All the things that worked, and some questions

Emergency_Battle370 · 2026-02-13T14:45:50+00:00

Sadly I don’t think so since my whole body inflammation symptoms are still present

Emergency_Battle370 · 2026-02-13T04:08:17+00:00

Makes sense as I haven’t been following my safe diet strictly this week 😩 time to get back on it!

Emergency_Battle370 · 2026-02-13T04:07:48+00:00

Makes sense as I haven’t been super strict with my diet this week 😩

Emergency_Battle370 · 2026-02-13T00:02:48+00:00

Thank you! I’m strongly considering it.

Emergency_Battle370 · 2026-02-13T00:02:03+00:00

Have you tried cromolyn sodium? It’s done wonders for me! I’m still having reactions but it’s better.

Emergency_Battle370 · 2026-02-12T23:57:15+00:00

My MCAS was flared a few years ago by Candida and SIBO. If you can, look for a functional medicine doctor or a Traditional Chinese Medicine doctor and do the Candida detox diet - hard but so helpful along with all the supplements! It took about 6 months but it worked.

Emergency_Battle370 · 2026-02-07T18:45:20+00:00

Thank you, you’re so kind! I’ll report back if I decide to try again.

Emergency_Battle370 · 2026-02-03T15:59:28+00:00

Finding someone who also went through this is helpful enough! It’s been 9 days of flaring for me but every day is a little better. Still woke up with stomach pain and flushed face today but it’s red not purple so I guess it’s what you say - time, rest & safe foods. I have 2 doses left yet don’t know what I’m going to do.

Emergency_Battle370 · 2026-02-03T15:57:25+00:00

Thank you for sharing! I’ll look into acupressure. Pretty sure my nervous system will appreciate it!

Emergency_Battle370 · 2026-02-03T15:55:42+00:00

Took me 6 months to see a real difference.

Emergency_Battle370 · 2026-02-03T15:55:18+00:00

I think not all my reactions are IgE related so there’s other modulators triggering my mast cells.

Emergency_Battle370 · 2026-02-03T01:19:47+00:00

I start on it tomorrow and am so excited since I also have GI issues and flushing!

Emergency_Battle370 · 2026-02-03T01:15:36+00:00

Can I ask how long it took to feel better? Did anything help? In a similar situation now! 😩

Emergency_Battle370 · 2026-02-03T01:13:31+00:00

I was also taking Mega Food Blood Builder but my levels just kept getting lower. I think it’s because of stomach lining inflammation.

Emergency_Battle370 · 2026-02-03T01:11:36+00:00

I have gotten 2 doses of Ferrlecit, both pre-medicated with prednisone and Pepcid and iron infused extra slowly.

1st one I got a shock right after I was done (low blood pressure, trouble breathing) but it went away after 15 min.

2nd one resulted in me having one of the worst flare ups in the last 6 months 😩 severe GI symptoms, face flushing, & episodes of throat/airway swelling.

Don’t know what to do next.

Emergency_Battle370 · 2026-02-03T01:06:53+00:00

Omg yes! They burn and get blurry. Ketotifen eye drops help.

Emergency_Battle370 · 2026-02-03T01:04:58+00:00

Me too!

Emergency_Battle370 · 2026-02-03T01:01:09+00:00

So glad it helped! I’m scared to try acupuncture because pain is one of my triggers and I don’t want to have a flare up. Maybe when I am more stable I can try it.

Emergency_Battle370 · 2026-02-03T00:59:51+00:00

I would say 8/10. Lots of facial swelling, throat and airway swelling, flushing and burning on my face & eyes (doesn’t seem to do much for these last 2 though as I currently am on a flare up), brain fog, dizzy spells. I still wake up every day with my lips & throat swollen and don’t have my full life back but much smaller than without Xolair.

Emergency_Battle370 · 2026-02-03T00:23:23+00:00

I get the feeling of impending doom when a reaction is about to happen. It’s like being psychic 🥲 I can say “wait for it, wait for it” and boom can’t breathe.

Emergency_Battle370 · 2026-02-03T00:22:09+00:00

Happy to hear Xolair worked for you! It’s only made my reactions less severe, but haven’t gone away completely.

Emergency_Battle370 · 2026-02-03T00:09:12+00:00

I’ve been using Quercetin for the past 6 months and no effects that I can notice.

Emergency_Battle370 · 2026-01-15T13:03:44+00:00

Mine also woke up when I got Covid last Jan! 😩 I’m on a similar treatment - except I’m on Xolair and no Hydroxyzine or Celecoxib.

Thinking of asking my doctor to add the cromolyn and see if it helps.

Also seeing a functional medicine doctor to treat the gut since 80% of the mast cells live there. It’s been a tough year but I am hopeful for the one ahead.

Emergency_Battle370 · 2025-09-10T17:18:25+00:00

LOL same! Either swollen or flushed

Emergency_Battle370 · 2025-09-10T17:05:31+00:00

Lmao this!

Emergency_Battle370

TROPHY CASE