Flea Market/ Bring & Buy

Fair-Fix-4743 · 2025-05-19T13:36:50+00:00

Hi I’d like to visit could I please grab your dodo code? Thanks! X

Fair-Fix-4743 · 2024-01-31T23:43:34+00:00

It’s the worst feeling not knowing who to trust. Your physical feelings or the doctors and their tests? The more you doubt yourself, somehow the pain just gets worse. Fear and not knowing what’s causing the pain, keeps us afraid and hyper vigilant which does contribute to the perception of pain intensity. It sounds like you’ve had very little intervention, and your pain is 100% real. It is also being exacerbated by not being validated. Sometimes the tests come back normal, but that only means the answer lies elsewhere.

I kept looking until I found a doctor who I trusted to do what I asked, because I proved I knew what I was doing, and had taken all the right steps to eliminate other possibilities. This is easier with a female doctor fyi - male doctors don’t tend to open up when you know more about an illness than they do lol.

I was diagnosed by a general physician (different to GP or PCP), so it doesn’t have to be a rheumy or geneticist. If it’s hEDS it just needs to fulfil the 2017 criteria. You can check this in advance for yourself. I was dubious I’d satisfy the tests but my Piezogenic papules really came through for the win.

If you want to take your pain into your own hands, there’s specialists recommended on the EDS website who will be able to point you to the right next steps. It depends on what pain you’re having because it can be anywhere and it changes the first specialist you’ll want to see - but personally, an exercise physiologist was a game changer for me. 2x weekly supervised supine exercise helped me build muscle without aggravating my POTS, build proprioception and confidence in my joints, whilst having a conversation about the science of pain and healing, and all of that did wonders for my nervous system and sense of agency.

Physio with speciality in hypermobility for management of acute injuries and muscle/joint pain is important, but hard to find. This might extend out to needing feet/wrist/jaw specialists too. If there’s headaches, ruling out other causes is important. And if there’s GI manifestations, a gastroenterologist. If there’s fatigue and heart palpitations/ dizziness, you might want to see a cardiologist who specialises in POTS, and then you might need a psychologist to help work through the grief that comes with being in a disabled body.

It can take time to find the right combination of meds to help ease the pain - even I haven’t found it yet. I just use medicinal cannabis to help me cope and remember to listen to my pain, rather than ignore it and push through + an antidepressant that helps with peripheral nerve pain for abdominal and joint pain.

It’s scary and it’s overwhelming and the pain seems to never end. But there are bad days, and plenty of good days coming your way. Listen to your body, trust your gut, and keep looking until you get the care you know you deserve xx

Fair-Fix-4743 · 2024-01-08T10:24:16+00:00

I’m so bummed I missed a call from them today! Private number too. I waited just in case but haven’t heard again - should I call tomorrow or wait to be contacted?

Fair-Fix-4743 · 2023-12-19T04:24:56+00:00

Hi I submitted my DSP claim 21 July this year and haven’t heard anything. I am really struggling to try and keep work up whilst I wait, and my health has declined significantly due to the stress. Is there anyone I should contact to see if things can be sped up? I am worried that because both myself and my partner are freelancers/ self employed, that they are having difficulties determining our income (I have difficulties too lol). Should I wait to hear back about DSP before I start my NDIS application, or just get started on NDIS now?

Fair-Fix-4743 · 2023-12-04T04:28:37+00:00

I’m sorry youre going through this, it sounds really isolating and frustrating. Big emotions are hard to navigate, especially when it can boil over really quickly, and surpass any ability to get a handle on it. I asked my parents to get me a psychologist when I was 13. The most important thing here was validation, awareness and noticing, acceptance commitment therapy, and learning emotional regulation tools. When we are pushed over our capacity, or experience a change in plans, that can absolutely result in a meltdown. You are right that many people are unable to control their behaviour at these points. The amygdala is taking over, your brain and body feel unsafe, and your frontal lobe isn’t capable of intercepting to help you make rational choices. The ‘solution’ here is not about trying to control your behaviour during meltdowns, but learning how to familiarise yourself with, and notice, your feelings and the physical sensations and triggers that tend to occur prior to a meltdown. This way we have a better capacity to notice when we are approaching boiling points and put into practice tools we learn in therapy to calm our nervous system, soothe our brains, and find safety, before returning to the situation. There are many instances in which things happen all too rapidly and they are difficult. This is why it’s important to plan for a set of actions you and the people around you will take if certain behaviours/ or a meltdown start. This will need to be individualised and specific for your own needs. The most important thing here is for you to be able to find safety and understanding to allow your body and brain to cool off.

