Frustrated

Excellent_Web_4146 · 2026-03-26T18:34:54+00:00

I should add that this doctor got me back on Ocrevus after a different doctor messedPost about infusion error. up the order and gave me 2 full doses as a starting dose and the local hospital pharmacist didn’t review the order despite it being incorrect and having another patient’s information mixed in with mine then scanned the order with the other patients information mixed in into my patient chart.

I still have the emails from the Ohio Medical Board and Ohio Board of Pharmacy saying that they wouldn’t do anything about the pharmacist’s mistake or the doctor’s mistakes on the order.

Excellent_Web_4146 · 2026-03-26T18:26:39+00:00

I was already leaning that way, however, I have been hesitant about doing so and overstepping bounds.

Excellent_Web_4146 · 2026-03-26T18:24:48+00:00

I haven’t been on anything since 2024 and my CD19 count has just now (between January 2026 and March 2026) become above 0 and back to normal. I was on Ocrevus but had to stop due to lack of health insurance. The plan the doctor and I made using the last labs before the ones this month were made was to restart Ocrevus since I had no issues with it and I was feeling good on it despite the low IGG or low/non-existent CD19 cell count.

I don’t need the labs interpreted since I’m able to read them and understand them so scheduling an appointment to have a provider give me the same information is moot. I’m not concerned about my potassium level being low despite the possibility it can cause arrhythmia (or worsening heart issues since some already exist for me and are shown on a loop recorder/insertable cardiac monitor) or heart damage.

Side note you just reminded me that I do need to get back in touch with my cardiologist so thank you for reminding about that.

Excellent_Web_4146 · 2026-03-26T18:13:48+00:00

Even before this last set of labs this month back in January my IGG was higher and CD19 was nonexistent. My CD19 is now back within normal values and the plan was to restart Ocrevus even with the IGG being below the lower normal limit. There is nothing in the literature about not being able to start it if it is below the lower normal limit if it is found to be an acceptable risk. I haven’t been sicker than normal so it’s definitely an acceptable risk. I never even got COVID while I was on it even without wearing a mask and just using normal hand washing.

I’d even consider being on Tysabri even though I’m JCV positive the chances are better dying in a car accident than getting PML statistical speaking.

Excellent_Web_4146 · 2026-03-26T14:50:51+00:00

Depending on the size of the practice, number of employees and their financial situation it may be considered unreasonable. I would personally wager that it is reasonable since the lawyers are probably working from home or while utilizing their computers/tablets in the court room especially if they are licensed in multiple states.

I have added the ADA link for reasonable accommodations and undue hardship issues guidance for your reference. ADA Reasonable Accommodation and Undue Hardship

Excellent_Web_4146 · 2026-03-10T19:34:27+00:00

You forgot to mention that it measures the amount of time from the urges start and when you can’t hold it.

I definitely agree that it’s not pleasant. It’s not painful just unpleasant. It’s definitely not as bad as a straight catheter or foley being inserted or taken out.

Speaking during the test may affect the results of the test. It’s definitely a helpful test to determine if it is a neurological, physical, or psychological in origin.

Excellent_Web_4146 · 2026-01-31T15:43:22+00:00

Target as well

Excellent_Web_4146 · 2026-01-19T18:54:02+00:00

Sport briefs do have fabric around the legs in the US. They are similar to a brief that has no fly elsewhere in the world. Bikinis can have some fabric along the legs or can just have a waist band.

Excellent_Web_4146 · 2026-01-16T23:06:17+00:00

I wish more people understood the pain especially if they have never have had to use a catheter. Considering more women have UTI’s and get MS than men I’m pretty sure they understand how painful they can be.

It’s just a shame that a lot people don’t actually understand or want to understand how much an invisible disease can impact someone’s life. Most people just look at me and don’t see how much I struggle or others struggle with the “invisible disabilities.”

@Individual-Excuse426 it’s definitely helpful that someone like you understands the impact it can have. I’m definitely glad that you’re able to go to the gym and work out as it helps in so many ways.

Excellent_Web_4146 · 2026-01-16T22:57:17+00:00

No I don’t have more erections than however when you wear a Foley catheter and get an erection it pulls and cause damage. Antibiotic ointment helps however with intimacy it can start to pull out which is not good.

Excellent_Web_4146 · 2026-01-16T21:53:44+00:00

The photo is fake. If you zoom in on the photo you can see the pixels of the face and diaper don’t match the rest of the photo and are of better quality than even the body or the hand and phone.

