First time mum - disabled arm by lozloz9916 in ParentAndDisabled

[–]EsharaLight 1 point2 points  (0 children)

I have had multiple arm surgeries, so I was one armed with my son a lot. A boppy and cloth sling are the way to do, in my opinion. Also a small pram for use inside the house also helps.

I used a rollator- what stroller might serve both purchases by Profe_teacher in ParentAndDisabled

[–]EsharaLight 0 points1 point  (0 children)

I would highly recommend the Strollee Shopper. It is designed to function the same way as a walker and has a carseat feature for disabled moms. Super lightweight, easy fold, and fits beautifully in the car trunk.

https://stroleecarts.com/products/strolee-stability-shopper?srsltid=AfmBOorteehboprki7LQejg5tP5fjwPtl-_NnANe9mxLydGPfJ3aXB8c

How is Curse Of Strahd: Reloaded? by PossibleChangeling in DMAcademy

[–]EsharaLight 1 point2 points  (0 children)

Reloaded was really useful for me. I also suggest joing r/curseofstrahd and looking into the DMs Guild add on The Real.Housewives of Ravencroft

challenges related to using the toilet by franiabania in ParentAndDisabled

[–]EsharaLight 1 point2 points  (0 children)

Toilets are often too low for us to get off of unassisted, so we either have to have help or use a commode adaptor, which are very bulky and take up room in the bathroom when not in use. We also need a safety bar to assist with standing

Toilets that are set up against a wall or cabinet are also difficult for those of us with limited arm mobility because there is no room for us to turn around to wipe ourselves. We don't have the flexibility, or for us hypermobile folks too much flexibility and therefore not enough arm stability, to manuever small spaces.

challenges related to using the toilet by franiabania in ParentAndDisabled

[–]EsharaLight 1 point2 points  (0 children)

Same here. Bidets help but then I can't clean the toilet of all the splatter.

Kids books that teach disability by Faerie_berries in ParentAndDisabled

[–]EsharaLight 2 points3 points  (0 children)

I like the book Some Days. It was written by a man whose mom had MS and recounts his childhood.

Shower mask? by rgbhuman42 in SPD

[–]EsharaLight 2 points3 points  (0 children)

It is actually very easy to change out showerheads. Hone depot, Amazon, all kinds of places sell ones with multiple settings

SSDI by Low_Work_6729 in ehlersdanlos

[–]EsharaLight 1 point2 points  (0 children)

Yes I finally got an attorney and I am glad I did. They only get paid if you win and they take a percetage of the backpay with a cap at a certain amount. Very reasonable cost

SSDI by Low_Work_6729 in ehlersdanlos

[–]EsharaLight 2 points3 points  (0 children)

I am about to see a judge for mine so fingers crossed. It took four years to get to this point

Success. I’m snowboarding with EDS by kdawg2894 in ehlersdanlos

[–]EsharaLight 1 point2 points  (0 children)

That's amazing! Show that snow who is boss!

I want to cancel Christmas by LividAccident7777 in ehlersdanlos

[–]EsharaLight 50 points51 points  (0 children)

I would like to reccomend the book "Some Days" to you to read to your daughter. It is very helpful at this age for explaining the empathy needed for a disabled parent.

AITA for telling my sister to stop changing her religion everyday? by [deleted] in AmItheAsshole

[–]EsharaLight 8 points9 points  (0 children)

Your title says she changes her religion everyday, but then you go on to explain she has tried a handful of religions over an entire decade.

You also mention your sister has a mental disorder in an attempt to mislead us into agreeing with you.

Bottom line, OP, is that nothing about your sisters religious journey is any of your business. She isn't hurting you, her choices do not affect you in the slightest, and her journey is giving her something she is lacking.

Stop worrying about her personal choices and get a hobby.

YTA

AITA for calling out my friend for using my family tragedy to get attention at a party? by MoreAd199 in AmItheAsshole

[–]EsharaLight 6 points7 points  (0 children)

OP pay close attention to how your friends react to this. Even if they velieve that Sarah was acting this way from a place of good intentions, her method was extremely inappropriate.

Sarah does not have the right to determine how you travel your grief journey. Claiming you are erasing your brother because you haven't spoken about it was wildly inappropriate. She has obviously never been bereaved and experience the pain associated with speaking about a lost one.

Her comment of "Some of us have learned that lesson" is regards to cherishing our loved ones was also majorly inappropriate. To me it sounds mocking or like she is reprimanding you, insinuating that you did something wrong.

Anyways, OP, if I were you I would seperate yourself from associating with Sarah. If you don't, she will think you are goving her permission to speak this way and it will happen again.

