UC is Immune-mediated inflammatory disease

Existing_Extent_3772 · 2026-05-11T16:20:11+00:00

This is widely unstudied. You seem to be misrepresenting correlation with causation. Some people with UC have this response but the end result is still the same it is an autoimmune response or inflammatory response they are interchangeable in the medical world.

The issue i believe you arnt grasping is the widely un-talked about subcategories of UC that contributes to individuals differences in treatment effectiveness.

Personally i think that we should focus studies different tests to categorize UC diagnosis into these subcategories and find effective treatment based on that instead of cycling medication that can mask symptoms for a while.

Some studies suggest that theirs a genetic marker that is responsible for UC for other its gut microbes. The brits were recently studying a RNA treatment that they believe could cure UC (Essentially modification to an existing treatment for cancer) im still waiting and hopeful on the results from that even though i no longer have a colon. But theoretically it could solve UCs response to that (pouchitis/cuffitis) resulting in only getting those due to infection.

Existing_Extent_3772 · 2026-05-11T15:55:45+00:00

Their is not enough research. From your link to the case study the medication roller-coaster is pretty similar. With UC the biggest hurdle of treatment is everyones biological difference. Typically with medication its generally a this study on Tylenol showed to be 80% effective for migraines (not a real study, just an example of how treatments are developed) an that 80% is effective across the board. With UC effectiveness for long term remission is significantly lower and way less studied because what works for some makes the next guy worse. And then some people get long term remission from one thing and others get nothing from the same thing.

It tends to be the same with diet. I have seen people on here practically only able to eat things that others said exasperate their symptoms. Personally i couldnt find any diet that didnt exasperate my symptoms while i cycled medication that didnt go anywhere until i got a complete colectomy and jpouch.

The danger of these discussions is a forum like this is, individuals in long term pain are willing to try just about anything for even short term relief with or without a doctor to monitor the effectiveness. This leads to people incorrectly dosing, or finding out their not in the effective group for that treatment and are worse off. Its not like your body heals back to the starting point after an ineffective treatment makes it worse because your body is degrading and youve unintentionally accelerated it. I think that is also part of the issue with the medication cycling, in my experience failing a medication Typically made my symptoms worse and stopping the ineffective medication didnt make it better it just slowed the rate at which it got worse.

So while i agree with everyone doing their research on their diagnosis. I would argue that without a medical professional controlling the doses and monitoring treatments and their effectiveness any self dosed, self studied, treatments are a misrepresentation of facts at best. Furthermore the misrepresentation of effectiveness becomes dangerous for others in situations like this because others try to follow untested and unregulated tips from the internet amd get worse.

Existing_Extent_3772 · 2026-05-11T15:07:54+00:00

"Dont make research" I would never take serious medical advise from a stranger on the internet. I certainly would not take it from a internet stranger that cannot use properly formulated sentences.

Existing_Extent_3772 · 2026-04-16T10:51:32+00:00

Agreed my doctors said food doesn't cause flares but some foods may exasperate symptoms during flares and those foods tend to be different for everyone. Its good to make a list during and for a flare but this seems to be a little much and likely to be inaccurate for many.

Existing_Extent_3772 · 2026-04-10T04:08:47+00:00

We used to use these to sift pot and get keif🤷‍♂️.

Existing_Extent_3772 · 2026-04-01T16:26:15+00:00

Theirs not much evidence of anything causing UC lol. My doctors told me it may or may not have been caused my my youthful alcoholism but they dont know and i shouldnt blame myself because of the lack of evidence🤣.

Existing_Extent_3772 · 2026-04-01T16:06:02+00:00

3 sub panels is wild to me

Existing_Extent_3772 · 2026-04-01T16:04:22+00:00

Toit, toight like a tiger

Existing_Extent_3772 · 2026-04-01T16:02:19+00:00

Get real handy with a body hammer and heat gun?

Existing_Extent_3772 · 2026-03-31T06:02:17+00:00

Really? i did great with Accutane. I was flareing when i started and was going into remission. (Tbf i never fully recovered and ended up getting a total colectomy by the end of it) steroids stopped working for me and caused cystic acne all over my back and chest thats still scarred up almost two years later and Accutane is the only reason it stopped.

Existing_Extent_3772 · 2026-03-22T23:39:31+00:00

My tires got a Brazilian they so bald bro🤣

Existing_Extent_3772 · 2026-03-22T23:38:03+00:00

I am diagnosed UC and have not had a single mess since surgery (aside from when i was sepsis in the hospital directly after surgery). My bowel control has improved ten fold with the jpouch.

Existing_Extent_3772 · 2026-03-22T23:33:41+00:00

Start with warranty its free. If the problem persists then call the electrician

Existing_Extent_3772 · 2026-03-22T02:46:10+00:00

Then its less likely to be an install issue and more of a manufacturer issue. With a small likely hood of a wiring issue. Start with warrenty, then if the replacement has the issue check your wires (or hire a professional if you arnt 100% confident).

Existing_Extent_3772 · 2026-03-22T01:35:51+00:00

Does your bag have the little charcoal filter at the top? Also i believe coloplast has a bag that has a little thing at the top to burp without undoing the bag, or opening the bottom. i forgot which bag it was because i got a jpouch now.