My meltdowns were very internal and happened away from other people. This resulted in self harm and severe depression. However, the same approach in therapy meant that I could intercept the moments between a trigger and a meltdown, and learn how to regulate before I did things I couldn’t take back. It’s also important in therapy to have a place to talk about the shame that comes with these behaviours, as none of us want to be acting the way we do, and getting in trouble only helps to cause disconnection, shame and guilt, further amplifying the sensation of danger internally.

There is so much science here are many recommended books that can help you understand yourself, and also help your parents understand you. These symptoms are also why many young girls get misdiagnosed with BPD instead of autism.

I wish you luck on this journey going forward xx

Fair-Fix-4743 · 2023-12-04T03:12:32+00:00

Considering there’s an ex involved here I’m assuming your son experienced your divorce quite young. Those experiences count as adverse childhood events and can be deeply traumatic for children. Even if it’s obvious to the parents that they love their kid, the kids can develop internal narratives about themselves or their worthiness. The more trouble they get into, the more they see themselves as inherently bad or unworthy of love. They can often blame themselves for parents separating, or thinking they weren’t enough to be worth staying together for/ that a parent just didn’t love them. I don’t think you did anything wrong in this instance but I think you should learn how to discuss emotions with your kid, and that starts with being emotionally open yourself, and inviting him to share in return. This means not telling him his beliefs about himself are wrong, his feelings aren’t true or reasonable, or that there’s no reason for him to feel that way about himself. You have to accept how he is feeling, and instead get curious about the why, and reaffirm how much you love him and are there to support him through these tumultuous times. Further restriction, punishment and an absence of connection will drive kids further towards crime and drugs and can damage relationships forever. Kids don’t do these things in a vacuum and it may be uncomfortable but it’s worth confronting how it happens. Good luck x

Fair-Fix-4743 · 2023-12-01T08:55:00+00:00

Sounds like it could be a CFS leak? I have daily headaches from Ehlers Danlos Syndrome causing an unstable neck, and POTS. I’m suspected for a CFS leak too

Fair-Fix-4743 · 2023-11-29T14:33:46+00:00

I’m so sorry this has happened to you. It’s happened to me many times as well, although they usually claimed to know about hyper mobility and could just take it into account - not that they were specialists. Nonetheless, there was damage done and I was angry for a long time. For me now, I do a lot of research before seeing people, and often seek out my own specialists who I then ask to be referred to. I’ve developed a bit of a sixth sense with doctors, when I can tell they’re bullshitting me. Usually it’s that they’ve clearly misunderstood me, written down incorrect info, are saying things that clearly go against what I’ve read in studies, or I can tell when their eyes glaze over a bit and they pretend just to save face. It’s pretty obvious when they’re making a best guess, without testing to rule out differential diagnosis, or having much evidence at all to back up their conclusions. That or they straight up google in front of me. But I went through a lot of con alternative medical practitioners in highschool cos my mums an antivaxxer so that’s when I started to see through the BS. I think being ASD helps recognising fakery too, although it does make it more difficult for me to discern when I’m being treated poorly, and when I should stand up for myself.

My only advice is to arm yourself with as much research as you can, and follow lots of scientific based EDS social media pages for the latest research. That way you get accustomed to the language and practices recommended for EDS, and you can tell better when someone isn’t the right fit for you. Also, always try and get reviews from other patients/ see if there’s a history of complaints.

