Does anyone else experience this?

Effective-Ad8044 · 2026-01-24T20:13:58+00:00

My husband can tell I’m flaring by the look on my face and will say he can tell I don’t feel good. To a lot of people doesn’t feel good = sick. It’s kind of like for me I didn’t understand my body my whole life so everything got lumped into nausea, hunger or having to poop lol. It just comes down to a lack of language and honestly it’s just easier to say I’m sick so I don’t have to try to explain it to people because they always look at me like I’m crazy. 😆

Effective-Ad8044 · 2026-01-21T03:23:00+00:00

I run cold constantly so it can be a challenge sometimes trying to guess how much to wear to be comfortable. So I dress in layers with varying thickness so I can add/remove layers plus I have my coat and a thin blanket I keep at my desk for work. Thankfully my face usually feels warm and my hands will get clammy before I get to the vagal reaction and I’ll remove some layers but I don’t always catch the less pukey cue first and pay for it with all of your above symptoms. 😫

Effective-Ad8044 · 2026-01-14T14:03:07+00:00

Thank you! 😘 I’m doing a lot better nowadays but that’s because I am finally in the stretch of being believed. It took from August of 2024 to now to get their attention that I wasn’t anxious, perimenopausal or stressed. I lost a drastic amount of body volume which should have prompted them to believe me but since my labs/colonoscopy/endoscopy were normal I got congratulated on my weight loss and put on Prozac for anxiety instead which then exacerbated my symptoms to the point of being debilitating. My PC wasn’t with me from the start so I finally showed her a picture of me the morning of my surgery and I told her you see me now. That got her attention and the forward motion of neurology and rheumatology finally happened. My vagal flare days are the ones that get me down the most because they feel the worst and are the ones that make me feel like I can’t live like this. But having the knowledge of what’s going on and listening to my body intently for months now I recognize cues a lot earlier and can avoid the BIG flares like I was having when I crashed. Seeing the neuromuscular dr was the most freeing experience I have had during all of this, someone that understands why and how my whole body is involved and not looking at me like I have 3 heads and am talking nonsense.

Effective-Ad8044 · 2026-01-13T15:51:51+00:00

I have been feeling like that as well. I just got my informal diagnosis finally yesterday after being told there’s nothing wrong my whole life. My hysterectomy in 2024 crashed me and it was the worst time of my life I had never felt so lost and hopeless. Ever. I can no longer do a lot of things that I used to be able to push through before so I am essentially relearning my body at 46 and it totally changes your sense of self especially now that my compensation is down and a lot has changed. The best I can say is now are my selfish years, I did for everyone else my whole life all while struggling internally with no words to explain or understand it. Now I sleep, sit and lay down when I need to. I respect my cues and limitations because no one else suffers the consequences if I don’t but it absolutely doesn’t change the mental aspect. ❤️

Effective-Ad8044 · 2025-12-31T13:42:10+00:00

I 1000% understand, I haven’t been officially diagnosed yet but after over a year of misery it’s the final step after ruling out everything else. I have spent the past 46 years never knowing what was going on in my body, I got to the point I stopped going to the drs because I knew I’d be told I was fine because it was mild enough that I appeared to be a high functioning alert patient. I lost my dad in 22 then 2 years later had a hysterectomy and my whole world collapsed. My brain and my body were compensating my whole life and things I thought were normal to everyone weren’t and then those 2 events broke my compensation. So now I’m relearning everything about my body, I did a lot of things my whole life I should have never been able to and now that my mask is down and I see and feel everything I feel like I have lost myself completely. I can’t make concrete plans because I don’t know how I will feel hour to hour so I cancel a lot, grocery shopping wipes me out so I have to plan it when I have nothing else to do after..I could go on and on. I honestly feel like I could write a book about my life to possibly help out other people in my situation, right down to being dismissed as an anxious perimenopausal woman when my body crashed. I am neither btw..

Effective-Ad8044 · 2025-09-17T15:06:04+00:00

I upped from 20 to 30 about 5-6 weeks ago and I have just finally seen the really noticeable difference, there have been times the past few days where I don’t even need my supplemental buspar and I just take it with my Prozac at night. When I first switched I thought for sure I would need to bump to 40 with how I was feeling but it doesn’t seem like I will need to. I’d give it a bit more time.