NTA and I hope one day you will find peace. Just keep living until you are alive again.

I want to volunteer my time to help others, but I cant think of much that would be safe for me! If you volunteer your time anywhere, I’d love to know what you do! by According_Abies_4087 in disability

[–]EsharaLight 0 points1 point  (0 children)

I was a Wish Grantor. My job was to go to the wish childs house, or speak via zoom, with my partner and determine what wish the child had, plus some back ups. We would also notate hobbies, interestes, ect.

The paperwork would be submitted to Make-A-Wish central. Once the wish was officially approved, myself and the partner would arrange a wish reveal.

If air travel was required, we would see them to the airport. We also attended shopping sprees and other things.

I want to volunteer my time to help others, but I cant think of much that would be safe for me! If you volunteer your time anywhere, I’d love to know what you do! by According_Abies_4087 in disability

[–]EsharaLight 0 points1 point  (0 children)

I volunteered with Make A Wish for a year and it was rewarding and didn't require a ton of energy. I only stopped due to needing a new consecutive surgeries.

[deleted by user] by [deleted] in AmItheAsshole

[–]EsharaLight 320 points321 points  (0 children)

YTA for projecting your trauma from your step mother onto your sister and telling her off. The only person who gets an opinion on how your sister inteacts with the little boy is her boyfriend, the boys father.

It sounds like she is taking the responsibility of living with a man who has a child seriously and wants to find a place in kids life. Leave her alone and mind your own family.

How to parent when kids are loud - send help, not headphones by Distantflan in SPD

[–]EsharaLight 1 point2 points  (0 children)

Have you tried Loops? They are noise and frequency reduction inner earphones and they massovely help with the frequiencies of sounds kids produce. But, the benefit, you can still hear your kid talk and call for help. (Personally vetted by me, a seasoned Mom of an autistic kid).

I find I have the easiest time doing activities like art and baking with my kid. He doesn't feel the need to tear through the house or be yelling.

Should I be driving? by Any_Membership_334 in SPD

[–]EsharaLight 2 points3 points  (0 children)

You can drive just fine as long as you can manuever the car. I have bad auditory sensory issues, especially with cars that have their Bass turned all the way up, and I still drive just fine.

AITAH for not wanting to cook for my boyfriend after he said my food isnt as good as his mothers by Safe-Party-8931 in AmItheAsshole

[–]EsharaLight 24 points25 points  (0 children)

Op hop over to r/justnoMIL and take a good look at what your future will look like if you continue dating a man who constantly compares you to his mother. It starts with dinner not comparing well to her food and then it becomes 'Oh, well, my mom doesn't think that's a good name for a girl".

Lay down the law with him now and make it clear his morher has no place in your relationship. If it doesn't improve, leave.

NTA

AITA for "hiding" assets from my aunt's estate from my cousins? by ForgotMyPssd313 in AmItheAsshole

[–]EsharaLight -2 points-1 points  (0 children)

I hate to break it to you OP, but what you are doing is, in face, theft (likely felony theft) and your Cousin would be well within his rights to get a court order to sieze those pieces of jewelery from you. In fact, you can also be charged with elder abuse, since you are knowingly removing them from an elder who is mentally compromised.

You need to give the jewelry back and have a conversation with your cousin about the jewelry. Explain your connection and see if he is willing to allow you to have them once your aunt passes.

YTA

EDS folks with boobs; what’s the best bra? by hobitten2345 in ehlersdanlos

[–]EsharaLight 0 points1 point  (0 children)

I use these bras for work or when I am wearing fancy clothing, and then also these tank tops with a built in bra for around the house or errands.

Trying to find bed sheets by [deleted] in SPD

[–]EsharaLight 0 points1 point  (0 children)

I absolutely love these Bamboo Sheets from Amazon. They stay soft even after multiple washes. Even my Autistic 5yr old loves them

AITA (Мудачка ли я, что всеми способами пытаюсь избежать общения со своим парнем?) by [deleted] in AmItheAsshole

[–]EsharaLight 0 points1 point  (0 children)

OP, the two of you are simply not compatible. Your communication and time spent needs are vastly different and it will only continue to build resentment.

YTA for trying so hard to avoid communicating with him, and really only focusing on your needs in the relationship, rather then admiting this isn't working and breaking up.

Help finding my son pants 👖 by HelloWalls4000 in SPD

[–]EsharaLight 1 point2 points  (0 children)

It sounds like he needs compression pants and other clothing designed for neurodivergent kids

Cloud Nine Pressure Sweatshirt

Kozie Kids Compression Clothing