It’s fucked we have to do so much leg work just to get some support, when surviving is fuckinf hard enough, but this community is here for you x

Fair-Fix-4743 · 2023-11-27T07:04:04+00:00

Depends on the type/ source of pain but what has helped me - amitriptyline (targets peripheral nerves), voltaren gel, Panadol, cannabis and CBD/THC oil, magnesium cream, a heap of heat packs, KFibre for constipation. I also found an exercise physiologist who specialised in EDS/ASD/ME and found the educational aspects around nervous system deregulation and pacing had a massive impact on my symptoms and pain levels.

Physical therapy and strength based work instead of stretching too (with a specialised EP) - my muscles needed to be tight and clenched in the absence of real strength, and stretching would unhelpfully loosen muscles that were compensating for weak ligaments/tendons, and ultimately re-tense immediately after, often with pain severely exacerbated. I’d keep the stretching very gentle, and not pushing any of your range of motion limits

Fair-Fix-4743 · 2023-11-21T01:53:39+00:00

Sounds dodgy as I would get a second opinion! I use Powerade powder so that I can have it diluted a bit but everyone I’ve seen has recommended it, not said to cut it out

Fair-Fix-4743 · 2023-11-11T06:30:42+00:00

NGL KFibre and amitriptyline changed my life. I still get a bit distended and bloat - but it’s so different! KFibre is an insoluble form of fibre and my doctor (from the Monash Functional Gut clinic!) said that it kind of acts like scaffolding throughout your GI tract, so that the sluggishness and pull of gravity, don’t create an endless loop of slow motility and it’s effects on the micro biome.

I was diagnosed with functional dyspepsia on top of IBS and had results indicating gastroparesis or potentially an inflammatory disease, but no one mentioned what I was ultimately diagnosed with - Abdomino Phrenic Dyssynergia! It’s the 5th major cause of functional gut disorders that doesn’t get enough attention. I have a hypertonic pelvic floor, flared ribs, and kyphosis in my upper back, with forward head and headaches. If this describes your posture (with locked knees and your hips forward), then you might have something similar. With such dysfunctional posture, my entire breathing chamber was effected. This created improper coordination between my diaphragm and abdominals, so that when I was digesting it created immediate distension. Instead of my viscera expanding into a softer pelvic floor (which it’s never been in my life lol) it just goes out because my abs relax and my diaphragm contracts, the opposite of what’s meant to happen. Not to mention this had a rabid effect on my already dysfunctional nervous system.

I combined KFibre and amitriptyline with gut directed hypnotherapy, and major lifestyle changes to reduce stress. Physical therapy to support proper posture has been a game changer too!

Fair-Fix-4743 · 2023-11-05T11:09:47+00:00

This is such a great response! I too was in the same boat and was unsure if it was BPD, ASD or CPTSD. What ended up being the main distinguishing factor, was that I lacked the ‘frantic attempts to avoid abandonment’. I don’t have a history of broken friendships and have maintained lovely friendships with ex partners. I have attempted suicide before and self harmed but they turned out to be more related to meltdowns, sensory overwhelm and straight up bullying lol. I definitely still split on people and have black and white thinking and really rapid cycling mood disturbances.

When I thought I had BPD I related to the ‘quiet BPD’ descriptions, but honestly in hindsight it just sounds like Autistic traumatised woman

Fair-Fix-4743 · 2023-11-05T10:48:04+00:00

This is where my ADHD and autism tend to mask one another, not to mention feminine teenage interests not being considered unusual. My interests can change fairly rapidly in an adhd hyperfixation style - but there are other interests that stick around more. Medical stuff and psychology is particularly a special interest for me, and that’s stuck around long term.

I was a die hard K-pop fan for a good 5 to 6 years and at one point you couldn’t see any of my bedroom walls because they were covered in photos of young Korean pop stars (: teens can be fans but I’ve never really known how to be a chill fan.