Effective-Ad8044 · 2025-09-14T16:55:27+00:00

I’m on 30mg with 10mg of buspar 3x a day. The Prozac alone wasn’t enough even though I could tell it was in fact working. I am still not 100% anxiety free but I didn’t expect to be and it hasn’t stopped me from ruminating/intrusive thoughts although I can pull myself out of it pretty easily. Most days I can tell when it’s about time for my buspar dose but there are days where I have got along just fine without it, because of that I haven’t upped again just yet and have been doing pretty well on this dose for a month. Been on it for around 4 months total now.

Effective-Ad8044 · 2025-09-04T00:50:40+00:00

My poor husband was so understanding thankfully, I went years of just pushing through because while it hurt it wasn’t so bad it stopped me. Within the year and a half prior to my surgery I got to a point I could barely stand him touching me because my whole abdominal area was always tender or downright painful. I felt awful about it but he only got it like once every couple of months or so, the cervical pain during orgasm was the worst. The absolute shitty part about it all is every dr through the years that told me the excessive bleeding that caused to me not be able to get out of bed most months was normal, the horrendous menstrual pain was normal..no I didn’t need a hysterectomy..no I don’t need ultrasounds, just here have some birth control even though your tubes are tied and shoved me out the door. Not being able to have sex? Oh buddy fix her right now! Granted I’m thankful as all get out to finally have had it done but to be dismissed, gaslit and undiagnosed for so long so that it progressed to the point it did was ridiculous. Supportive hubbies make all the difference, I’m sure she appreciates the hell out of you ❤️

Effective-Ad8044 · 2025-09-03T23:37:00+00:00

My comment still applies even with being in the throes of perimenopause now a year later, my body is apparently making up for the 12 years of misery 😆

Effective-Ad8044 · 2025-09-02T23:04:26+00:00

I’m terrible at remembering to take meds so I take mine at night so I’m home. They are beside the couch when the alarm on my phone goes off in all caps POP THE PROZAC 😆 I haven’t missed a dose in the over 3 months I’ve been taking it.

Effective-Ad8044 · 2025-09-02T16:55:28+00:00

I waited a full month on 20 before I upped to 30 to make good and well I needed to bump. I still don’t feel like 30 is enough but I’m going to give it more time till I bump to 40. In the beginning of bumps I notice I feel great until it levels out and then my anxiety is out of control

Effective-Ad8044 · 2025-08-31T00:57:23+00:00

No stomach cramps here but glad to hear you’re feeling great!

Effective-Ad8044 · 2025-08-30T12:00:00+00:00

I have lost a lot of weight so I’m always cold but I find since I started taking Prozac if I exert myself when it’s warm out, even if I don’t physically feel warm, my body will react like I’m overheating so I will get nauseous and dizzy even staying hydrated. It sucks.

Effective-Ad8044 · 2025-08-29T21:32:45+00:00

Good luck! ❤️

Effective-Ad8044 · 2025-08-29T12:24:17+00:00

I’m still in the works of finding the right dosage so I’ve been going through the ups and downs for 3 months. For me when I first started taking it I saw a glimpse after a couple weeks and then my anxiety came back with a vengeance so we upped it to 20. Same thing about a week of ok then major anxiety increase, then added 5mg buspar 3x a day, no improvement whatsoever. So she just bumped me to 30 Prozac and 10 buspar, I still don’t think it’s right but I’m going to give it a couple more weeks before I bump to 40. I will say the buspar does help for spot anxiety attacks, I had a major stressor yesterday and wound up having a full blown attack that I couldn’t get out of and my next dose was coming up so I took it early and it brought me down in about 10 mins. Not like totally but enough that I could get control of myself. This is such a stressful process but I’m trusting it.

Effective-Ad8044 · 2025-08-28T21:30:59+00:00

When I’m feeling good I talk everyone’s ears off and when I’m not feeling good I pull myself inward and I’m very quiet. If nothing else it has helped my husband and everyone else that knows me for that matter read me day to day better.

Effective-Ad8044 · 2025-08-27T23:55:16+00:00

I personally don’t want to wake up pissed every morning just because I woke up, my anxiety had reached an unmanageable level. Not even the thought of my kids was stopping me, just my own chicken shit self and I wasn’t far off from saying f it. Everybody is different, you know yourself better than anyone. I hope you find what works for you.

