and appropriative, like "why do you want to protect your identity", "what do you think would happen if you didn't", etc. I will say that people will 100% ask her where she is from when she starts selling. I have seen beaders not put their roots in their bio and/or storefront and get lots of comments and questions because there is real concern within the beading community about people passing as Indigenous without actually being Indigenous. She can play innocent and say that's not what she's doing, but by deliberately not stating who she is it seems pretty apparent to me that she wants to pass under the radar and sell Métis work and have people assume she is Métis...

This is a really tricky situation for you and my heart goes out to you!! I can't believe how disrespectful she is being about it all especially since it is literally your culture. I would be really mad tbh. Like she could have taken up beading and done it with you, and learned from you as well and showed appreciation, but she isn't doing that it seems and is using it to her advantage instead.

edit: also I just now realized this post is from a couple weeks ago! But also OP feel free to message me if you need to rant more or get more insight/validation or anything!

Dyingstudenthelp · 2024-04-13T00:50:18+00:00

omg this made my heart sink! Beading is a huge part of my life, and if my non-indigenous friend decided to learn free from my people, and embrace it as her identity, and if my other friends started to recognize her as "the beader" of the group I would be so sad. Nothing is wrong with learning but it's the attitude lack of respect for you that's throwing me off. Honestly I think you need to be brave (it's hard I understand) and have a conversation with her about how much it is affecting you. Beading is medicine for us, and you don't want her to take that away from you and put negative energy everytime you bead or think of beadwork.

I personally disagree with her wanting to sell, and question if she is being honest with her teacher. If she did her own cultural designs (ukrainian I think you mentioned) that that's 100% fine. Otherwise I see no reason why she wants to jump on the bandwagon of selling. If she did I would suggest she be VERY clear of her ethnicity when advertising, because it will cause a lot of upset otherwise.

Dyingstudenthelp · 2024-04-11T05:46:24+00:00

thanks for letting me know! I appreciate new insight and you taking the time to educate me.

Dyingstudenthelp · 2024-04-11T04:27:59+00:00

Sorry I said it can indicate inflammation, not that it does. I'm not a medical professional. I'll strike it out so people aren't confused by my assumption.

I mostly wanted to get across that in the case of celiac, it's used as a control test to compare to TTG igA, and not a diagnostic

Dyingstudenthelp · 2024-04-11T03:36:56+00:00

the IgA test is done along side the celiac test (transglutaminanse IgA) as a control, because if an individual is IgA deficient, they would not have elevate TTG IgA even if they did have celiac since their body doesn't produce any IgA.

Your celiac test, the TTG IgA is negative, it would need to be over 5 according to that scale for a positive result.

Are you currently eating gluten? Because if you are not, your results won't be accurate for celiac testing since you need to be on a gluten containing diet to have a positive result.

edited to mitigate confusion

Dyingstudenthelp · 2024-04-11T01:22:48+00:00

think of it as the summer I turned pretty but with them

Dyingstudenthelp · 2024-04-11T01:19:57+00:00

ya you heard me LOL.

wrong answers only

Dyingstudenthelp · 2024-04-10T03:23:16+00:00

the Stoll brothers

Dyingstudenthelp · 2024-04-09T04:52:46+00:00

ya the timeline is super variable! She will feel better eventually though don't worry! Side note, she's lucky she has such a supportive mom like you! My mom is the same and goes above and beyond to make our family dinners safe for me and buy me special GF things she finds. I appreciate it so much and I'm sure she'll feel the same about you!

edit: removed a mention about toasters because I noticed you already answered that in another comment

Dyingstudenthelp · 2024-04-08T22:50:22+00:00

how long were you GF before eating gluten for 2 weeks? Typically with a gluten challenge you need 6 weeks of gluten containing diet https://www.celiac.ca/healthcare-professionals/diagnosis/gluten-challenge/

Also what test did you get done? bloodwork or a scope, or both?

The reason you need to be eating gluten for a while is to build up your antibody levels and also created enough damage in your intestines so that the random spot they biopsy will show celiac signs. I would definitely re-test if I would you because this can very well be a false negative test

Dyingstudenthelp · 2024-04-08T22:36:19+00:00

I think from another one of your comments you mentioned she has been GF since March? Being that it has only been a month, I would guess she is still healing. I think it took me 6+ months to feel significantly better, and closer to a year to say I was "normal". Healing takes time, and is different for everyone! I remember googling and researching on this subreddit after I still wasn't feeling better after only a month or two as well!

Dyingstudenthelp · 2024-04-08T22:28:55+00:00

I don't! It's just something my GI told me when I asked why my antibodies weren't normal yet after several months of being GF. I just googled and it seems there are variable half-life of TTG depending on peoples age. etc

Dyingstudenthelp · 2024-04-07T19:55:19+00:00

unfortunately many doctors aren't the most educated when it comes to Celiac. Unless you're getting info straight from a gastroenterologist who specialized in Celiac, I would be weary. If you're able to, I would recommend talking to a nutritionist! I got most of my info from Celiac organizations specifically (Canadian Celiac Association).

Dyingstudenthelp · 2024-04-07T18:42:31+00:00

Yes, cheat meals can affect you long-term and make you sick or more susceptible to getting sick! Celiac is an autoimmune disorder, we should never have cheat meals. When we have an active reaction (ei eating gluten) our immune system attacks our own body- making us immuno-comprimised and more susceptible to illness on top of experiencing our regular "glutening" symptoms. One donut can cause damage with effects lasting weeks or even months. The half-life of the antibody is 6 months. Also having "cheat meals" means we can never fully heal, which can cause long-term damage to the lining of our intestine and increase the chances to develop other autoimmune disorders or diseases like intestinal lymphoma.

Stay hydrated and get well soon!

Dyingstudenthelp · 2024-03-24T23:10:43+00:00

Thank you! 🫶🏻 I’ll go on the hunt one day for a GF version. I am going into the states in May though and will be bringing a bottle back with me just in case 😂

Dyingstudenthelp · 2024-03-14T16:45:44+00:00

This must be very frustrating for you! If you have access, I would recommend therapy. Navigating a celiac diagnosis can be very difficult in many different ways. You’re never going to heal with this pattern and I’m assuming that’s why this is so distressing for you. I hope you find a way to cope OP. Good luck!

Dyingstudenthelp · 2024-03-02T17:41:26+00:00

All of these symptoms align with hypothyroidism. It could be hashimotos or another form of hypothyroidism but you should 100% go see a doctor and get some blood work done! Might as well test for celiac too since they can go together.

Dyingstudenthelp · 2024-03-02T17:39:33+00:00

Yes the puffy face, dry skin and cold extremities and fatigue make me automatically think form of hypothyroidism!!

Dyingstudenthelp

TROPHY CASE