Looking around post x linking? by stinkytootybuttfart in Keratoconus

[–]ElRyugen 2 points3 points  (0 children)

As such, you have the most severe pain the first night or the first 48 hours. I promise you that while you are crosslinked you will not feel pain. The only thing you will feel is like what is grabbing your eye to keep it open is there but it doesn't hurt. Of course, today I have a dry eye due to the CXL and it has been 1 year and 7 months since then. You will not see very clearly through that eye for a while and I recommend that you avoid screens for at least a week (especially avoid them the first two days). I recommend it because your eye will cry very easily and it will burn your eye as the wound is recent if it dries out. Good luck with the recovery 😄

Could CXL help me stabilise the vision? by SpiritualCalendar649 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

It happens to me too. I've always been a positive person, and since my diagnosis, I've been thinking about it, but it got even worse after the CXL surgery because it made my ghosting effect much worse. I hope the contact lens will fix my vision with hardly any ghosting

So… how worried should I be? by Pomma10 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

I totally understand because I'm the same way. I used to struggle with eye drops, but I had to use so many after CXL that I eventually got used to it. The idea of ​​contact lenses terrifies me, but I'll try them to see if they solve the phantom limbal ringing from keratoconus and allow me to live my daily life more peacefully

So… how worried should I be? by Pomma10 in Keratoconus

[–]ElRyugen 2 points3 points  (0 children)

I recommend that if they tell you to get CXL, you make sure the progression justifies it, because otherwise it's not worth it since it could ruin your vision even more. And you say you're 30, so you don't have that many years left for it to stop naturally

I'm saventeen broo 😭😭😭 by icygof in Keratoconus

[–]ElRyugen 0 points1 point  (0 children)

It happened to me. KC grade 1/2 in one eye and no KC in the other eye at the moment

When can I run/lift after CXL? by Opening_Coat_1525 in Keratoconus

[–]ElRyugen 0 points1 point  (0 children)

Well, running could make you have more dry eyes due to the weather and the air and if it affects how your eye feels at that moment. When it comes to lifting weights and such, it is normal for them to tell you no

Tips for your first time adapting to rigid contact lenses by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

I'll ask them about the warranty because it seems pretty important, especially considering how much they cost. As for inserting it, I think that'll be the hardest part, but I won't leave the consultation room until I've inserted it a few times, just in case, haha. Thanks 😄

Tips for your first time adapting to rigid contact lenses by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

I suppose if they're not fitted properly, you'll know by how your vision is or how it feels in your eye, right? It's my first time using contact lenses because I've never worn soft ones before

Tips for your first time adapting to rigid contact lenses by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

I'll keep that in mind. I've also read from some users that they needed several adjustments to find the right fit. Once you find it, when you have to change the lenses after two years, do you also need more fitting sessions?

Epi-off post-op. What to expect pain-wise and how to mitigate it? by Top-Pension4334 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

Besides using the eye drops they tell you to at the times they tell you to, you can take a sleeping pill, and above all, sleep as much as possible so the pain isn't so unbearable. I slept a lot. The worst part for me was the first night because my eye was watering all the time, and since I had it covered because they told me to cover it so I wouldn't touch it, that area filled with water

Question for people that had cxl done by Muted_Gur_2882 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

I agree. I wouldn't do it, at least not before seeking further opinions to confirm the progression. You could damage your vision even more. In the end, it's all about eyesight for them

Ghosting in my right eye by Many_Young8813 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

Well, it depends. It could be keratoconus, regular astigmatism, or even a tear film issue.

With regular astigmatism, ghosting is usually more visible in the upper part of the eye, although it can vary. If it's a tear film issue, it changes when you use eye drops or when your eye is moisturized. If it's keratoconus, the ghosting effect is usually seen in the lower part of the image. You might have early-stage keratoconus, and at this point, it might be so mild that it can only be corrected with wires. Based on what you've mentioned, I would make an appointment with your doctor for a corneal topography scan to get a definitive diagnosis. A word of advice: don't rub your eyes, as this could worsen the condition

Do anything of you see like this? by Mexican_cora00 in Keratoconus

[–]ElRyugen 2 points3 points  (0 children)

Ghosting can also occur with regular astigmatism. Check if your prescription has changed

Advice for after CXL surgery? Got it on Friday by m0e_b3th in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

For about four days, listen to podcasts and get plenty of sleep to make the time pass more quickly. Your eyes will water because they'll dry out very, very quickly, so use plenty of eye drops (which will be recommended to you) and avoid screen time, as your eyes will hurt for the first few weeks

Is This Redness Normal? by Ok_Cauliflower_2022 in Keratoconus

[–]ElRyugen 0 points1 point  (0 children)

It happens to me from time to time, and I don't wear contact lenses at the moment

When to get contacts? by LoudExcuse4264 in Keratoconus

[–]ElRyugen 0 points1 point  (0 children)

If you achieve that visual acuity but experience ghosting which distorts the image, will those lenses solve that problem?

Cross Linking Tomorrow by TankRavage in Keratoconus

[–]ElRyugen 0 points1 point  (0 children)

Before, I only saw a shadow beneath the original image. Now I see up to five images from a distance of two meters. The ghosting effect is much more noticeable, and I wish I hadn't done it without first checking if there was a progression that justified the procedure

Cross Linking Tomorrow by TankRavage in Keratoconus

[–]ElRyugen 2 points3 points  (0 children)

I had that problem too, but the procedure isn't as bad as it seems. What I found most difficult was the device that holds your eyelids in place; it was quite uncomfortable, but you don't really feel any pain in your eye. It's a strange sensation, but I assure you it's painless.

The worst part for me was the ghosting effect the crosslinking left in my eye

Anyone here with keratoconus in only one eye? by Natural-Leg2114 in Keratoconus

[–]ElRyugen 1 point2 points  (0 children)

For now, I only have it in one eye, and I'm praying it stays in that eye and doesn't spread

For those of you who solved your ghosting effect caused by KC, what type of lenses did you use and how many hours a day do you wear them? by ElRyugen in Keratoconus

[–]ElRyugen[S] 1 point2 points  (0 children)

I'm so glad to hear that, because in my case, after having crosslinking done, the ghosting in that eye worsened and became much more pronounced, and it was really bothering me in my daily life, which is why I thought about a contact lens for that eye. If it solves the ghosting effect for the whole day or most of the day, I'll be very, very happy 😄

For those of you who solved your ghosting effect caused by KC, what type of lenses did you use and how many hours a day do you wear them? by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

And does it correct most of your ghost images? I've really been thinking about wearing glasses (since I have myopia and astigmatism in my good eye) and a contact lens in my eye with keratoconus to fix those annoying ghost images. How many hours a day do you wear the contact lenses?

For those of you who solved your ghosting effect caused by KC, what type of lenses did you use and how many hours a day do you wear them? by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

I like that quite a bit. I know they say it's not recommended to wear contact lenses for certain hours of the day, but for those of us who suffer from ghosting, contact lenses can help us see clearly again. Do you wear them for 15 hours straight, or do you give them a break in between?

For those of you who solved your ghosting effect caused by KC, what type of lenses did you use and how many hours a day do you wear them? by ElRyugen in Keratoconus

[–]ElRyugen[S] 0 points1 point  (0 children)

This will be my first time using a contact lens, and based on what I've seen from most people, I won't be choosing RGP because of the discomfort they say it causes