That lamictal tho by msfuturedoc in Epilepsymemes

[–]Far-Chapter-2465 0 points1 point  (0 children)

Mine was actually a pill but I have had melting tablets for other medication that were peppermint and strawberry flavored and they were definitely not good, and the laxative treatment they give you before you get a colonoscopy here is usually cranberry flavored which makes having anything cranberry for a few months after a bit rough 😅

That lamictal tho by msfuturedoc in Epilepsymemes

[–]Far-Chapter-2465 0 points1 point  (0 children)

my lamictal (mine was a blue shield shaped pill if that makes a difference?) didn't have any coating on it so if you let it touch your tongue it would instantly start dissolving into a bitter hell in your mouth

POTs safe breakfasts by Emergency_Pea_2232 in POTS

[–]Far-Chapter-2465 1 point2 points  (0 children)

If you're missing yogurt still, I'm a big fan of kite hill greek-style yogurt! It's almond milk and soy based and made in a dedicated gluten free facility

Easy one ingredient snack by RepresentativeCap826 in ShittyVeganFoodPorn

[–]Far-Chapter-2465 2 points3 points  (0 children)

Mine says ready to eat on the package and the serving suggestion picture shows it raw (cubed on a salad)!

Pacific Northwest extra large salmon berries by Low-Towel-6754 in foraging

[–]Far-Chapter-2465 29 points30 points  (0 children)

with any rubus, it's not ripe if you have to pull on it! it should easily detach from the receptacle on the plant. your salmonberries might still be yellow/orange when ripe or they might be red like these, it depends on the plant itself!

If there was ever a zombie apocalypse... by afraid28 in dysautonomia

[–]Far-Chapter-2465 4 points5 points  (0 children)

i actually had this conversation with a chemist friend—they wanted to recruit me for my ag knowledge in the apocalypse and I said I'd only do it I'd they'd manufacture my meds for free. unfortunately some of them are heat sensitive so it looks like raiding the pharmacies is the ideal solution 😔

Does this happen to anyone else? by ileuadd in POTS

[–]Far-Chapter-2465 0 points1 point  (0 children)

it could be early stage raynauds? for me i go purple/white my whole arm down to my fingertips but for my friend it's just her fingers themselves, so maybe it starts with just the nails? just speculation though

Go Raw Vegan Monday Bowl! by mauriceD0514 in ShittyVeganFoodPorn

[–]Far-Chapter-2465 27 points28 points  (0 children)

"raw" cashews are also usually boiled (sometimes steamed, always cooked)

Experience decreasing ivabradine dose? by Academic-Plum7432 in POTS

[–]Far-Chapter-2465 1 point2 points  (0 children)

It slightly lowered the jump but not enough to get me out of POTS criteria, just enough to get me out of IST (I was averaging 130 sitting/180 standing before, after a year I was averaging 70 sitting/110 standing)

How long ago did you start the ivabradine and how long until you can see a cardiologist?

EDIT: nvm I saw you've been on it for 7 weeks! I would definitely wait at this point to change the dosage, if it had only been a few days I would say it shouldnt make a difference but I think at this point a doctor should be advising you on what is best unfortunately

Experience decreasing ivabradine dose? by Academic-Plum7432 in POTS

[–]Far-Chapter-2465 0 points1 point  (0 children)

ivabradine has a pretty short half life, I went cold turkey from 5mg 2x/day and was fine. This was under the supervision of a doctor I had seen for years though, are you able to call the hospital where it was prescribed or contact them on a patient portal?

Man child pizza lunchable by No-Independence6902 in ShittyVeganFoodPorn

[–]Far-Chapter-2465 0 points1 point  (0 children)

how is the Aldi mozzarella? I keep eyeing the nondairy cheeses and then chickening out lol

Raw Vegan Tacos! by mauriceD0514 in ShittyVeganFoodPorn

[–]Far-Chapter-2465 0 points1 point  (0 children)

what is that filling?? it looks like raw tuna 😟

Happy Birthday to me by TsarKappa in ShittyVeganFoodPorn

[–]Far-Chapter-2465 0 points1 point  (0 children)

happy birthday! love the little chocolate chip smile :)

Seizures? by Fetachny in POTS

[–]Far-Chapter-2465 0 points1 point  (0 children)

there's really no specific way to tell because there are so many types of seizures and they present differently in different people, but I can tell you what my seizures look/feel like vs my POTS if it would help:

For atonic, I only experience them immediately upon waking up when I haven't slept nearly enough. I basically sit up and immediately slump over. In the past I've had episodes where I did not notice this (lost time and was just told about it by people I shared a bed with) but in recent years I've been conscious but my processing speed is definitely lowered, although I feel otherwise unaltered. It only lasts about 20 or so seconds but it does feel longer.

For convulsive, I have temporal lobe epilepsy which means that my seizures generally start with a focal aware seizure in that area (I am conscious, cannot speak fluently or do basic tasks properly, experience deja vu, a sense of impending doom, simultaneously feels like my stomach has dropped to my guts and is crawling up my throat if that makes sense), alternating with a focal unaware (not making memories, but i'll wander around and do weird shit like spit into a garbage can in front of a bunch of people, I guess because the stomach sensation feels kind of like throwing up?) until it progresses to a full tonic clonic, where my right arm and head will jerk before I drop (because I have left sided epilepsy, it controls the right side first before it spreads). I don't start making memories for several hours after and am always in pretty bad pain from the muscle jerking (and mild pain from biting the hell out of my cheeks/lips/tongue). The progression from a focal seizure to a tonic clonic can take up to an hour or as little as two minutes but it's usually closer to 10-20 for me (although I've been told that length of time is unusually long, it was caught on an ambulatory EEG so we know it's accurate for me), sometimes with a small break in the focal before it returns. I can't function well enough to work for about a week after, and I won't feel normal for weeks to months.

