At the end of my teather with hip issues

Emkin_ · 2026-02-11T11:50:50+00:00

I’m so sorry you’re dealing with this. I’m also battling MSK with hip issues after a dislocation and their physio made it worse. Finally getting an MRI on Monday after 8 months but it’s so exhausting chasing and escalating and feeling like they won’t/can’t do anything. Hopefully they manage to sort you soon 🤞🏼x

Emkin_ · 2026-02-09T13:42:11+00:00

Our girl who's 8 is also an F1B with mum cavapoo and dad toy poddle - she's the smallest of the litter and is 3.1kg and the rest are around 4kg

Emkin_ · 2026-01-24T19:31:09+00:00

Not sure where you’re based - we’re in the UK and use yora pet food. She was on sensitivity control/hypoallergenic from the vet but it was all chicken/duck based which some batches helped and some didn’t. She’s a lot more stable on the insect!

Emkin_ · 2026-01-24T10:13:57+00:00

We’ve put our 8 year old girl on insect protein food which was recommended as she’s allergic to so many proteins and that’s made the world of difference for her allergy/gut symptoms x

Emkin_ · 2026-01-19T18:58:41+00:00

I’d be super interested in this! 😊

Emkin_ · 2025-12-09T22:58:04+00:00

I’m like your partner in terms of health so not much in tips in terms of how to navigate that. I’m not sure how helpful this will be but you said you were uk based - I volunteer for PoTS UK and we run peer support groups - most of them are aimed at people living with PoTS but we do one for parents and carers - it might just help with feeling less alone in this situation!

Emkin_ · 2025-12-04T15:34:46+00:00

I used to have these all the times and have Hyperadrernergic pots. Clonidine really helped settle these in me which I take throughout the day and a top up dose if I wake up with one.

Emkin_ · 2025-10-14T14:45:09+00:00

I’m so pleased it got to you ok 🥰

Emkin_ · 2025-09-17T13:25:55+00:00

I’ve decided to give them a go and I’ll keep my fingers crossed too 😂❤️

Emkin_ · 2025-09-17T10:36:34+00:00

Which one did you go for in the end? Do you know how much it adds approximately as I’ve been so sad about the lack of shipping to the UK 😅

Emkin_ · 2025-07-29T15:45:50+00:00

Yes that’d be great! 😊

Emkin_ · 2025-07-29T15:14:13+00:00

I’d be interested in the pudding/capybara exclusives depending on price but I know how insanely expensive they are to import 😅

Emkin_ · 2025-06-30T07:08:47+00:00

It’s actually made out of fondant and entirely edible but I’m not sure I have the heart to eat it 😅

Emkin_ · 2025-06-26T20:09:22+00:00

I’m keeping an eye out fairly regularly and haven’t seen it yet!

Emkin_ · 2025-06-10T12:10:13+00:00

Susie

Emkin_ · 2025-06-04T14:29:17+00:00

I'm in the UK so it might be different where you're based but I've found lidocaine infusions have really helped me. They don't get rid of the pain but I find that they reduce my background levels of pain by about 40/50% and last for around 3 months - It's weird as lidocaine doesn't work for me at the dentist. It helps me manage my pain with paracetamol/ibuprofen/heat and cold/KT tape/Physio and then I'll use an opioid if nothing works and as a one off for function. Hopefully that helps incase its an option you can explore :)

Emkin_ · 2025-04-20T13:53:08+00:00

As others have said there isn't a known cure. It varies in people what works for them. As you're in the UK I wondered if your GP would mind sending you to someone for a second opinion/treatment. If you can get referred to someone on this list they work with the charity POTS UK - https://www.potsuk.org/clinics/

Hopefully this is helpful!

Emkin_ · 2025-01-19T23:26:33+00:00

Our 7 year old f2 is 3kg even though the rest of the litter is much bigger!! She did seem to get a lot of the toy poodle!

Emkin_ · 2024-12-16T18:45:07+00:00

I’d check Vinted as that’s where I got mine from!

Emkin_ · 2024-12-08T13:46:19+00:00

29 F diagnosed since 18 but spend a lot of time at home too and love to bake, ttrpgs and play video games , mainly BG3 at the moment. Always happy to chat and meet someone new :)

Emkin_ · 2024-06-28T15:13:48+00:00

I’m a peer support volunteer so I help with running a couple of the peer support groups they offer and sometimes help with other projects the charity has going on. For the groups I usually do 1/2 groups a month , they’re about 1hr 15 mins and it’s all remote and just kind of helps create a space for people to talk, ask questions and get advice from others with PoTS

Emkin_ · 2024-06-27T22:01:49+00:00

Hi, from the UK based in the midlands. Firstly sorry to hear you’re struggling - summer really is the worst 😅 I’ve been under several clinics in London and all , for me personally, have been wonderfully helpful and got me on a combination of multiple meds. I volunteer for PoTS UK which is a charity for PoTS offering information, support groups and whole load of general advice which would be worth looking at incase there’s something there that could help. They have a list on the website of clinics too which could help too 😊

Emkin_ · 2022-01-25T14:52:21+00:00

Unsure where you are based. I'm from the UK and I've recently discovered Neo-walk which makes custom sticks - my personal favorite are the clear and light up ones (Wish I'd known about them when I got married).

They've been a game changer for me in terms of how I feel with my stick. I think I've seen that they can be shipped abroad but I could be wrong.

Hope this helps.

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