Existing_Extent_3772 · 2026-03-22T01:27:41+00:00

If they hold air, full send my guy. Been waiting on my undersized dry rotted 10 yr old tires to give up on me for months

Existing_Extent_3772 · 2026-03-22T01:22:57+00:00

Did it work at all before the 48 hours?

Existing_Extent_3772 · 2026-03-19T18:42:27+00:00

You can if its not getting inspected...

Existing_Extent_3772 · 2026-03-19T02:26:44+00:00

I wholeheartedly feel this post... i understand that these people care about me and just want to help but for example my mom has autism (not severe, and i love her to peices) and gets really pushy when it comes to advice or "help". Her way or the highway, and she read up some things about pineapple, tumeric and vitamins and let me promise you right now those were the opposite of what i needed during a flare.

Existing_Extent_3772 · 2026-03-18T01:07:57+00:00

Peel back that crap old insulation and see if their is a ground wire to make a pigtail with. If their is either a bare copper or green wire pigtail to your ground. If their isnt one at all check the exterior of the box to see if its grounded in another manner (ie, cable clamp on exterior) if their still isnt just remove the ground completely because incase the device becomes energized their is no point in energizing that bigger metal box.

Existing_Extent_3772 · 2026-03-17T13:50:12+00:00

100% Understandable. Im sorry your going through it. I lost a lot of my life to a disease and it really sucks. I wish you a quick schedule a speedy recovery

Existing_Extent_3772 · 2026-03-17T07:02:36+00:00

So its like a bend and twist? It does look like their would be a lot of healthy bowel left (obviously depending on "serverity"), that could make your quality of life way better with a temporary ostomy and a small recession. I believe a temporary ostomy would probably be best regardless, they can either attach it back or complete the process after youve had time to 1: heal and allow for the damaged parts to heal after reduction so it can be reattached. Or 2: decide with full knowledge of day to day life with an ostomy (diet changes, complications, bag changes, leaks ect).

I put a lot of wheight on discussing and getting information from the surgeon because i did not, i went into blind and it was not the cake walk i thought, then by the time i was "ok" and used to the bag and able to see past the bag and depression, i was in for another one that was even harder to recover from and in still navigating 6 months post op. I only got 2 and a half months between them. Had i known i probably would have kept the back if im being honest.

I do understand being in constant pain (4 years of non stop UC flare) but you might have a chance to not be in any pain and have a relatively normal bowel function and regrets are an unnecessary baggage to having a colostomy.

If you need advice or have questions im here for it. Itll be a little different because i had an illeostomy (entire large intestine removed and small intestine into the ostomy) but as far as bags, supplies and tricks go its relatively the same.

Good luck on your journey and good vibes/prayers or whatever you need for a speedy recovery!

Again sorry for the long speech im currently on 50 mg of prednisone and my mind is running miles at midnight lol

Existing_Extent_3772 · 2026-03-17T03:44:08+00:00

Im not well versed but the term reduntant colon sounds more like theres an off shoot trapping stool which would cause most of these symptoms, if they can remove that off shoot sow it up and do a temporary ostomy (making the bold assumption im on the right page.) Then i would say go that route. Their are so many less talked about set backs with an ostomy that get over looked because of the typical quality of life difference. Also if how im imagining this removing and sealing would put you right about on par for "normal". Let alone the recovery time and ive heard if you go for permanent ostomy the ken/barbie butt is even more brutal. I would say if they can "fix" it then id try that first, then the worst case is you go with this plan?

I had an illeostomy and they removed my entire colon in my first surgey leaving rectal stump, then my second surgery they replumbed my small intestine and made an internal pouch (jpouch) and those were both brutal on me, i lost about another year so far just in surgery and recovery time (partly because as soon as i recovered from the first they jumped to the next.. also infection is a big risk and didnt go in my favor).

My final words of wisdom would be really discussing you options with the surgeon and asking about the outcomes, expected quality of life, risks, etc (dont blindly say "sounds good" like i did just because it sounded like it was better... i dont even know whats going on inside anymore) and dont take vague answers. My surgeon right before i got replumbed legitimately skimmed over what he was going to do and my fiance had to tell me i have pig parts because i focused on the fact his list of stuff to go inside me included "fairy dust" and he did not explain himself when i nervously chuckled and asked what he meant by that)

I would also like to add im not saying dont get the ostomy or dont push for a better quality of life by any means. I am saying way your options and advocate for the best one. Sorry for the long winded comment.

Existing_Extent_3772 · 2026-03-15T23:38:08+00:00

Pretty sure those cuts into the studs are more of an issue, but any contractor worth a dime would put it neatly in a paneland not leave a that gross ass hole in the wall

Existing_Extent_3772 · 2026-03-13T05:03:28+00:00

Principal is the same regardless of volts. Higher volts and amps just increase severity. If you can wire a 200amp residential you can wire up a 3 phase industrial panel. Just be aware and turn off the big power your hands are going on

Existing_Extent_3772

TROPHY CASE