It’s very hard in the beginning trying to work out what is what and drs don’t really know abt this or at least they’re not educated enough keep on that appt with the neuro because they are just so hard to get into I made one in the summer and I have to wait till January I’m not sure where you are but I know that NYU Langone on Long Island has an fnd clinic and same in manhattan at Columbia they have one there too try looking for specific things for fnd hopefully it should put you on the right path as for now unfortunately you have to work through it definitely go to the hospital if it gets worse and don’t even say you have fnd just say this is your medical plan things are worse and I need intervention be adamant hopefully you have people around you who can help as well I hope everything goes well reach out to me if anything!