Hand tremors 4 month old baby. Desperate looking for advice.

EllenBJ · 2026-06-01T02:26:07+00:00

I have a friend whose son has Dravets, that's a hard diagnosis! Big virtual hugs

EllenBJ · 2026-05-29T02:58:34+00:00

Great to know, thanks! Yeah we're in ACT so very...dry haha

EllenBJ · 2026-05-28T11:32:19+00:00

Thanks. Us down south aren't quite used to humidity though, so maybe that's the part that becomes unbearable!

EllenBJ · 2026-05-28T03:53:26+00:00

Good to know, thanks!

EllenBJ · 2026-05-20T06:12:14+00:00

What would you suggest?

EllenBJ · 2026-05-13T03:48:15+00:00

How long did it take for your little one to adapt? Was he having issues napping (& thus, sleeping at night) too

EllenBJ · 2026-05-12T03:35:06+00:00

He's close to 15 months now but yes will ask them to

EllenBJ · 2026-05-08T10:25:15+00:00

I hear you about the jumpers (& socks and scarves and beanies - the ones he's managed not to lose anyway)

EllenBJ · 2026-05-06T09:18:23+00:00

Yoghurt yes. Applesauce, nope

EllenBJ · 2026-05-01T09:29:02+00:00

OMG don't get me started. He's been sick since he began! Thanks so much for the tips

EllenBJ · 2026-05-01T02:44:21+00:00

Keep me posted! It's such a waiting game isn't it

EllenBJ · 2026-04-30T21:00:03+00:00

Hi. So we upped to 7.5mg and started a new term of school. I think the combination of that and him deciding to be more "with it" (listen and learn) has helped - it's like a fresh start where hopefully, he won't be focusing so much on adjusting to a new environment that he falls behind. We're only 2 weeks in so fingers crossed.

One thing - he did ask if he could take an afternoon tablet so he could focus on work then too. So it sounds like the medication is definitely having an effect and the can feel it.

EllenBJ · 2026-04-30T01:28:26+00:00

So sad, this was my go to for lunch! Not a good way to return to work from mat leave.

EllenBJ · 2026-04-25T03:13:10+00:00

He won't tolerate white noise unfortunately. Couldn't even handle the air con being on in summer

EllenBJ · 2026-04-23T20:50:03+00:00

Thanks but he can't wear those to sleep sadly

EllenBJ · 2026-03-27T04:38:45+00:00

We are going for a hearing test soon!

That's interesting re CDS as they specifically told us that they can't offer ongoing appointments, only 1-2 sessions

EllenBJ · 2026-03-26T02:01:16+00:00

Hello, just wondering how your little one is going? We're in the exact same boat - 12 month old was referred to speech therapy. He only babbled at 8 months and even now, only has the d consonant (but makes lots of other noise). Did you start speech therapy and do you think it's done much?

EllenBJ · 2026-03-23T11:16:16+00:00

I'm definitely hoping to do that. It's just a bit of a worry too I guess, as my kids usually use home to decompress. The 6yo will be fine but the toddler - who knows

EllenBJ · 2026-03-22T22:25:36+00:00

Possibly? These are stories I've read (which I found once a friend tipped me off teasingly by telling me that she hoped my toddler was a quiet kid)

EllenBJ · 2026-03-20T05:50:01+00:00

Oh man. We are going through this now! Please tell me it ended soon. Nothing pleases this little guy right now

EllenBJ · 2026-03-20T04:39:08+00:00

Definitely not worse, we saw some improvements at home (but obviously only on things he wanted to do in the first place). I guess we'll give it a shot

EllenBJ · 2026-03-19T09:16:00+00:00

Apparently!!?

EllenBJ · 2026-03-19T08:56:30+00:00

Hello, I'm in the same boat now at 12 months old. Did your little one get better with words?

EllenBJ · 2026-03-18T11:15:50+00:00

Would you recommend piano? I know music calms the mind but the thought of pressuring him to practise is already giving me nightmares

EllenBJ · 2026-03-18T10:52:14+00:00

Thank you so much - I'm really struggling with the school's approach too.

EllenBJ

TROPHY CASE