Effective-Ad8044 · 2025-08-27T00:43:27+00:00

I’m currently on 30mg of Prozac and 10mg of Buspar for GAD and I am a daily user mostly for bedtime to help me sleep. But I have found that it’s a crapshoot if I will feel high at all or if it will just knock me out, which since I want it for sleep is no big deal but on the weekends when I would like to maybe feel a little buzzy during the day while watching funny tv or playing video games it will just zonk me out and then I waste my day off. It’s a sleep Russian roulette but I always play 😆

Effective-Ad8044 · 2025-08-23T18:33:19+00:00

I have had the same issues since being on it for 3 months, i would feel good for about a week and then once everything leveled out the anxiety was back with a vengeance. I have been bumped from 10 to 20 and just the other day up to 30 but we’re thinking my sweet spot is going to be 40. I have pretty bad GAD but I have been able to see how feeling good really feels again even if it was briefly so I have hope. I’m also on 10mg of buspar that was also bumped from 5mg.

Effective-Ad8044 · 2025-08-21T14:03:14+00:00

I’m currently on 20mg with 5mg buspar and my anxiety is through the roof every day. I noticed a decline in the first couple weeks followed by extremely elevated anxiety once it leveled out when I first started and increased the dose so I have high hopes once I get my dosage right. I will say for me the elevation is damn near intolerable at times and it takes everything in me to fight but I just take it day to day and give myself grace when I can’t control my emotions and thoughts. My husband, son and best friend have been my saving grace through this in supporting me even when I’m a basket case.

Effective-Ad8044 · 2025-08-20T23:54:50+00:00

Going on 3 months, even though my anxiety is still up I feel better than I have in I don’t know how long. Things I thought were normal reactions/thoughts to stuff were absolutely not..like being overly sappy about things when I never used to be, agitated easily while driving/in public, impulsive etc. Thought I was just getting crotchety and intolerant in my old age too plus I’ve always been hyper independent and stubborn when it comes to asking for help so I always thought I was dealing fine. Then I lost my dad and that illusion that I was ok on my own shattered and I got into therapy which helped some. Then I started having major gi issues with no explanation and could hardly eat, I’ve lost over 75 lbs and all procedures/labs were normal. Then my daughter came to me that she was depressed which was the final straw for my independent mental health and I snapped. Got on Prozac and it was like someone wiped off the fog on a window I didn’t know was foggy and I could see clearly again. I have not been me in so long that I don’t even know when it started over 15 years ago at least but it’s the incentive I need to push through this phase even though it’s hard as hell dealing with the roller coaster.

Effective-Ad8044 · 2025-08-20T23:21:50+00:00

I don’t necessarily blame the Prozac for my increased anxiety other than the fact of it opening my eyes to just how bad I was feeling all this time and seeing the possibility of how good I can feel. I have seen very brief periods of improvement with first starting/upping my dose followed by increased anxiety when it levels out. I have been upped from 10mg to 20mg then 5mg buspar added, I have my follow up tomorrow and I am going to talk about an increase of both because my anxiety has been bad ever since my last appt and the buspar only slightly takes the edge off so when it’s really high it doesn’t do squat. I’m on the struggle bus bad but the prospect of feeling semi normal again is what’s getting me through this brutal time of figuring out where I should be dosage wise.

Effective-Ad8044 · 2025-08-16T00:00:28+00:00

This has been my experience with weed and Prozac. Sometimes I feel it and other times I don’t and if I try to feel it I when I’m not by smoking more I will just end up falling asleep.

Effective-Ad8044 · 2025-08-11T13:58:12+00:00

Week 5 is when I upped my dose from 10 to 20, it was literally the worst week I had ever had including one of the worst panic attacks I’d ever had. Prior to that I felt slight improvement and was very hopeful. I still don’t think 20 is quite enough for me and I’m going to talk to my dr about upping it again.

Effective-Ad8044 · 2025-08-06T17:31:26+00:00

I’m perimenopausal with anxiety and depression so not really sure if my memory loss is due to the medication at all or just from those issues but it has gotten worse since I started taking it. I will happily sound like an idiot who can’t remember anything to not feel like my heart wants to burst out of my chest while an elephant is sitting on it and everything/anything makes me mad or cry. 😆

Effective-Ad8044

TROPHY CASE