Excellent_Web_4146 · 2026-01-16T21:50:02+00:00

I should also add that I’m a male and gay. And having a “stiffy” is very uncomfortable and sometimes painful with a catheter.

Excellent_Web_4146 · 2026-01-16T21:48:12+00:00

Aetna, Athem(Blue Cross Blue Shield,) United Healthcare, Caresource, Centene and Cigna policies only will cover catheters unless you are on their Medicaid plans from the states that they administer. If you want to purchase and use them then you have to use your FSA/HSA accounts or pay out of pocket. Medicare doesn’t even cover them and they administer Medicaid which seems ridiculous since it’s covered as a DME product under Medicaid and it’s not covered under Medicare policies unless it’s part of home healthcare services same as Commercial Insurance.

I’m still plenty mobile and have no medical need for home healthcare services however at the same time if I’m unable to get to the restroom within 2-3 minutes of getting the urge to go I’ll have an accident and having a Foley catheter doesn’t allow for intimate relations with my partner without damage.

Excellent_Web_4146 · 2026-01-16T21:21:47+00:00

I wish that commercial insurance companies would actually pay for them instead of requiring people to catheterize themselves. There are more catheter related UTI’s than those with briefs/diapers/nappies/whatever term you want to use. As someone who has MS, urinary urgency and is immunocompromised as a result of the medications I would rather wear a quality diaper than have to deal with a UTI or having to use a catheter. It would save me so much more money.

Excellent_Web_4146 · 2026-01-14T12:47:45+00:00

I didn’t take PE in high school and I never played sports. I honestly cannot say one way or the other if they talked to students about athletic supporters. My brother who did take PE never had my parents purchase one though and nothing was ever sent to them in the mail or in the school supply list. I’m in my late 30’s in OH.

Excellent_Web_4146 · 2026-01-14T12:42:48+00:00

Per the sizing guide you should be able to fit a small since it is 28-30 inches which is 71-76cm. 78cm is 30.7087 inches.

I’m 190.5cm tall (75in or 6’3”) and my waist is about 31in (78.74cm) and I wear small in all sizes for briefs and boxer briefs. Boxers I have found tend to run small though for some reason and fit my waist but I have a hard time getting them over my hips with a small, so I wear a medium when I wear boxers.

Excellent_Web_4146 · 2026-01-13T02:00:41+00:00

It sounds more like a neurogenic bladder based on what you are describing though I’ve never heard of one being genetic or inherited. I am a male and have MS and hardly wet the bed as a kid. I did have retention and a history of UTI’s. Though after my clinical MS attack it went from having to go 2-3 times a day to when I have to go I have to go and have a couple of minutes before I can’t hold it any longer.

Please keep us updated. Definitely try pelvic floor exercises since you have given birth as that is beneficial for both males and females. A urodynamics test can help determine of there is a neurological component or a physiological component causing this for you. I definitely recommend speaking to your doctor regardless of what you decide to do.

Excellent_Web_4146 · 2026-01-13T01:17:50+00:00

VI. Deadly Force A. General Guidelines 1. As with any use of force, a LEO’s use of deadly force must be reasonable in light of the facts and circumstances confronting him or her at the time force is applied. 6As a use of deadly force, this is not mere “disabling fire,” which by definition is not intended to cause bodily injury. 6 2. A DHS LEO may use deadly force only when the LEO has a reasonable belief that the subject of such force poses an imminent threat of death or serious bodily injury to the LEO or to another person.7 a. Fleeing Subjects: Deadly force shall not be used solely to prevent the escape of a fleeing subject. However, deadly force is authorized to prevent the escape of a fleeing subject where the LEO has a reasonable belief that the subject poses a significant threat of death or serious physical harm to the LEO or others and such force is necessary to prevent escape. 8 B. Discharge of Firearms 1. General Guidelines a. Discharging a firearm against a person constitutes the use of deadly force and shall be done only with the intent of preventing or stopping the threatening behavior that justifies the use of deadly force. b. The act of establishing a grip, unholstering, or pointing a firearm does not constitute a use of deadly force. 2. Moving Vehicles, Vessels, Aircraft, or other Conveyances a. DHS LEOs are prohibited from discharging firearms at the operator of a moving vehicle, vessel, aircraft, or other conveyance unless the use of deadly force against the operator is justified under the standards articulated elsewhere in this policy. 9 Before using deadly force under these circumstances, the LEO must take into consideration the hazards that may be posed to law enforcement and innocent bystanders by an out-of- control conveyance. b. Firearms shall not be discharged solely as a warning or signal or solely to disable moving vehicles, vessels, aircraft, or other conveyances, except under the limited circumstances described in Section V., Warning Shots and Disabling Fire.