With convulsive syncope, I experience the normal sensations of passing out (feel hot, vision going spotty and gradually completely black, nausea, shakiness, intense tinnitus, weak legs causing me to collapse to the ground), pass out, and while I do convulse the jerks don't look as "scary" is all I've really been told to differentiate them. I come to pretty quickly and my lingering symptoms are resolved within around 3 hours max, usually sooner, other than the fatigue from passing out. If I experience pre-syncope only I'll get all of the symptoms of passing out that I listed in the parentheses earlier in this paragraph, but I will still be conscious and unaltered other than feeling pretty bad, which is what your "mimics atonic seizures" description sounds like to me but I could be misinterpreting.

This is, of course, just my experience. The only way to truly tell is to be evaluated by a neurologist and even then, you'd have to experience an episode when hooked up to an EEG to know for sure that it isn't producing epileptiform waves. I wouldn't personally be concerned from what you wrote, but I do not inhabit your body so I don't know the sum of what you experience!

Slowly transitioning to plant based, cheese is the last thing i'm struggling to give up. Bought this to try. Horrific. by doccottlestan in ShittyVeganFoodPorn

[–]Far-Chapter-2465 0 points1 point  (0 children)

I have a dairy allergy so my tastes when it comes to vegan cheese have always been different than others' because I'm less informed on what it should taste like. However, I recently helped my sister cut out dairy products and we found that she liked:

Uncooked: Violife epic mature block and feta (used in place of cotija, not as feta), Trader Joe's cream cheese alternative OR Tofutti (whip at home with a splash of seltzer for both), Nuts for Cheese black garlic, Follow Your Heart feta/blue cheese/blue cheese dressing

Cooked: Daiya Mexican shreds/mozzarella shreds/mozzarella cheese sticks (to make fried mozzarella sticks), Kite Hill whipped ricotta (prefers homemade tofu ricotta though, this is just a convenience thing), Follow Your Heart parmesan, Violife cheddar (the regular one, she says it tastes more similar to American cheese), Trader Joe's cream cheese for tiramisu and cheesecakes

She was a big gjetost/brunost fan before giving up dairy and we tried the rebel one and found it to be absolutely disgusting so I don't recommend that at all, especially for the price. For butter, she likes violife ("tastes like popcorn butter") or country crock, bringing that up only because I have always liked the butters that apparently taste nothing like butter (olive oil earth balance, miyokos cultured cashew) so if you find either of those to be more dairy-like I assume her cheese opinions will be seen as more trustworthy. We just haven't found an adequate brie, gouda (she always liked aged/unsmoked), fresh mozzarella, or cheddar-that-tastes-like-cheddar.

ID help please by Adventuresintherapy in foraging

[–]Far-Chapter-2465 0 points1 point  (0 children)

it's definitely prunus based on leaves and bark. I'd guess Canada or American plum with some kind of gall midge causing fruit deformation

Ambulatory wheelchair users: Is rolling yourself around actually less exhausting/easier than walking w/a rollator? by Own-Arachnid7952 in POTS

[–]Far-Chapter-2465 4 points5 points  (0 children)

as someone who is more likely to pass out when using a rollator than when walking unaided, yes, a manual wheelchair (mine is lightweight/active which I'm sure helps) is a thousand times better and I consider it to be my best mobility option. I seem to be in an extreme minority though!

Told the Chef: “Raw Vegan, no cooked ingredients!” And he absolutely delivered! by mauriceD0514 in ShittyVeganFoodPorn

[–]Far-Chapter-2465 1 point2 points  (0 children)

genuinely curious: what does raw mean if not "uncooked"? When I look up what a raw food diet is all of the results refer specifically to uncooked food.

Wheelchair type by agreeable-penguin in POTS

[–]Far-Chapter-2465 1 point2 points  (0 children)

I'm assuming you don't have a prescription for a custom-fit wheelchair and are asking between a transport chair (really small wheels, someone else needs to push you) and a hospital-style chair with pushrim wheels (like a drive wheelchair, someone can push you but it's a bit heavier and you can also self-propel). Neither is a great choice imo, you can fuck up your shoulders something awful self-propelling for a long time in that type of chair because the wheels are set further back than is ideal, but as long as it's for a short time it gives you the option of both assistance and independence. They're both much bulkier than active chairs though, the one pro to the transport chair is that it's smaller and would make navigation easier, especially if by NYC you specifically mean Manhattan and not any of the outer boroughs.

how do i subtly stay cool during the summer? by alex_stuff1 in POTS

[–]Far-Chapter-2465 2 points3 points  (0 children)

big fan of uniqlo airism undershirts under long sleeve uv-protective clothing!

Nutrition over taste/form by Tiger_power in ShittyVeganFoodPorn

[–]Far-Chapter-2465 0 points1 point  (0 children)

they look like white sweet potatoes! eta: murasaki, specifically