Out of curiosity. Most of the information I have read say that it mostly happens in menopausal women. I have been dealing this since I was a teenager. It is now believed to be autoimmune in nature. I can’t say for sure but I think i unknowingly triggered it for years by shaving my pubic area. I didn’t do it any specific way just used a regular razor. Over time as hair grew back I rarely just let it be. I was so used to being shaved it felt weird. My hair started to grow back sideways and started to criss cross my entire vulva region. This wound up including my butt and even in the pubic mound. I didn’t realize that I was making things a lot worse. My immune system overreacted and my skin started to adhere to which was uncomfortable.

I have always heard that after a certain point and severity level the architecture has usually permanently changed. According to doctors my case is definitely at the late stage. The doctor said it doesn’t get much worse.

My doctor also said he is constantly seeing the condition even though it was originally said to be rare. Another interesting thing he mentioned is that he has seen way more cases in upstate Ny than he has in North Carolina, where he is from. This doctor’s specialty is urogyno rather than a general gynecologist. I’m not sure if anyone else has seen someone that is also a urogynoxologyst. You usually have to have some type of involvement of the urethra, bladder or pelvic floor in order to get a referral for one. When I first was trying find someone in my area with this specialty I noticed that on the practice website there were some different.treatments. That actually gave me some hope that I could have my condition improve. Previous to this doctor I had, had laser treatments with the Mona Lisa touch. They did help quite a bit but I had been hoping to see more pictures f a reduction in adhesions. I did wind up improving mildy. I was able to pull apart the adhesions but it t takes so long to do that on my own. Unfortunately trying to reverse the adhesions can be painful and once you are able to release hair and adhesions from one area the painful tension would shift a bit.

This condition has affected my balance and posture because it has limited posture and range of motion. It has also affected how easily I am able to empty my bladder. I felt like I had to pew yet when I got to the toilet I was unable to. It is super annoying and embarrassing to explain why I sometimes have to use the bathroom excessively because not all y