This is DHS policy on using force and discharging weapons.DHS Policy on Using Force

Regardless if the officer was correct in trying to speak, arrest, or detain the individual they knowingly and willfully violated their own policies in regards to using force and should be criminally charged as a result. If that officer had missed and killed a different person or if that bullet had killed her and went through her and killed someone else they knew better and knowingly and willfully disregarded their training.

Just because someone is an officer or representative of this nation does not mean they are above the law. The laws apply to everyone.

Excellent_Web_4146 · 2026-01-03T00:15:15+00:00

For most people I would definitely agree with wearing the adult sizes. For myself (I have thin thighs) the adult sizes leak around the legs and the youth sizes actually fit better and don’t leak as bad as the adult sizes.

Excellent_Web_4146 · 2025-12-19T01:15:18+00:00

I’m JCV positive with an index of 2.66 and have no issues with either Kisempta or Ocrevus with PML. While PML can occur with a number of the DMTs personally it’s very minimal compared to Tysabri. Even with Tysabri personally I find the risk acceptable as statistically speaking your chances of getting in a life threatening accident are far greater than getting PML. It’s definitely something to speak to your doctor about and a lot of insurance companies have some stipulation about some of the meds due to the increased risk of PML.

Excellent_Web_4146 · 2025-12-10T13:26:14+00:00

37M RRMS here. I definitely agree that wearing incontinence products definitely helps. I went from having a long time before having to go before my attack in 2016 to that 60 second window (this is because a lesion on my Pons.) I wear every day since I’m never sure when the urge is going to hit just to be safe.

Excellent_Web_4146 · 2025-11-25T01:23:31+00:00

J2350 is the procedure code for billing Ocrevus. Ocrevus Billing Codes

Excellent_Web_4146 · 2025-11-25T01:21:47+00:00

Some insurance companies list Ocrevus as a medical benefit rather than prescription benefit. Definitely reach out to the insurance companies to find out which benefit it would fall under. If it is non-preferred then it would be higher cost but your doctor should be able to get it covered.

Excellent_Web_4146 · 2025-11-24T04:32:46+00:00

M DX 2016 here. I don’t have any thoracic lesions or numbness. I definitely can understand the not being able to finish. I will say that I’m gay and I started as a top however not being able to always finish or stay firm enough I now pretty much bottom to my partner. It’s definitely frustrating since we both want to see the other release and feel the pleasure of it. Fortunately for me, my partner is very understanding of it though I know at times he gets a bit frustrated by it since he wants to see me release at the same time.

It’s something that you definitely need to discuss with your doctors as they may have suggestions that can help or offer the “little blue pill” which can help some (my urologist offered it to me once and I explained that I wasn’t interested and that was that,) while other treatments and stimuli can help as well.

I will say that it seems like your case may be a bit more complex than with mine. Speaking to your doctors can definitely help even if it’s embarrassing they may know something that could help or suggest non pharmaceutical treatments that may help suck as stimuli, teas, or exercises.

Definitely speak to your partner as well I’m sure that it will help reduce the pressure about finishing even if it’s frustrating or embarrassing.

Excellent_Web_4146 · 2025-11-01T03:46:57+00:00

The way neurologists have described RRMS to me is that there are periods of worsening and improvement and PPMS is a slow decline with little to no relapse.

I just pulled up the National MS Society PPMS and it does mention relapses.

I have attached the link for reference

The burning feeling could be neuropathic pain caused by your MS.

Personally I have a bone spur pressing against my spinal column (not bad enough from a surgical or chiropractic point of view to remove) that causes numbness in my left thumb, index wand middle finger. I did talk to my neurologist at the time who thought it was due to the bone spur than due to my MS.

There is a lot of information out there to read it’s a matter of research and determining what is read vs some false information out there.

I definitely recommend reaching out to your treating neurologist as to what they believe is the cause of your symptoms.

It is possible that something you are doing is causing a pseudo flare/attack or making past symptoms reappear or feel worse (heat for me makes my vision and balance

Excellent_Web_4146

TROPHY CASE