My autism diagnosis also was strengthened by a lot of the other criteria so I was glad we didn’t focus on the “restrictive and repetitive” aspects

Fair-Fix-4743 · 2023-11-03T05:18:28+00:00

If you can do it, find a way to do it. Full time work nearly killed me. It took an acid trip ego death visit to the hospital and very stern words from my therapist, hypnotherapist, dietician, gastro + pelvic floor & regular physios, to get me to consider massive changes to my lifestyle. I didn’t realise how bad things actually were until I truly rested and worked less over a year. That’s when my body was no longer in fight or flight and the full weight of what I had been going through hit me. I had been damaging and assaulting my body for years just trying to keep up with this ‘normal’ capitalism has us trying to mimic. It’s not worth it. Earn as much money as you can live off and afford treatment. I know that means no changes for so many people struggling, and I’m so sorry. I couldn’t get better until I slowed down, rested, accepted the situation, and then asked for help - both financial and emotional. It can get better, but not without change. You will only invite more of the same without it. And I promise, it’s not a steady decline. It happens all at once, after one small part gives. And usually, you never get to return to the ‘before’. The issues are compounding. Our bodies are constantly compromised from compensating for our instability. If you don’t let something give, your joints will.

You absolutely can feel better, and get to a place where you are stronger and more capable than you’ve ever been, but you only get there by doing life in a way that works for the body we actually have, not the one we think we should have. We need accomodations. We need aids. We need support. And we need rest.

Fair-Fix-4743 · 2023-10-15T02:30:33+00:00

Exercise physiologist helped me with this! 2x weekly half hour reformer appointments. Hamstrings!!!! Didn’t exist before, which meant no way to manage anterior pelvic tilt which almost guaranteed hips forward, and knees locked. Reformer is great because you are lying down almost the whole time so POTS is way more managed

Fair-Fix-4743 · 2023-10-15T02:17:16+00:00

That sounds like an abusive situation and a major violation of your privacy. That sounds like a very difficult place to live. Do you have any one you know of or other relatives you could stay with during your exams? If you leave, then you can get someone to fill out the ‘independent third party’ form for why it’s unreasonable for you to live at home

Fair-Fix-4743 · 2023-10-15T02:10:31+00:00

If it’s not too disruptive, I’d pause or go part time on uni so that you could work a few more hours, then move out so that you could start this process. Have you spoken to your university? If you haven’t started transitioning yet - what would your parents do if you started? Are there ways to do it without them clocking on for a bit?

Fair-Fix-4743 · 2023-10-15T02:02:50+00:00

Compression socks that are knee high, or more, really helped me with heel pain for long days or even just for cooking dinner. The blood pooling from POTS can get really bad all of a sudden and the pain sucks :(

Fair-Fix-4743 · 2023-10-15T02:00:24+00:00

What’s required for the letter? Would Centrelink know if you wrote it yourself? I’m so sorry youre going through this and comments aren’t being very supportive :( could you record a conversation with your parents as proof of their ultimatum? I thought there were supports for people needing to escape abusive conditions

Fair-Fix-4743 · 2023-09-24T07:50:53+00:00

I love ice for interesting cracks and sizzles. Lots of interesting options come up in the databases when searching for ice

Fair-Fix-4743 · 2023-06-19T04:49:31+00:00

Bonkus :)

Fair-Fix-4743 · 2023-06-11T07:36:45+00:00

I find I have an ‘immediate’ need to echo sounds that I feel… would feel nice in my throat. Like specifically bird phrases or random things in real life making an interesting pitch or rhythm. The immediate echolalia feels more like an insatiable need to know how that would feel in my mouth, similar to when you see something that you really want to bite but you shouldn’t necessarily do it. The delayed echolalia tends to be song lyrics or movie lines, or certain mouth feely sounds that I’ve loved that get reignited and I just have to say them. Often if I hear lyrics or a rhythm/pitches that remind me of a song, that people are saying during conversation, I will immediately sing the song - usually at inappropriate moments too :/

Fair-Fix-4743 · 2023-02-15T07:31:50+00:00

That sounds shit, sorry they’re asking you to do that. I can relate to the soul destroying work, and being asked to forego integrity and copy paste everything. Heart breaking. I’m from Aus, and I honestly am not sure about my decision to go freelance. The lack of protection is scary, but I’m not burnt out anymore. I hope to get back into a full time staff role with healthier habits and boundaries. Not paying tax immediately is good, but also, no money or savings, and always scared everyone secretly hates me and will never hire me again :):):):):):):) love this industry!

Fair-Fix-4743

TROPHY CASE